posted
Thanks for posting this Scott. I try to read that magazine when I can find a copy, but it is not carried by very many health food stores.
A few of the articles are online.
Bea Seibert
P.S. It is the April, 2007 issue which will be devoted to Lyme Disease.
[ 20. March 2007, 11:54 PM: Message edited by: seibertneurolyme ]
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
It was so informative that I thought I was in a dream reading it. A whole issue devoted to Lyme disease. Someone is paying attention to us!
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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bettyg
Unregistered
posted
since it was times new roman and small print, i couldn't read anything, but did write the webmaster asking if they could create an extra feature for ARIAL, 14, for us LOW vision folks....
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SForsgren
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Member # 7686
posted
Betty,
Just COPY and PASTE the page into Microsoft Word and change the font. It isn't that difficult to do.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
OK>...I'm SOOO website challenged. All I can find to click on is to order the magazine. Could you bring up the link to the issue...or at least the parts we can access?
Just when I think my brain is working, I go to a new site and I'M LOST!
Actually, I just get frustrated too easily and I give up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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If you look at the top of the screen where it says "view" click it and go down to "text size" You have the option of making your letters bigger.
You may have to scroll back and forth on the screen to be able to veiw the whole page but well worth it IMHO.
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Thanks for the heads up, Scott!
Posts: 2276 | From united states | Registered: Jun 2004
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Jill E.
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Member # 9121
posted
Scott,
Thank you for posting. I'll pick up a copy at my health food store, and buy copies for my LLMDs, too.
I haven't seen what topics they cover, but as most of us know, they have covered Lyme Disease in the past in terms of the bismuth protocol and other approaches that could have some risks. So I always read the Townsend Letter with great interest but also a bit of caution.
As always, thank you for sharing whenever you find anything of interest.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
In previous cases, it was one article here and there. 75% or more of this edition is on Lyme. Talks about several different things. MP, herbs, etc.
I believe it alone is worth the 49 dollar annual subscription fee. It is very good!
I scanned through it last night and will read it in more detail when I can.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Iam not throwing baby out with bath water
think this
OspE or Erp proteins, bind to host factor H and or this HCI + potassium salts
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
BettyG & others with problems reading small print:
I was thrilled to learn that pages online can have the text size changed very easily by using the control [ctrl] key and the plus/minus keys (for windows operating system users).
(Quicker than using the view->text size menu method).
To make text larger hold down the [ctrl] key and press the [+] key. Each time you press the [+] key the size will get larger.
To make text smaller hold down the [ctrl] key and press the [-] key.
Enjoy!
-------------------- When I lost my grip on Faith in the maze of illness, Hope gently clasped my hand and led on.
RuthRuth Posts: 478 | From California | Registered: Jan 2007
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Ruth Ruth: BettyG & others with problems reading small print:
I was thrilled to learn that pages online can have the text size changed very easily by using the control [ctrl] key and the plus/minus keys (for windows operating system users).
Whoa!! Thank you! That was SO easy!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
"Once the allergic problem has been properly addressed, the immune system is free to fight the viral and bacterial problem with the immune cells stimulated by the TH1 system. What that could mean to allergic people is that just as they are beginning to feel better from their allergic reactions, they are hit over the head by the viral or bacterial problems that have been waiting in the wings for the TH2 responders to finish their job."
Sorta says it all!!! In one paragraph...much shorter than I post ;-)
Immediate response to Bb is an allergic reaction...so our normal response (the right one) is delayed, allowing this pathogen to have lots of babies...
And then our body figures it out...
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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posted
Thanks.....why couldn't I see those? I kept trying to click on the issue, etc. DUH!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
To all who gave me suggestions, the control PLUS key will not work on my MS 97 word, windows 98!
i have used view, font, LARGEST from day 1; used the mouse to enlarge/reduce with control key.
decided if i wanted to read some things, why don't we all COPY them to this post, and they will be here for ALL to read or skim at their leisure!
Cave and I have copied the 1st 2 lyme articles here? Anyone else feel like copying 1 or 2 articles here going down from the top so we know which have been pasted here or not? Thanks my friends! Bettyg
From the Townsend Letter February/March 2007
Realities of Antibiotics for Lyme Disease by Dr. David A. Jernigan
It may seem that I am 'anti-antibiotic treatment'; however, the reality is that there is a time and a place in which antibiotics can be beneficial for some people. Antibiotics are definitely not a solution I recommend if at all possible to avoid, due to the many, very real, direct, and unavoidable adverse effects on the integrity of the body, not to mention the potential for side effects and allergic reactions.
I am amazed at how many people already know they are allergic to at least one class of antibiotic. The problem I have seen repeatedly is that a worsening of symptoms is expected by many doctors as an indication to them that the medicine is working -- the proverbial 'Herx' reaction. But how does one know when it is a true adverse reaction to the drug?
Many, if not most, people we have tested were allergic to the antibiotics they were using. Keep in mind that it doesn't mean that the antibiotic isn't killing bacteria, but many patients are experiencing adverse symptoms that have nothing to do with a Herx.
In the same manner, every single asthma sufferer I have tested has been allergic to their inhaler, and the inhaler tested as a toxic substance to the body, yet the inhaler still worked for them as a bronchial dilator.
It might be a surprise to you to know that the leading type of drug-causing adverse reactions is antibiotics.
As reported in the scientifically referenced article, 'Death by Medicine,' by Gary Null, PhD, et al., the leading cause of death in America is adverse drug reactions.
