On 2nd week of Roceph and showing minimal progress knocking out this prostatitis. Still having pains in unmentionable areas. Anyone else have this problem when their lyme kicks in?
Posted by johnlyme1 (Member # 7343) on :
This issue is way to familiar to me.
I also use someone who is very very good at computerized energenic testing, without his help we would not have been able to figure out how to get a number of the infections out of the prostate.
For me the biggest one was ehrlichia, it took the longest to clear out. We had to use ABX that are know to penitrate the prostate. Doxy, omnicef worked the best. Also a combination of zith and omnicef worked very well. 250mg zith with 2 300mg to 1 300mg omnicef a day.
If you have continous pain it is most likey being done by a co-infection. I did have lyme in there as well but it only flaired once a month. The prostate becomes a reservoir for all the drainage of these infections.
For me I knew if the ABX was working beacuase I would get relief very quickly, within a couple of days, but I had to keep at it for many months to keep the infections out.
Posted by Areneli (Member # 6740) on :
Check Bartonella!!!
Posted by Foggy (Member # 1584) on :
Abx actually only helped once or twice. Unfortunately a prostate "massage" done by a urologist was also helpful it clearing out the inflamation.
Posted by JimBoB (Member # 8454) on :
I had prostatitis for many years when I was younger, and BEFORE Lyme. NONE of the abx would get rid of it then.
Getting remarried and good deep sex, got rid of it.
Now this past year, I got prostatitis again. I had forgot how painful it is.
I have been on herbs for over 16 months now and continued them, but they did not help the prostatitis. So I added in a low dose of amoxicillin for two weeks or so.
It got rid of it. And I have been fine since. I might note also, that I was getting a lot of pain when urinating for several months, and I attribute that to strong Vitamine B complex pills.
I totally quit them just before I went on the amoxicillin. IF you are taking vitamine B, I think I would stop that and see HOW that goes with the abx.
IT is really difficult to get rid of to be sure.
Jim Posted by jarjar (Member # 8847) on :
Combining Ambrotose with the Marshall Protocol was the ticket for me. There is nothing worse then to have to deal with an inflamed prostate.
Looking back I think the prostate gland was where lyme symptoms very first started surfacing with me. Next it was ringing in the ears then a few years later I was finally slammed down.
Posted by Al (Member # 9420) on :
Anyone; What was your PSA with prostatitis ?
It's my understanding that your PSA can skyrocket with Prostatitis. Any info on this ??
Posted by bcox (Member # 2604) on :
My PSa is pretty much normal during these flair ups. The first couple of days the rocephin worked well, then I noticed the symptoms coming right back and they seem to be at a all time pain level now with fever kinda feeling all over.
Posted by jarjar (Member # 8847) on :
PSA level is always low normal.
Posted by ibrakeforticks (Member # 6785) on :
Don't know if this applies to "Lyme prostatitis," but regarding prostatitis...
Check out Dr. Feliciano in Manila, Phillipines, for sensible prostatitis treatment. You may even have to go there.
He uses prostate massage to loosen up the infections (which he syas have protected themselves in the prostate with biofilms), identifies the pathogens, and tests their sensitivities to different antibiotics. Does regular massage, treats with appropiate antibiotics, and apparently cures many patients.
This is evidently too radical and beyond the capabilities of American doctors.
I don't know how current it is, but I came across this site that says his methods are being used in Tucson, Arizona:
It doesn't seem like it would be too hard for Igenex to test prostatic secretions, or semen, for Lyme and co-infections, does it...
Posted by David95928 (Member # 3521) on :
It seems to me that almost every man who posts here, young or old or in-between, has had prostatitis and low testostrone. Quite a number of the adolescent males who get written about by parents have also had low testosterone. It's got to be Lyme related.
It's my impression that Cipro or Levaquin (be careful with those tendons) are generally indicated for prostatitis.
Posted by memphisbluesman (Member # 11570) on :
I had prostatitis 3 years prior to getting "full blown" lyme symptoms. I have had chronic prostatitis for 9 years and I am only 26 years old. I am very well versed in Prostatitis and I can tell you that Dr. Feliciano's method has fallen out of favor over the last several years due to lack of promising results in chronic cases. Steady research over the last ten years has consistently shown that bacteria levels in symptomatic men is not higher then non-symptomatic men.
