This is topic Lupus Symptoms/Lyme ??????? in forum Medical Questions at LymeNet Flash.


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Posted by typhoon_sheri (Member # 10325) on :
 
For many years I have had cold hands and feet.

For the last year after many antibiotics and supplements for Lyme and Babs (FISH test now neg for Babs) I am getting more symptoms realated to Lupus.
Last June I had a test for Lupus , Smooth Muscle Anti, I think, and it was neg. But this past winter I have had purple toes, rash on face, (once in a while) sore joints, hard to breath at times.
All my adult life I have had neg and pos ANA's.

After a year of treatment, can these symptoms pop up and get worse ????

I've stopped all antibiotics for about 1 month and have since been on Samento and Enzymes,Probiotics, and Diflucan and Nystanin.
The oral antibiotics and 6 weeks of IV Roceph took a huge toll on the gut. After 1 year of Doxy, Omnicef, Zithromax, Amox, Mepron my system has had it. During most of that year, I did not do my research and was not detoxing.

Has anyone else had Lupus symptoms after antibiotic therapy ? Please convince me this is Lyme related.
Hope it is just part of the Lyme thing....can't imagine dealing with something else.
 
Posted by CaliforniaLyme (Member # 7136) on :
 
When I was 21-

They kept telling me for a whole year they thought I had lupus when I was 21 and kept checking my ANA but thank god it was negative. That "lupus" went away with longterm abx for "walking pnemonia" (given for whole year!).


8 years later when clearing brush at my new house in Aptos, Nisene Mark State Park, CA, I got bit and got a rash at bite site and came down NOT just with Lyme, Babs, Ehrlichiosis but with TERTIARY stage Lyme. So I believe the "lupus" was aLyme eruption as at the time I was spending a great deal of time drawing in the oak woodland, would spent afternoons reading, drawing, painting and studying IN THE GRASS (agh!) up at UCSC...

ANYWAYZ- with my tertiary stage Lyme I recognized MANY symptoms as ones I had had before-

MALAR RASH butterfly rash- spoltchy all over body rash sensitive to heat/sunlight
personally I think lupus is a Babs/Lyme crossover manifestation-

Make sure you are treated for Babs!!!
Convincingly*)@!
Best wishes,
Sarah
 
Posted by typhoon_sheri (Member # 10325) on :
 
Thanks Sarah.......
I was treated for Babs for 5 months and had a FISH test which is suppose to be the end all of all Babs testing and it was negative.
I've also been reading yesterday and today that hypercoagulation can cause a lot of these symptoms.... Who knows ?????

I just get discouraged because after all the treatment I have had in one year, I would think some of these things would get better and not worse.........

Thanks and hope you are doing well......
Take good care.........
 
Posted by CaliforniaLyme (Member # 7136) on :
 
I was on Babs tx for 2 years!!! Mepron & Zith & Artemisia for the last year-!!!!!!!!!!!!!!!!
It can take a while-
I hope your symptoms go away!!!
Best wishes,
Sarah
 


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