It is reported that approximately 800,000 people die yearly, due in large part to adverse reactions and conventional medicine's philosophy of care. Over one million hospital admissions in the United States are due to adverse drug reactions.
In one year, in the United States alone, over three million pounds of pure antibiotics are used on humans. This is enough antibiotics to give every man, woman, and child in the US ten teaspoons of pure antibiotics per year.
Now, consider that many Lyme disease sufferers have been on at least two different antibiotics at a time, at an average dosage of 600 mg each per day.
If one has been on antibiotics at this dosage for one year, this means that a full pound of pure antibiotics has been consumed. My question is, how many more pounds of antibiotics will it take, especially when research has shown that at times bacteria are known to be able to mutate around an antibiotic within the first 20 minutes of taking the first pill?
It the bacteria have already mutated around the antibiotic, then switching to an intravenous form of the antibiotic, which is a favorite tactic, will do little good.
As mentioned in 'Lyme Toxins: the Primary Cause of Your Symptoms,' (Townsend Letter, April 2007), certain classes of antibiotics can activate bacteriophages, viruses.
An astonishing new finding was released by John Travis in Science News (July 2003;164). Travis reported that research performed by John F. Prescott found that certain antibiotics, such as:
the fluoroquinolones, the class of antibiotics that includes the name-brands and generic brands of Levaquin�, Cipro�, Tequin�, and Avelox�, actually are known to trigger a type of virus called bacteriophages (viruses that can infect bacteria), to change the genetic sequencing of the bacteria, causing the bacterium they have infected to start producing toxins.
These viruses can act as genetic delivery vans, invading bacteria, such as spirochetes, and often lying dormant until activated by a change in the host (your body) environment.
Once activated, these viruses insert their toxin-generating genes into the bacterial chromosomes. These viruses can turn basically harmless bacterium into killers through this genetic sequencing of toxins (Travis 2003).
So now we see that not only are these toxins released through the die-off of bacteria, and not only can antibiotics actually increase the production of the toxins, but these viruses can cause the bacteria to rupture spilling their toxins into the body (Waldor 2004). Other antibiotic classes need to be studied in this same manner to verify their safety.
Some people only feel good if they are taking the antibiotics. This is possibly due to the fact that some antibiotics work by impeding the growth of bacteria without actually killing them.
Again we see an unacceptable solution, since this leads to years of dependency upon antibiotics. This is justified by some, due to the relief the treatment provides, even though it is but again simply a drug-induced illusion of health.
One may ask, 'Is there a time when antibiotics are okay to use?' My answer is yes. Antibiotics have saved many lives since the advent of penicillin.
However, in chronic Lyme disease, it is the opinion of some that the antibiotics should only be used at the time of the initial diagnosis for approximately four months. My opinion as a doctor specializing in restoring the optimal integrity of the human organism, I would never recommend antibiotics for chronic Lyme disease.
I have seen too many people overcome Lyme without antibiotics and without severe Herx reactions.
As a doctor, I give no one a guilt trip for using antibiotics. Everyone must walk their own road and make their own choices. When treating someone who is taking antibiotics, I simply work to counteract any adverse effects they may be causing, while providing the body with the true correct care it needs to heal.
The prevalent thought seems to be that the human body is dumb and needs our help to 'fix' its problems. The reality is that the world's most astute and celebrated physicians cannot fix even the simplest paper cut, much less a serious illness like Lyme disease.
Most physicians specialize in creating drug-induced illusions of health. The human body is not dumb. The body needs the physician to see his role as a being a facilitator in the process of restoring the body's optimal design so that homeostasis can be reestablished and true health can follow.
The drug companies have teams of people who 'police' the Internet newsgroups and media to monitor the information getting out about natural products that are working.
They keep the latest drug in the forefront of people's minds, dangled like a carrot that will lead to the restoration of the desired quality of life.
It is said that this is the 'Information Age' and he who controls the information controls the world. Apparently, all is fair in the 'guerilla marketing.'
For example, when Borrelogen was first announced on the Internet Lyme newsgroups, it caused a war between the people who were trying it and reporting that they were getting better vs. the drug company people. You can see this war quite easily in the archives of the Internet, preserved for eternity.
People would innocently and joyfully report that they were getting better on Borrelogen and, in response, they received hate mail from 'well meaning, self-appointed. or paid newsgroup drug company police, posing as true Lyme sufferers.
The guerilla warfare continues with another author writing about the natural treatment of Lyme disease. To discredit Borrelogen, he simply posted the same message to multiple newsgroups that 'He had tried Borrelogen...' and continued to post this same message for months until anyone typing in a search on Borrelogen had to suffer through his monotonous messages. Shortly after doing this, he came out with his own book on Lyme. Morality is for sale in America.
I bring this up because one needs to know what is going on in this Information Age. Drug companies and nutraceutical companies often are only concerned with keeping you a loyal customer of their iffy products. I am first and foremost a doctor. I developed my few products simply because nothing I could find was helping my patients.
It could be said that I too am simply 'trying to sell you something.' My desire is to help people get well, not in a year or two, as is promoted by doctors following the fad 'cookbook' natural protocols, but as quickly as I can help you heal.
I am a facilitator and teacher only. I want you to be fully informed as to the realities of your choices. I don't want anyone to follow a protocol that keeps them suffering for a couple of years with the promise that, at the end, he or she will feel better.
I know these long-term protocols are 'bad medicine,' because 100% of the thousands of people who have come to our clinic demonstrate improvements within the first two weeks of care.
Almost all these people stated that nothing they had ever tried had helped them. Most of them had only gotten worse with the conventional and natural medicines they had tried.
