LLMD called today for two month followup after our last visit.
Things he mentioned:
Treatment with hydrocloric acid has been promising. Will send more info on that. I'm still trying to figure out if that is prescription or what that is?
Hubby's hormone tests are back, LLMD will send an analysis with recommended prescriptions. Said his DHEA and cortisol were both low. We didn't go through everything over the phone, but he said levels were low in most cases.
Has treating the low levels on specific hormones helped anyone here? It sounds to me like a long time lymie like my husband ends up with a totally "out of whack" immune system?
LLMD did NOT say that treating hormone problems would help hubby's cognitive thinking issues. He still thinks the Rifampin will best treat that.
He also mentioned the new findings about Vitamin D. Wants hubby to take Vitamin D3 5000 and get a suntan. Says the lack of Vitamin D is chronic these days.
Anyway, that's the update for now. Thoughts from anyone would be much appreciated.
Take care all.
Posted by Tickn (Member # 11590) on :
Hello Boomerang, I'm a newby here,and after a LONG 14yrs of being miserable I have finally been dx with lyme by 3 different docs.
It also appears, like your husband, the majority of my hormones and immune system are totally out of whack. My llmd and I are currently working to bring everything back into sync.
I have been informed by all three docs that unless significant advances are made in the treatment, I will be fighting this on and off the rest of my life. The knowledge I have aquired from this site and others seems to indicate that the more stress we can place on the lyme bacteria ( with antibiotics, adjusting our immune system, hormones, exersise, and as positive attitude as we can muster) we may force them to become dormant. (just my unknowing opinion)
In my case, during the summer months ( May- Nov) I function somewhat normally. It seems my body is very sensitive to the sunlight and heat. The more time I spend in the sun and heat the better I feel. However, once it begins to cool down my symptoms increase dramatically!!! During the winter I can barely work, but to help put food on the table I began landscaping during the summer months and I can actually work both jobs!!
Of course all my docs frown upon my work ethic, but until they begin paying my bills I'll do what needs to be accomplished as long as I can. Fortunatly I have a wonderful wife who tends to monitor me closly, and when she feels I am pushing too hard she will accompany me to a job and help out. I wish you and your husband the best, It sounds like you are in good hands.
We fight for our country, but die for our brothers. Semper Fi
Posted by Lymetoo (Member # 743) on :
Hormone treatment helped me a lot!!
Welcome Tickn!!! Posted by dmc (Member # 5102) on :
I don't understand do you guys see a MD or a ND?
Can get hydocloric acid online w/o prescrition.
Posted by seibertneurolyme (Member # 6416) on :
dmc -- Dr C is an M.D. -- He is in the process of changing his certification from family practice to environmental medicine. Primarily treats Lyme patients. A former Air Force physician, he first went into practice with Dr M who "discovered" Masters Disease (named for the doc) which is now called STARI.
Boomerang -- See the thread below regarding the Hydrochloric acid protocol -- if you do this start slow and don't be in a hurry to get to the suggested dose. Hubby had worked his way up to 22 HCL capsules daily and had to stop as it seemed to cause his gastritis to act up. At lower doses it seemed to help G.I. function.
Bea Seibert
Posted by Boomerang (Member # 7979) on :
Thanks guys.........and thanks for the link Bea. Will check it out right now.
That's really interesting about your response to the sun, tickn.
Best wishes to all.
Posted by jasonsmith (Member # 10914) on :
Boomerang, your PM is full.
Is this LLMD in TN?
Posted by Boomerang (Member # 7979) on :
Thanks Jason....cleaned up my messages.
Posted by missextreme (Member # 3610) on :
Dr. C. is my doctor too and we are going to be driving down soon for a checkup.
He sent us a handout on the hydrocholoric acid and we were very curious about it. When you talked to him, he was positive about it? I have a lot of stomach problems, so I am thinking this maybe could help it. What else did he tell you about the protocol?
Thanks!
Charis
Posted by Boomerang (Member # 7979) on :
He said that he was not convinced yet, but that he had been surprised in the past. He also said that since it was "unlikely to be stated at a medical conference, unless patients had responded to this treatment."
I notice when reading the handout, that Betaine HCL is from beets. I looked up recipes for beets with cider vinegar tonight. Would that make any sense to try that?
Where's Gigi when I need her? lol.
Posted by Ruth Ruth (Member # 11059) on :
If something is "from beets" what does that really mean anyway? So many amazing things done in labs...
However, I do know that the beet kvass (fermented beet tea) that I make at home is really good for overall health.
quote:This drink is valuable for its medicinal qualities and as a digestive aid. Beets are loaded with nutrients. One glass morning and night is an excelent blood tonic, promotes regularity, aids digestion, alkalizes the blood, cleanses the liver and is a good treatment for kidney stones and other ailments.
Here is the recipe* I use. *recipe note: I use bernard jensen's powdered whey.
Also, you might want to check out the small section on Beet Kvass in this weston price article.
Posted by Boomerang (Member # 7979) on :
