heya everyone... I've been on and off of lymenet, got bit when I
was 16 found out I had it when I was 18 years old.. I am happy to be a success story. I am 21 years old now and I feel as though I never had lyme disease!
I was on IV rocephin for 90 days... less then 6 months later I was on a combo of IV Rocephin and Vanco for 56 days... Some of you may remember me.. Well I've been off treatment for a year now without complications
Well actually.. the only complication I have right now is my teeth... Before I had active lyme disease I only had 1 filling in my whole mouth.. my teeth were really good.. that all changed not too long after the lyme became active. I now have 13 cavities, I've had one tooth pulled, another that I had a root canal on that needs to be pulled..
To my suprise yesterday... I was eating soup and my molar broke.. so now i have 12 1/2 cavities and I am probably going to get this tooth pulled asap. A huge chunk came off of it.
Since I've had lyme my teeth have gone downhill big time! It makes me very ****ed off because I have beautiful teeth. I wont say the exact words I'd like to say about it lol.
Another thing is... a cavity will turn into a hot tooth/root canal within a day! its crazy!
Has anyone else had problems with their teeth since being diagnosed with lyme disease? I don't think I am alone on this topic... I'd be happy to get some input and possibly your experiences too. I don't think theres anyway to prevent my teeth from falling apart, if there actually is.. can someone help me with that..lol
thanks Korinne
Posted by kelmo (Member # 8797) on :
Yes.
Good to hear your success story. My daughter is 19 and has been on abx for the past year. She is in the midst of just the horribleness of the treatment. So, there doesn't seem to be hope.
Her teeth have suffered. Do a search on oil pulling. Some people have had great dental results by swishing with certain oils
I've just started on that with my daughter, so can't comment on results.
Kelly
Posted by Lymetoo (Member # 743) on :
I'm pretty sure that Lyme disease affects the gums and teeth.
But didn't you say once that you also smoke?? IF so, then that's a double whammy.
Posted by lymemomtooo (Member # 5396) on :
I have been talking to Dentist, orthodonitist and peridontist about the same topic just this week. Our daughter is looking at gum grafts, bone grafts etc, in hope of saving 2 teeth.
It was determined that my daughter has bone loss between two front bottom teeth.
She has had osteoporosis and was taking many mineral supplements.
All Drs say it is not Lyme related. I am sure it is a player. Unfortunately not sure how it plays.
But here is one of the ways...She has some diminished reasoning and was very oppositional. We are not in love with piercings and she knows it upsets us..So they have been done to the eyebrow, tongue and the area below the lower lip.
Bingo...this one irritated the gum and it became inflamed, infected and damage followed...So in a strange way, yes Lyme is a player.
Now I also wonder how much spirocetes may have then invaded the site and made things worse. This part the Drs are not accepting..
But a bone is a bone and if it attacks bone, it can damage teeth..
I am not a Dr so consider this only info from a mom in the trenches. lymemomtooo
Posted by stymielymie (Member # 10044) on :
Lots of cavities come from several things 1) increase in sugar intake. this includes keeping sugar in mouth for lon period of time, ie sipping can of soda for hours,hard candies and gum.
2]xerostomia. dry mouth. this can be cuase by several factors to do with lyme. a] dry mouth eyes and sweat can be a secondary or primary symptom of lyme. if secondary it could be Sjorgren's syndrome or Lupus both can come secondary from lyme. b]medications. most antidepressants, antihistamines, many abx, heart meds, hbp meds, even yeast can cause dry mouth. c] radiation or chemotherapy, especially around head and neck area causes dry mouth and also osteoradionecrosis. radition kills the salivary glands and can CAUSE SEVERE DECAY VERY RAPIDLY.
3]trigeminal neuralgia. this can cause pain in teeth and gums to the point where it sometimes becomes very hard to brush teeth correctly. severe cold sensitivity is the major symptom along with pain in 1 or many teeth.
with severe decay, the dentist must take into account any or all of these factors in making a determination of keeping, filling or removing teeth. remember, dentures without saliva do not work. they will cause pain and will not stay in place..
keep as many teeth as possible and get a titanium partial denture to replace missing teeth.
docdave Posted by stymielymie (Member # 10044) on :
drill up
Posted by gambler (Member # 8441) on :
Hey StymieLymie,
I am having problems with my teeth, but I don't think it is Lyme 'cause I have had Lyme longer than the problems. I think it is the abx, esp. Mepron.