Our nutraceutical formulas and healing philosophy have helped many thousands of people over the years, but I want you to know that, even if they only get you partially well, this is more than most medicines achieve. I like to think it is like you are running a marathon and I am on the sidelines handing you a refreshing drink that may not help you get to the finish line, but at least it will get you that much closer, so that someone else can help you the rest of the way.
Consult your doctor before using any of the treatments found within this site.
Subscriptions are available for Townsend Letter, the Examiner of Alternative Medicine magazine, which is published 10 times each year.
Search our pre-2001 archives for further information. Older issues of the printed magazine are also indexed for your convenience. 1983-2001 indices ; recent indices
Once you find the magazines you'd like to order, please use our convenient form, e-mail [email protected], or call 360.385.6021 (PST).
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posted
Wow... this Jernigan suuuurrrreee knows how to hook us all into HIS CARE, AND HIS PRODUCTS. Nice try Jernigan!!! Very sanctimonious of you, and nice scare tactic re: distrusting all Lyme patients honest reviews of products and treatments! I am soooo frickin sick of quacks like YOU who once again take advantage of sick patients with a brutal disease.
Do you REALLLLYY HAVE A BETTER SOLUTION than antibiotics?? Can you REALLY MAKE EVERYONE WHO USES YOUR PRODUCTS AND YOUR TREATMENTS FEEL BETTER in A MIRACULOUS TWO WEEKS? Please!! Spare us all!! And may the FDA letter of warning scare the crap out of you if you have mismarketed your own crazy products!
I'd sure like to see the "testing" you've done to support your claims. So, now you're a microbiologist on top of a Lyme expert??
Why don't you do yourself and us a big favor? LEAVE US ALONE.
Anneke, totally ****ed in CA
Posts: 364 | From California | Registered: Sep 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
The "FDA letter of warning" was also sent to the cherry growers association, so everyone be warned that eating cherries is equal to eating drugs and cherries are not FDA approved.
Oh my gosh!!! Where would we be without synthetic drugs that are sooooooo safe and without Big Pharma to protect us because we all know Big Pharma has only our best interest at heart.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Whoahhh Luvs... Sure sounds like you're taking an FDA letter to cherry growers out of context here.
Of course Big Pharma is not a moral hero here! But I'd much rather place my bets on what has more evidence behind it than what is completely unproven. You really think all these health product companies have our best interests at heart? The same exact point can be made about them, and they have virtually zero regulations.
Isn't a little part of you angry at the pirates who are out there? I don't think we're necessarily on opposing sides here? I'm just a Lyme patient needing a good healthy vent with those who get it!
Posts: 364 | From California | Registered: Sep 2005
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luvs2ride
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Member # 8090
posted
Anneke, I will shake your hand in peace as we really are all in this together. I agree with you that makers of supplements can be just as greedy as pharmacutical companies. And I did not like Dr J's article ending in a push for his own products.
In my treatment of lyme, I have worked only with medical doctors. At first I landed with a medical doctor practicing alternative care by accident. I was referred to him. But it did not take long for me to jump on his bandwagon.
I trust the Medical Doctors I work with to have checked out the reputation of the manufacturers whose products they use. These doctors monitor my results with both bloodwork and my own reports. My current doctor sees any increase in pain as a sign to back up and go easier.
I'm doing very well. I agree with anyone who says we should not be self-treating this illness.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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SForsgren
Frequent Contributor (1K+ posts)
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posted
Gosh, if I only had a dollar for every bottle of negativity shared here....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by SForsgren: Gosh, if I only had a dollar for every bottle of negativity shared here....
Scott theres negativity from all sides here thats life as we know it on earth wish it wasnt but opinions are opinions and people are intitled to them.
Thats mine
There are people here that push herbal stuff, there are people that push abx's, there are people who push protocols.
We are different and the same.
I bite my lip dailey especially when people push something I know isnt for everyone ie could possibly injure?
Herbs are what some drugs come from. Salt is good in moderation my opinion. abx's are dangerous and so are the above mentioned in the wrong hands.
Chemistry is science not art.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I'm sorry Scott, but I too am disgusted by that Dr J's article even though antibiotics wouldn't be my first choice at this point for my own treatment.
-------------------- Symptom Free!!! Thank you all!!!!
Thanks for the hand of peace, and for sharing your own experience. I really appreciate it! And, I'm really, really glad to hear you are doing well. I always rejoice inside when any Lymie gets better - no matter what the method. I too use supplements, just like everyone else. Lots of them! I have drawers full! And, I feel very vulnerable by using them, with so many unknowns. I feel the exact same way about antibiotics - vulnerable. It's just that in my case, though they have not been a cure, when I'm on a good combo. of antibiotics - I get my life back. The whole natural route, no abx., didn't seem to touch my symptoms.
I have also really observed in my time as a Lyme patient that all of our levels of functioning are HUGELY variable, and it doesn't seem to be that helpful always to compare or judge our cases. ONe patient can have one symptom, while the next has 50 plus. It's so mysterious.
SCOTT - What is "negative" exactly? Is it "negative" to point out when you believe someone is taking advantage, or is it "negative" to actually take advantage? And, of all places this forum should be a place where we are free to express ourselves and our experiences with eachother - and to fend off marketers. Expressing frustration about the whole kit-and-kaboodle I think is par for the course.
