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Posted by yourtroubl (Member # 11087) on :
 
I am so tired all of the time.....Plus when will the pain in my joints go away. I have been treating just 3 weeks.
 
Posted by MariaA (Member # 9128) on :
 
which antibiotics?

You may easily be having a herxheimer reaction- where your symptoms get worse temporarily, or you feel tired. This is very common and very unpleasant.

Some antibiotics such as Azithromycin/Zithromax do have tiredness as a side effect even if a 'herx' isn't the issue.
 
Posted by yourtroubl (Member # 11087) on :
 
I am taking ceftin and omniceft
 
Posted by Dawn in VA (Member # 9693) on :
 
Hiya. I noticed that you mentioned you're on a ceftin and omnicef combo. Keep in mind that they're both in the same class of abx, cephlasporins. I dunno if that means that they won't still act synergystically (sp?), but you may want to double-check to be sure. (Also make sure that they both don't use the same clearance pathway. I can't remember if they do or not. I'm sure you're doing so already, but don't forget to get regular kidney and liver function tests done, too.)

Be well. [Smile]
 
Posted by Neil M Martin (Member # 2357) on :
 
Overall, abx give me energy.

Herxes come and go, but off antibiotics I crash.
 
Posted by Penn92 (Member # 9207) on :
 
I'm back on zith and I'm having my usual effects - tired late afternoon and then wired after 10PM. Yes, abx can make you tired and/or just the toxins your body is cleaning up can make you tired also.

Do what you can and try to roll with what comes your way without condemning yourself for not getting much done like you did pre-diagnosis. Someone on here has said something that has helped me in those frustrating days - "The only way out is through it." Put one foot in front of the other and persevere. It will get better.
[group hug]
 
Posted by mississippilyme (Member # 11205) on :
 
quote:
Originally posted by yourtroubl:
I am so tired all of the time.....Plus when will the pain in my joints go away. I have been treating just 3 weeks.

Fatigue is one of the main complaints we have.

It is caused by the meds. as well as the disease.

Consider focusing on excitatory neurotransmitters such as norepinephrine, epinephrine (adrenaline), acetylcholine, glutamate and nitric oxide.

My LLMD says this: Try to raise the acetylcholine ( a neurotransmitter) levels using Phos Chol (phosphatidylcholine), which contains phosphorus and the choline which is a B vitamin. This may help fatigue.

Glutamate is an amino acid that is excitatory to your nerves. It may help with fatigue.

Tyrosine, Phos Chol and or glutamate may in combination help your fatigue tremendously. And the supplements "ATP" and "Taurox" may help your fatigue.

There is a company that uses about a dozen amino acids. Depending on your test results they compound a "custom" amino acid formula. This formula focuses on the nine essential amino acids.
.

This custom formula of amino acids has an 80% response rate for fatigue. If you are tired of being tired consider having this company do their amino panel for you. It cost about 225.00, you have to be fasting and not on Friday, it gives you 40 test results. My LLMD gave me this information, so I guess they all know about it. PM me if you need to.

Patient who can't afford this may want to try amino acid powder that body builders buy at health stores. Start with one tablespoon daily and gradually increase dose to about 10 grams per day. Amino acid is already "digested" so all you have to do is absorb.

I am sorry about the first version, I would not try to mislead anyone who is fighting this battle.

I hope this helps. Sorry you are sick.

Sherry
[Smile]

[ 28. March 2007, 09:41 AM: Message edited by: mississippilyme ]
 
Posted by Lymetoo (Member # 743) on :
 
Penn is right. The only way out is through. I borrowed that expression from someone who "came before me" on this site!

Herxing is never fun, but it is just part of the healing process. Take the tips from mississippilyme and get plenty of rest.

When will the pain and fatigue end? ..When most of the spirochetes are killed off. That could be a few months, or much longer.

 -
 
Posted by Penn92 (Member # 9207) on :
 
quote:
Originally posted by mississippilyme:
[QUOTE]
There is a company that makes a custom amino acid blend with about 12 amino acids. It helps fatigue in about 80% of patients.

Anyone know where I could find this? Which company is it?

Thanks!
 
Posted by mississippilyme (Member # 11205) on :
 
quote:
Originally posted by mississippilyme:
There is a company that makes a custom amino acid blend with about 12 amino acids. It helps fatigue in about 80% of patients.

I am so sorry to have mislead you guys. I was mislead myself as I had not read the entire information.

This is what it said; There are at least three companies that are using amino acids to help raise neurotransmitter levels. Our company recommends glutamine to raise GABA levels.GABA is a neurotransmitter that has a calming effect like serotonin. Glutamine is also the energy source for your intestines and immune system. It may be that glutamine is a nice addition to tyrosine and tryptophan.

There is a fourth company that uses about a dozen amino acids. Depending on your test results they compound a "custom" amino acid formula. This formula focuses on the nine essential amino acids.

This custom formula of amino acids has an 80% response rate for fatigue. If you are tired of being tired consider having the fourth company do their amino panel for you. It cost about 225.00, you have to be fasting and not on Friday, it gives you 40 test results.

Again, I apologize for the misleading information. I must read all fine print before trying to tell about it.

You could ask your LLMD about this or PM me for mine.

Wishing you well,

Sherry [Razz]
 
Posted by TheCrimeOfLyme (Member # 4019) on :
 
Lyme, antibiotics, ( the side effects of same), and herxes not to mention a host of other things can make you tired with this disease.

I slept 16 hours a day for two years. Now, I have unrelenting insomnia [Smile]
 


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