I now have spaces in-between my teeth that weren't there before, do you think Mepron could be eroding my teeth? The dentist says it isn't possible and thinks they have just moved, but I wear retainers-which I believe are used to retain. I don't know what is going on with my teeth, but it really bums me out.
I don't know enough about enamel except that it is supposed to be very hard, is it possible that the abx or the flora change from the abx or an acidity change from the abx are weakening or making our enamel more porous?
If someone gets very good results from teeth whitening, does that suggest that they have porous teeth?
I'm just confused, and none of the dentists I have spoken to actually care.
But from my experience, Lyme did not change my teeth, abx treatment did.
gambler
Posted by Lymeblue (Member # 6897) on :
Love steamylymie Docdave answers......
I have had lately gums and now TEETH problems too....
It was a matter of months!!
First my gums..I was even diagnosed with trench mouth. Go figure!!
Now I have 3 cavities but...strange ones since they are located on the external side of the molars??? I saw them on naked eye.
I know I had at some point during my lyme dry mouth because of chronic dehydration....but other than that it was a surprise.
And yes the space between my teeth were growing and my teeth were looking "bigger"...I was later told it is a sign of gum disease, the gum was shinking on parts of my mouth.....
My dentist told me a week a go that there are periods when this happens and it stops...(going all your mouth at once bad)
I even suppose to get a crown...he is afraid to fix one of those cavities and later on fracture my teeth...
Doc dave any other "suggestion"? BTW my lyme seems to be in remisiion..
Posted by koryn (Member # 10960) on :
Know whats weird... I had trench mouth before being diagnosed with lyme disease... hmmmmm. Kinda makes me wonder..
From the trench mouth I have bone loss and also gum loss, nothing major though.
And as I said up there... I managed to get 13 cavities within a year.. how? I don't know but I really think it has to do with lyme disease and the bacteria attacking your bone ex:teeth/gums...
Someone I knew in real life from getting treatments at the same facility her cavities would turn into a hot tooth/root canal in the blink of an eye.. she was around my age.. so i find it pretty suspicious cause i never had bad teeth before.. and i really dont think they'd change out of nowhere just within a year time..being that i never really had any cavities before that!
Posted by stymielymie (Member # 10044) on :
trench mouth is a overgrowth of bacteria in the mouth due to stress. fusiform spirocetes are some of the bacteria, all the bacteria that cause ANUG are norma flora for the mouth.
it may be lyme related but don't think so. it could be caused by the stress that lyme\ puts on the body.
the main time i saw ANUG, trench mouth is during exam time in college kids.this is very common. little sleep, little food and lots of stress.
teeth will move when you get older even with a retainer. the retainer can be tightened to close the spaces teeth enter the mouth at the same size they leave the mouth. once erupted they do not grow in size. they may look bigger because of gum shrinking and showing more root surface.
again lyme in itself may not cause many dental problems except for the dry mouth.
decay on the inside of the molars, palatal, can be from dry mouth ,lots of vomitting, too many acidic foods espcially lemons. no this and gum line cavites are usually due to one of these factors.
sensitive area at gum line can be covered now with a clear coating that protects from cold sensitivity. sensodyne also works.
yes everybodies enamel is different. some have ultastrong enamel, some have weak enamel and get cavities. this is genetic and you have no control over this. also many gum disease problems are also genetic in nature.
spacing in teeth can also be caused from shifting due to extraction or even grinding of teeth. lateral grinding can also cause dished out areas at the gum line that can evenually and usually do get sensitive.
artificial saliva and xylitol gum helps stimulate the salivary glands and produce more saliva. different glands in the mouth produce different kinds of saliva. some thin some very thick. both are needed to protect gums and teeth
docdave Posted by gambler (Member # 8441) on :
thanks Doc Dave
I appreciate the info. I have a pretty healthy mouth, besides the brown teeth, and I totally grind. Maybe my grinding is causing the teeth to shift and make me look like a jack o' lantern. Or maybe my jaw is growing.
gambler
Posted by DolphinLady (Member # 6275) on :
DocDave,
I've heard that gums don't get good blood circulation relatively speaking. If this is true, can it contribute to this type of problem?
I know lots of lyme folks that have problems with teeth, gums, roof of mouth, jawbone etc. Some have taken abx some have not.
The pattern I see is that stress makes problem worse. In the stress category I include sugary diet, smoking, overexercising.