The most promising treatment for Prostatitis currently being used is the Stanford Protocol. THere is a great book about it called "A Headache in the Pelvis". It theorizes that it is chronic muscle tension and "trigger points" in the pelvic floor muscles, sphincter muscles, and groin muscles that refer pain to the prostate. In other words, it is myofascial in nature.
Now I am not discounting that Lyme plays a factor in prostatitis just that its role is in damaging and attacking these surrounding muscle tisses which put stess on the prostate itself.
Posted by JimBoB (Member # 8454) on :
quote:Originally posted by David95928: It seems to me that almost every man who posts here, young or old or in-between, has had prostatitis and low testostrone. Quite a number of the adolescent males who get written about by parents have also had low testosterone. It's got to be Lyme related.
It's my impression that Cipro or Levaquin (be careful with those tendons) are generally indicated for prostatitis.
STAY away from Cipro, IF you still have your colon. I lost mine. It is a killer of colons.
Jim Posted by David95928 (Member # 3521) on :
What are the basics of the Stanford Protocol?
Posted by ibrakeforticks (Member # 6785) on :
quote:Originally posted by memphisbluesman: The most promising treatment for Prostatitis currently being used is the Stanford Protocol.
No offense, but who says that? Thanks for bringing up the Stanford Protocol, but from a little googling, it seems to be a psychologizing approach that lumps all pelvic pain (prostatitis, chronic pelvic pain syndrome, etc.) together, and totally ignores the possibility that infectious pathogens may be part of the problem.
"Here is a summary excerpt from A Headache In The Pelvis:
'We have identified a group of chronic pelvic pain syndromes caused by overuse of the human instinct to protect the genitals, rectum and contents of the pelvis from injury or pain by contracting the pelvic muscles. This tendency becomes exaggerated in predisposed individuals and over time results in pelvic pain and dysfunction. The state of chronic constriction creates pain-referring trigger points, reduced blood flow, and an inhospitable environment for the nerves, blood vessels and structures throughout the pelvic basin. This results in a cycle of pain, anxiety and tension which has previously been unrecognized and untreated. Understanding this pain, anxiety and tension cycle has allowed us to create an effective treatment. Our program breaks the cycle by rehabilitating the shortened pelvic muscles and connective tissue supporting the pelvic organs while simultaneously using a specific methodology to modify the tendency to tighten the muscles of the pelvic floor when under stress.'"
No mention of infection. How do they measure overuse of the "human instinct to protect the genitals?" "What does "predisposed individuals" mean? Are they talking genetic predispositions that affect cellular function, or psychological background factors like childhood trauma? What's their evidence?
The first author listed, David Wise, is a psychologist, not a urologist and not an MD. Maybe this is why he doesn't deal with infection--he can't order diagnostic tests and can't prescribe drugs.
There is more discussion of this protocol (one can actually attend clinics at Stanford) at www.pelvicpainforwomen.com
(No matter that women don't have prostates; all our pelvic pain syndromes are the same, and due to the same psychological factors...)
It's kind of like the Lyme treatment dilemma: do you think your problems are due to an infectious disease (find an LLMD), or psychological problems like anxiety (find a shrink). It's up to you the patient, which way you're going to go. Good luck...
(The person who started this topic said rocephin was benefitting his prostatitis. If an antibiotic shows benefit, then there must have been a bacterial problem. However, we could psychologize the problem and say it really is myofascial, and the progress is due to a placebo effect. This would insult his intelligence, IMO.)
Posted by David95928 (Member # 3521) on :
Levaquin has worked for me on the two occasions I have had it. The PA I usually go see for routine stuff says that most other antibiotics are less effective.
Posted by Areneli (Member # 6740) on :
Right, Levaquin. B'se prostatitis is caused mainly by Bart and NOT LYME.
Posted by bcox (Member # 2604) on :
Very interesting as to the discussions on this. Unfortunatly there is a low grade fever involved so my Dr. has started the leviquin and stopped the roceph for now.(I do believe that I am getting to old for soaking baths though) Much thanks to all who participate on this site.
Posted by David95928 (Member # 3521) on :
Levaquine seems to me to be a good choice. BTW, I used to live in Tampa.
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