Posts: 364 | From California | Registered: Sep 2005
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Greatcod
Unregistered
posted
It's sort of interesting that the LDA is dedicated to keeping long term ABX treatment available, and fighting the insurance companies and IDSA who oppose long term ABX for Lyme, and that this LDA forum, Medical Questions, features frequent episodes of antibiotic bashing and conventional medicine trashing. Its also interesting to me that the alternativists place their treatments on a higher moral plane than conventional medicine's. Alternative leaders are given almost Godlike respect, which is silly really. If I have learned anything from Lyme, it's that healthcare providers are quite ordinary human beings, and screw up daily, just like the rest of us.
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MariaA
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Member # 9128
posted
come on now, people do the same for their 'conventional' LLMD's.
At least they certainly do for San Francisco's Dr. S, president of ILADS- and with good reason, since he's saved a lot of people. LLMD"s in other states tend to be low-profile due to the larger threats facing them so people dont discuss them as openly.
Sometimes the alternative practitioners get more attention by name here because they're not in a position to get their medical license yanked so it's a bit less of an issue to bring them up (such as naturopathic doctors, who are licensed differently than MD's and whose licensing boards are of course much less conservative)
-------------------- Symptom Free!!! Thank you all!!!!
I have noticed in the Lyme community, and in our society at large, that there is a sense of moral superiority by those who do it the "all natural" route. Not sure where this came from - mmm.. probably the marketing hype put out by the "health" product companies. '"All natural" can mean a lot of different things. Also, many pharmeceuticals are taken directly from nature - for example, quinine as one of many.
Anyway, I need to get my butt off this computer and into my day. I enjoy the discussion!
Posts: 364 | From California | Registered: Sep 2005
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posted
I am generally not a negative person, but it does upset me when someone misrepresents the facts. In this case I am speaking of Dr J.
Before I discovered LymeNet and before hubby had had any antibiotics we traveled to Kansas and spent several weeks working with Dr J (a chiropractor) at his clinic.
Hubby had spent many months and a couple of thousand dollars on Nigerian herbs to eliminate G.I. parasites and heal his stomach. Several docs, including alternative med docs were telling us hubby would need to take antibiotics for life to treat the Lyme etc. We decided to try the herbal route with Dr J first.
The statement the doc made in the article certainly does not apply to hubby. "100% of the people who have come to our clinic demonstrate improvements within the first two weeks of care."
In reality hubby started having his seizure-like episodes after starting the Borrelogen. He had 4 ER visits and 3 hospitalizations in a period of 4 weeks -- had been relatively stable (sick but no major new symptoms for at least 6 months prior). We did end up getting a positive PCR test during this time, but the hospital docs ignored it.
Anyway, hubby was just too sick to continue with treatment with this doc and not only did he have no improvement but his condition worsened. In my opinion, this was caused by several factors.
1) I feel the herbs were actually too effective -- caused too much dieoff for hubby to handle.
2) Saunas depleted too many minerals causing additional problems.
3) Wobenzyme on top of the herbs really put hubby over the top -- ended up unconscious in the hospital for over 15 hours one day. Had elevated protein in spinal fluid.
Another doc made a statement once that has really stuck with us -- the words always and never should not be used when discussing medical issues.
The second statement from this doc that I question is his reference to thousands of patients. I think the number is much much lower. Actually he may have seen thousands of patients, but the number who are Lyme/Borreliosis patients is much much lower.
In my opinion, Borrelogen might work for patients who have primarily arthritic symptoms and/or those who have already been treated with antibiotics and need extra support to get off antibiotics. We did not meet any patients who only used the Borrelogen. Don't remember meeting any patients with neuro symptoms either.
This is just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
ack, that REALLY sucks. Please write up your story and send to Townsend Letter. I think that Dr J's article probably sends off alarm bells for other people, the way it's written, and it'd be good to tell people that he's misrepresenting the facts with his 100% efficacy claim. The 'never say always or never' statement definitely applies to everything in Lyme!
-------------------- Symptom Free!!! Thank you all!!!!
Nigeria is usually listed as either the No. 1 or No. 2 most corrupt countries in the world.
I'm so sorry to hear you paid so much for those Nigerian herbs. Honestly, based on my vast experience, I fear to think what the herbs really were. There are just SO MANY SHEISTERS willing to make a dime of us. If you type in Nigerian scams to Google, you will see thousands and thousands of entries. The FBI has a special unit just to keep track and try to stop the flow of corruption from Nigerians thru the Internet.
Sadly, just like any other country, individuals give the rest a rotten reputation. Nigerians are also some of the most wonderful, generous, hospitable, brilliant people I know.
Again, sooo sorry to hear of your experience with Dr. J. I hope hubby is much, much better.
Posts: 364 | From California | Registered: Sep 2005
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posted
"I trust the Medical Doctors I work with to have checked out the reputation of the manufacturers whose products they use." Oh Man, you have to be your own Dr to get well these days. And must discern regarding product manufacturers. Don't depend on the dr for this. Even Metagenics with their sterling reputation and protocols put alot of crap in some of their products. Soy !! And many Dr's are too dumb to figure this out for themselves. I have found this out for myself and cannot depend on ANYONE, much less a MD who are pimps for the pharm co's.
Posts: 116 | From Plano, Texas, USA | Registered: May 2004
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Greatcod
Unregistered
posted
Why is it that if a person is an MD, ND, Chiropractor, Master Herbalist or Protocol Engineer, among the many, that person cannot be dumb, wrong, a fraud, or a shameless exploiter of human suffering. Actually, on some overall level, I believe the Vetinarians as a group are the most caring and honest. I mean, at least they don't want $1000's for Rifing your dog.