I'm hearing some dentist are injecting ozone into the gum after certain procedures. Can this help?
Posted by stymielymie (Member # 10044) on :
dolphin: gums get very good blood circulation and have massive amounts of capillaries and veins
this is the reason you can graft gum tissue from one area to another.
many disease can be dx from gum tissue. leukemmia, anemia,diabetes, and some diseases i don't recall.
stress is a major factor to the onset of any disease nad it prominant in 7th {trigeminal} neurapathy, TMJ, Bell's Palsy{5th cranial} tinnitus and many other facial and head problems.
the 5th and 7th cranial nerve go very close to the ear canal ,in the skull. neurapathy to either nerve can caiuse neuropathy in the other, with ear problems masking the true problem.
smoking is a major agitant for the gum tissues themselves and can alone cause gum problems. nicotine also tends to dry the mouth.
i have not been a dentist four 7 years. have not heard of ozone , but sounds like it would have a major impact on many dental infection. most dental infections are caused by anaerobic bacteria. oxygen kills these bacteria. they are extremely difficult to kill with abx and this is why amny root canals fail. infections at the tip of a tooth's root is usually anaerobic and clydamycin is about the only abx that penetrates in to bone. this does make plausible sense that ozone is being used, but oxygen is all that it really needed. ozone, to my old knowledge is O3 not o2. it is produces as a by product of electricity in air. it is produced and you can smell it after and sometimes before heavy lightening storm.
docdave
Posted by kelmo (Member # 8797) on :
Okay, here's a wild card...
Could this all be part of the vitamin D deficiency?
Posted by mtnwoman (Member # 8385) on :
I am CDC pos BB. I think I have had it for 10 years. Only treated x 1.3 yrs.
I take care of my teeth, get them cleaned, floss, brush, don't smoke, eat little sugar BUT have lot of teeth and gum problems, esp in the past 5 years.
I have pains in my left ear and left teeth and gums. My gums are receding a lot. I had pains in teeth enough to see an endodontist (root canal doc). He did digital xrays and said, "nope, no rotten tooth". However, another time he pulled an adjancent tooth and the pain continues in the same area x years.
Interestingly, about 6 months before I got my Lyme dx, a EAV/meridian stress tester found lyme in the tooth that hurts.
I suspect lyme does get into the teeth and gums and creates pain/loss/havoc. Would be good to send a pulled tooth to Igenex for PCR testing.
Posted by stymielymie (Member # 10044) on :
same stuff strongeer kills mold and yeart
dcodave
Posted by AZURE WISH (Member # 804) on :
I got sick with lyme in sept of 1987 and have been sick since.
I just got my first cavity and had it filled last week. It was a wisdom tooth ...
maybe thats why I can't remember where I put anything... heh heh
I am 30.
Sometimes over the years I have gotten aching in my teeth but I think it is just nerve stuff... cuz it will hurt for a few days or a week and then be fine
then next time a tooth or teeth hurt it will be in a different section of my mouth and there never was a cavity or any other problem any time I had pain.
Ironically the tooth that had the cavity didnt even hurt at all...
not even when the dentist poked it with that pointy sharp metal tool
anyway what my long rambly disorientated post was trying to say is that I definetely think lyme can effect our teeth and since so much of what lyme can do to us hasnt been studied ..
and unfortunately to some extent even considered I think it is very difficult to pinpoint exactly what tooth problems are coming from lyme...
but this is just the opinion of a fellow lyme patient.
and so glad to hear you are doing well now. Posted by AZURE WISH (Member # 804) on :
mtnwoman -
Is your bite off or do you have tmj...
Your jaw could actually cause ear pain..
Also do you clench or grind your teeth?
Of course other things could cause ear pain to but I just thought I would throw out the idea.
Posted by SForsgren (Member # 7686) on :
In my experience in doing energetic testing with people with Lyme, jaw/tooth issues are not uncommon and are often related to the coinfections such as Bartonella and Babesia.
Posted by mtnwoman (Member # 8385) on :
If lyme is in my teeth, I know from studying about root canals that it may be very difficult to eradicate it considering the miles of microtubules it can hide in.
I have an infrared device from LumenPhoton and will try treating my jaw with it. Supposedly they have success with filling in cavitations.
Teeth and gum infections often involve bone --very difficult infections to totally eradicate. I might have to be happy with just a stalemate.
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