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posted
Actually I wasn't complaining about the cost or quality of the Nigerian herbs. Was one of the most positive treatments hubby has had. That is why we didn't want to take antibiotics at the time and mess up hubby's G.I. after we had worked so hard to heal it. That is how we ended up seeing Dr J.
The lab which tested hubby for parasites is based in New York City -- the director is from Nigeria and he spends 6 months in the U.S. and runs his own medical school in Nigeria the other 6 months of the year. The medical school he is associated with grows and manufacturers the herbs to help fund the medical school.
Unfortunately we don't see the PCP in Florida who uses this lab anymore. The lab deals with a very limited number of docs as they are small. They actually look for all G.I. parasites and don't just test for 2 or 3 as most labs do. If I remember correctly they test all stool samples for something like 50 or so different parasites.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Sue,
I am sorry you have had such a bad experience. I am VERY involved in my treatment. I research everything.
But I do trust my doctors (2). You HAVE to trust someone honey. You can't know it all and even the FDA has taken a bribe or two.
This disease has everyone stumped. There are no experts. All the doctors and all the patients are students of this disease.
We have to do whatever we have to do to get well. I would most definitely take abx if I were at that point. I simply am not there. For me, other issues were causing me harm such as LGS. That was the biggest contributor to my pain and inflamation. Fixing it put me back on track. Still I have joint issues even though they are very minor compared to many here. It wasn't minor initially and if doctor's had pumped me with abx, my LGS would have just gotten worse.
So, Lyme is the culprit many times and many times it is not. I certainly know I have had lyme and I may very well still have it. It may be at the base of my illness, but I had/have other issues that must be dealt with first. My doctors are doing a SUPERB job of this and they are the first to tell you they don't have all the answers. They just don't think inside a box...not the "lyme is easily cured" box nor the "lyme is the cause of all evil" box.
I believe the best doctors are the ones who look at ALL possible causes of your illness.
Luvs
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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What is LGS? And, I totally agree that the best docs. stay open minded in the diagnostics dept. This is one of the reasons I respect mine so much. My CD57 has remained very very low after several years of treatment, and she has been stepping back lately and considering other possible roots to the problem.
BEA- actually, I think we have probably used the same lab in NY city. I saw Dr. Galland for awhile there, and he used a lab in Manhattan that was very very good with parasites. They were the only lab who found what I had, and after treating it, I never had the same GI symptoms again. They were a small place, located in a basement of an old, multistoried bldg. near the financial district.
I'm glad to hear the herbs helped so much.
Posts: 364 | From California | Registered: Sep 2005
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bettyg
Unregistered
posted
here's another of the articles; who wants to take the other 1-3 left to copy here? thanks!
Guided Digital Medicine�, Lyme Disease, and Petri Dish Mentality by Savely Yurkovsky, MD
This article is based on the novel medical system - Guided Digital Medicine�, which operates diagnostically and therapeutically on the most fundamental level of Man's body - Energy.
Its author, Savely Yurkovsky, MD, is internationally known as a teacher and expert in Bioenergetic Medicine. His recent extraordinary book, Biological, Chemical, and Nuclear Warfare - Protecting Yourself and Your Loved Ones: The Power of Digital Medicine, presents fascinating clinical cases and scientific basis that explain the nature and the tremendous power of this system in all diseases.
"Le microbe n'est rien, le terrain est tout" (The microbe is nothing, the terrain is everything)
Since its first detection in 1975, Lyme disease has become increasingly recognized as one of the most vicious, common, and resistant infections of our day.
Moreover, thanks to serious deficiencies in medicine and, most importantly, a lack of proper understanding of the background state concerning the reactor to an infection (i.e., the patient), Lyme has evolved into a wide spectrum of chronic diseases.
Today, besides its well-known skin and arthritic afflictions, it presents itself through a polymorphic picture that is anticipated the least and missed commonly by the medical community:
opthalmological, cardiac, neurological, and even emotion and mental afflictions.
As a member of a spirochete family that has begot Treponema Pallidum, the originator of the great masquerader, syphilis, Lyme's Borrelia burgdorferi (Bb) is capable of staging just as diverse pathological acts.
One should also not neglect suspecting Lyme disease in children with inexplicable mood swings or changes in behavior. In children or adults, the characteristic skin bull's eye lesion or joint complaints need not be present.
All in all, Lyme has been found to mimic over 40 diseases NOTE FROM BETTY: WHAT HAPPENED TO THE 300 OTHER ILLNESSES MIMICKING LYME??
To complicate matters even further, it is also known for the huge variety of its strains;
a long-latent symptom-free period (up to even years from the day of infection);
an ability to mutate and break down cellular barriers;
an ability to penetrate and exist deep in the tissues;
a capacity to not only elude immune surveillance but cause severe immunosuppression itself, which would lead to secondary infections, confusing the clinical picture entirely.
As a result, the Bb often evades standard laboratory detection. It shields itself skillfully from antibiotic bombardments, and, even when it seems to have succumbed to the latter, Bb is able to resurge weeks, months, or even years later in as many as up to 50% of treated cases.
Needless to say, these properties made this infection one of the most misleading to suspect, most elusive to detect, and most challenging to treat even for the experienced Lyme's specialists who often find themselves defeated by the crafty germ.
Not surprisingly, treatment strategies are being constantly tossed and changed in order to find some way out of the therapeutic deadlocks, where antibiotic regimens become exponentially stretched to run even for months at a time.
Holistically minded practitioners endeavor to enhance the antibiotic regimens by adding herbal or other natural substances aimed at immune enhancement or spirochete-killing actions, but the outcomes, still, remain erratic at best. Why?
And why doesn't a prolongation of antibiotic regimens amount to a radical difference in the outcomes against Lyme disease, even when, in the short run, the response appears to be encouraging?
Such an approach doesn't work because it is based on the fundamentally flawed and myopic medical model that has spawned conceptually primitive decisions to accomplish the objective.
One might refer to this flawed allopathic model as a Petri dish mentality that has also failed with all chronic diseases. It naively purports an existence of and focuses exclusively on just two isolated factors: a perceived culprit, let it be a microbe, cholesterol, autoimmune, inflammatory, or allergenic process, on one hand; and a therapeutic agent to attack the "demon," on the other.
What are the chief conceptual shortcomings of such an agenda, and why did the renowned Louis Pasteur himself, the discoverer of microbes, state emphatically, "The microbe is nothing, the terrain is everything"?
Even if we are to examine such a simple entity as a Petri dish itself - never mind the human body with its 50 trillion cells and unfathomable interrelationships between them - inescapably, we face the fact that any germ can only take in the media that it finds favorable for its growth.
This simple observation, per se, makes the equation of Borrelia burgdorferi = Lyme disease incomplete at best. For even the history of lethal epidemics, such as cholera, typhus, plague, and others, attests that many among the exposed were spared.
What are the main favorable factors, one might ask, for rendering Bb's cultivation within the human body, and why does only a limited populace out of all who are exposed to the spirochete get the disease?
The answer is obvious: immunocompromised state.
How does this state come about? Several factors - chief among these, toxicological agents that undermine the immune system directly by invading the organs that are supposed to produce defense agents against Lyme, other microbes, and cancer cells - produce this state.
Also, overburdened and inefficient immunity can come about due to chronic infections, with candidiasis and parasitosis being the most common, thanks to the compromised gut immunity and flora due to the onslaught of antibiotics as well as foods rich in refined carbohydrates, sugar (and its substitutes), and preservatives.
Other indirect means to compromise one's immunity play a large role, also. Among these would be a compromised endocrine system - the main powerhouse of the entire body, including the immune organs. Endocrine glands are usually impaired by the same toxicological agents,
chronic infections (due to overtime support of the immune system), and the most prevalent and invisible among these - candidiasis - as well as by faulty (junk food) diet, lack of sleep and rest in general, or undue stress level.
The continuous and skyrocketing load of electromagnetic pollution in our daily environment is not to be discounted either as it is known to alter DNA structure, act as a major stressor, and interact also with toxicological agents - heavy metals and mercury, in particular - harbored within the body.
Certainly, in children, one is not to neglect the ever-increasing burden of vaccinations which, even very recently, have contained poisonous organic mercury, thimerosal, and still contain other toxic substances.
How common, one may (and should) challenge the author, is the incidence of toxicological agents being present in the body? According to the Environmental Protection Agency (EPA), traces of toxic chemicals, including outright carcinogens, have been found in the bodies of practically every average American.
The National Cancer Institute (NCI) believes that at least 98% of all cancers are caused, indeed, by these agents as a result of immunosuppression and DNA damage.
From the experience of this author, 100% of children born to mothers who had mercury fillings prior to conception are all born with mercury in their bodies that never leaves them.
Furthermore, the storage of that mercury is augmented via practically unavoidable mercury fillings and consumption of contaminated seafood.
Lead, another common and potent immunosuppressant, is also known to cross the placenta and lodge in the body of newborns.
In addition, both mercury and lead and other organic chemicals are richly present in mother's milk.
A word on some successful responses (initially, at least) to antibiotic therapy, primarily in acute stages of Lyme Disease. This population was, apparently, sufficiently immuno-compromised to develop the disease, yet the decline in immunity was mild enough so that they were able to regain control following the course of an antimicrobial agent.
Still, knowing the ability of Bb to remain dormant in the body for an indefinite period of time, these individuals, on the whole, are in a constant risk of Lyme's resurgence, particularly once the spirochete senses a decline in immune vigilance.
Furthermore, I consider antibiotic regimens themselves, in the long run, as a major factor in the decline of health, a promoter of chronic disease in general, and a potent trigger behind a recurrence of many chronic infections.
So far, the only study that I know supports some of these contentions is a study that has correlated an incidence of breast cancer and frequency of antibiotic regimens in women.
In general, I liken antibiotic treatments to loans with negative amortization; one is under the illusion of getting ahead while making the payments, yet one becomes very surprised one day when an even bigger debt returns to haunt him.
Profound, inevitable, and destructive candidiasis, a serious subject for another discussion, is our equivalent of the "negative amortization" in cases of infections being treated with antibiotics.
Guided Digital Medicine Management of Lyme Disease Guided Digital Medicine Management of Lyme Disease consists of four main components :
Stage I
Component #1 is Bioresonance Testing, which aims at identification of all possible immunosuppressive and energy-draining agents being present in the body. These also include residues of antibiotics.
Component #2 assigns the respective priorities in the treatment as it sorts out the primary key toxins, those that have to be addressed and in what sequence, vs. the secondary, less important ones, which will dissipate on their own.
Component #3 is composed of homeopathic remedies (not classical or mixed/complex kind), which aim at clearing the main offending agents while supporting all the weak and other organs which, according to the testing, are vulnerable to either being reintoxicated or having a shift of toxic agents (unfortunately, a common occurrence in prevailing "detox" regimens).
Component #4 addresses blocks and potential blocks to the treatment: diet, reduction of electromagnetic pollution, emotional stress, etc.
Stage II: Further decrease of immune burden and augmentation of energy reserve Treatment of opportunistic yeast and parasitic infections primarily with the same novel homeopathic system. This also is accompanied with adequate and multiple organ support to prevent reinvasion by the anticipated release of heavy metals due to yeast's die off. This is owed to a rather obscure phenomenon of fungi's ability to bind metals.
Stage III (and the easiest): Treating Lyme itself Homeopathic isodes, prepared of Bb, itself, in ascending potencies are administered, only a few times, as guided by the bioresonance testing
Stage IV Periodic maintenance testing/treatments and not only so much against Lyme itself but as a general preventative measure against the morbid factors which, in the long run, if allowed to amass, would inevitably lead to the development of chronic degenerative diseases.
A Sample of Patient Cases *************************
Case #1
History: A young gifted man in his early twenties with a history of Lyme disease for 11 years was treated with massive antibiotics for a five-month period and still has Lyme disease and many symptoms which are ascribed to it:
severe depression, anxiety, severe fatigue, poor memory, difficulty concentrating, Tourette's syndrome, dizziness, fainting spells, Obsessive Compulsive Disorder (OCD), ruminating thoughts, insomnia, difficulty urinating, difficulty breathing, chest pain, GI bloating, nausea, poor appetite, and constipation.
All these problems have lasted from few to many years. As a child, he had a history of several pneumonias treated with antibiotics and had eczema and food allergies.
He has one mercury filling; his mother has many. Also, several years ago, in addition to Lyme, he was diagnosed with Babesiosis and Bartonelliosis, for which he was treated with a heavy drug regimen.
Furthermore, he had four psychiatric hospitalizations for suicidal depression, improved after massive psychiatric medications and treatment for Babesia and Bartonella, and eventually discontinued psychiatric drugs.
In the past, he was seen and treated at a renowned university center by a famous allopathic specialist in the neuro-psychiatric complications of Lyme disease.
He was also treated by several reputable alternative physicians with specialty in immune dysfunction, Lyme disease, and orthomolecular psychiatry. But, in spite of some definite benefits of these treatments, he still presented with a long list of debilitating complaints, as indicated above, and a history of being disabled for years.
Treatment course:
The management was definitely complicated by the fact that, at this stage, besides suffering from severe depression and cognitive impairment, he also assumed an attitude of total indifference to the treatment and the guidelines offered, for the reason of being through the proverbial mill while not having gotten that far ahead.
Yet, in spite of his poor compliance with the diet and other lifestyle modifications, and his erratic visits, he, right from the outset and several months into the treatment, has made gigantic progress.
At this time, while the treatment is still in progress, bioresonance testing does not pick up presence of Lyme (which will be confirmed by a blood test, too), and all of his ailments have been reduced down to only mild depression and sub-optimal energy level, at times.
All of the other problems have vanished. Certainly, given better compliance and based on the experience of other similar patients, he would have progressed even further by now.
Case #2 ********* History:
A young woman in her early twenties, her problem list encompassed three full pages with the number of symptoms and problems totaling over 100, the proverbial head-to-toe medical presentation.
Some of these have begun in childhood, and the rest have joined in years later.
The main culprits thought to be heavy metals and mercury toxicity as well as Epstein-Barr Virus (EBV) infection. She had been treated by conventional and alternative physicians with negligible, if any, improvement.
Treatment course: ******************
Bioresonance Testing (BRT) revealed presence of mercury in multiple organs, residues of antibiotics, and presence of candidiasis, streptococcal infection, and EBV, parasitosis, and to everyone's surprise, Lyme infection in the brain and the rest of the body.
The Lyme was the least expected finding since she came from a West Coast state, which is not known for its prevalence of Lyme disease. Right from the start, following only a few treatments, she made tremendous progress, which continues with barely any symptoms/problems remaining.
Case #3 ******* History:
This patient was a woman in her thirties, who deserves her medical ordeal to be presented in book format.
This case also serves a good illustration for those Allopathic "revolutionaries" in the treatment of Lyme disease who advocate a prolonged antibiotic administration, up to nine-month regimens at a time, as a solution to the problem.
For their references, this woman was on [/B] .
The regimen consisted of four antibiotics, which were supposed to contain Lyme and her other chronic infections: Bartonella, and constant sinus and urinary tract infections.
Also, she was receiving other drugs (11 total) for years to contain her chronic Babesiosis, chronic herpes infection, chronic candidiasis, peptic ulcer, and endless other ailments.
In addition, she was on intravenous mineral and fluid infusions on a daily basis for severe fluid/mineral imbalance and dehydration, while at the same time, the rest of her bodily tissues were chronically edematous.
She has suffered from a myriad of symptoms and was practically bedridden for many years with her quality of life being reduced to a miserable level.
She was seen over the years by several prominent Lyme/tick-borne disease conventional specialists, where her clinical course, in spite of the multiple drug regimen, was so poor, that she was even advised to seek alternative practitioners. Unfortunately, the latter either did not make a difference or changed things for the worse.
Treatment course:
The initial Bioresonance Testing (BRT) course indicated an even greater number of chronic bacterial and viral infections in her body.
Most importantly, it revealed the background state, one of mercury toxicity (thanks to her mercury fillings), including thimerosal (apparently received with a "preventative" flu shot years ago which, incidentally, made her deadly ill), and massive generalized candidiasis present in every tissue in her body.
Ironically, during further follow-up the test indicated persistent Bartonelliosis (cat scratch fever) due to one off her cats being the carrier.
Later on, a blood test confirmed that the suspect cat was indeed the villain. Needless to say, the combined iatrogenic damage in this case was of such a monstrous magnitude that it would take years to mitigate it completely.
However, within only the first two months of the treatment, she was able to discontinue all the drugs and intravenous infusions, keeping in mind that any attempts of diminishing her drug intake in the past would lead immediately to painful aggravation of all of her chronic infections and other ailments as well.
Today, nine months into the treatment, she reports having more energy, stamina, positive outlook, and better quality of life on the whole than she has known for many years.
Conclusion ++++++++++++
I cannot emphasize strongly enough that one is to never begin a treatment of chronic infection with treating the infection itself, unless one is absolutely determined to fail. Even if in the presence of acute infection, including Lyme, after addressing it first - without the use of antibiotics - one must immediately address an underlying state. Otherwise, a recurrence and potential tendency to become chronic will become a reality.
The author has shared this very successful system - and in a far greater clinical and scientific detail - with the number of renowned Lyme specialists, who themselves admitted to their prevailing failures.
[B]The correspondence has also carried a proposal for a formal clinical trial. To my dismay, and more importantly to the plight of the many unnecessary sufferers of Lyme disease, the proposal has been ignored.
Savely Yurkovsky, MD, is internationally known as an author and teacher with an extensive background in the thorough study of scientific principles behind the numerous alternative and conventional approaches.
Having realized that the primary source of health and disease, according to physics, stems from the corresponding cellular energy fields, he adopted a revolutionary new medical model, one that interfaces the theories of biology and physics established by his mentor, Professor Emeritus William A. Tiller, PhD of Stanford University.
Having evolved a unique bio-energetic medical system that integrates a great deal of pertinent but, until now, underused knowledge from medical and non-medical sciences, Dr. Yurkovsky's system has been able to transform the often vague nature of medical specialties from "hit and miss" paradigms into a far more effective, exact and predictable science.
Dr. Yurkovsky has founded a teaching organization, SYY Integrated Health Systems, Ltd., which is dedicated to sharing his medical system under the concept of FCT - Field Control Therapy� or Guided Digital Medicine�.
Since 1999, he has taught this curriculum to medical doctors and licensed health care professionals with special emphasis on energy-based diagnostic and therapeutic modalities aimed particularly at toxicological, biological, or nuclear agents.
These, as a rule, elude conventional and most of the alternative diagnostic methods, yet represent the primary source of all chronic diseases.
His book, Biological, Chemical, and Nuclear Warfare - Protecting Yourself and Your Loved Ones: The Power of Digital Medicine, is an excellent illustration of both the scientific basis and effective practical means to combat the ravages of acute and chronic diseases in our toxic world.
His system is the only alternative medical modality that has drawn attention from one of the departments of the Homeland Security Office.
This year, along with several other doctors from premier medical schools in the US, he has been nominated for the prestigious Bravewell Leadership Award for "significant contributions to the field of medicine" and "compelling vision for the future of medicine."
Dr. Yurkovsky offers training to capable health care professionals. For enrollment, contact:
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Anneke,
LGS is Leaky Gut Syndrome. It is a condition where the lining of the intestines becomes damaged and things in the gut that were never meant to enter into the body escape through the damaged wall. Things such as partially digested food, parasites, bacteria, fungi. Eventually, these foreigners cause chronic illness.
The #1 cause of LGS is abx. #2 Stress #3 Bad Diet. I had an abundance of all 3.
When arthritis struck suddenly, two doctors diagnosed me with chronic Lyme. Their treatments did resolve some of my symptoms such as mental confusion, migraines. But the inflamation in my body increased until I looked like the Michelin Man and I could not stand more than 5 mins, nor could I use my hands for things like opening doors, jars, brushing my hair, teeth, zipping up my pants. I became housebound and very dependent upon others for the most simple things. One doctor was using homeopathics, the other flagyl and ketek.
I couldn't dress myself due to shoulder pain. Many days my jaw was so out of line I couldn't eat.
When I was finally diagnosed with Rheumatoid Arthritis, I did a search on the net and learned about LGS and its connection to RA. One particle doctor espouses a vegan diet to heal the gut. He said "If this is your problem, try the diet and you will see improvement within 2 weeks". I tried the diet and the improvement was enormous! I would estimate 50% improvement just from changing my diet.
I then went in search of , not a lyme doctor, but a doctor who believes in LGS and is trained in nutrition. I found a wonderful doctor and my healing leaped forward under his care.
He isn't focused on Lyme. I don't think this fact is important because I do not have Lyme. I think I do have Lyme. I think the fact his is NOT focused on lyme has helped me by healing the other issues going on in my body. I have test proving I have had Lyme (I was treated antibiotically for 6 mths for Lyme in 1995) and I believe the abx did exactly what Dr. Yurkovsky claims in Betty's post. I believe the abx drove the Lyme into a dormant state and at that time my immune system was sufficient to keep me going.
However, no one addressed the damage the abx most certainly had on my gut. I guess the doctor did not know about LGS. So over the next 10 yrs, things were leaking from my gut and my gut was suffering more and more damage until my immune system finally wiped out.
All my efforts this time around are to boost my immune system and eliminate other issues in my body such as LGS and heavy metals (I'm so toxic I don't know how I walk and talk).
We all know that once these issues are dealt with, Lyme may again emerge. If it does, my plan is to try the Buhner protocol first. Abx if that fails. And if abx, this time I will protect my gut.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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