Hello everyone, I am new here and would love any input that can be offered.
Last summer I went to the doctor because I woke up with some numbness in my face, my dr ordered a cat scan because I had told them the only thing I recalled was bumping my head a few days prior.
The test came but normal so they referred me to a neurologist who did eeg, brain scans, mri, etc. Everything was ok so he decided to order blood work which came back positive for lyme.
The positive result came approx. 5 months after my first appt. At that time, the numbness was pretty much the entire right side of my face, my right arm would go numb, both my knees ached all the time, especially right one,
I was tired all the time, irritable, etc. I also felt like I could not remember anything. I have always been a bit of a ditz but I would drive past where I was going and have to do a turn around and sometime pass it again.
Well they put my on a 28 day course of antibiotics. They said that it was too soon to do another lyme test because chances were it would still show positive.
My knee pain went away and the numbness in my arm did also. Would occassionaly have the tingling and numbness in the face but at least it was not a 24/7 thing anymore so I let it go.
Well 2 months ago we started our move from Maryland to Florida. Prior to moving I would notice when I laid in the bed at night I could feel something weird going on in my head, then my head would shake (kind of rock side to side) a little.
Thought it was all in my head though so I never brought it up to anyone. Well during our move my husband asked me why I was shaking my head so much. Apparently it is something that everyone can see.
It went from happening at night to several times a day. I can feel it starting and the more I try to stop it, the more it does it, sometimes just for a few minutes, sometimes up to an hour.
I also noticed I have rib pain a lot on the right side, have a spot on my left should that always feels like it is on fire and being stuck with something but there is nothing there.
I have lost a lot of weight yet my appetite is the same. About 10 pound during the past 5 weeks and I am a small person to start with so it really makes me look sick. I just look like I am aging so much and I do not know what to do.
Are these all typical lyme symptoms or am I just loosing my mind. The head shaking I think is the weirdest feeling and then the tingling in my face starts shortly thereafter.
Would appreicate some help. Is lyme forever?
[ 03. May 2007, 08:39 AM: Message edited by: tammy120771 ]
Posted by Lymetoo (Member # 743) on :
Lyme may be forever, but you stand a great chance of getting rid of the shaking and all other symptoms with PROPER treatment.
You have NOT been properly treated! This a HUGE problem all over the US. Doctors still believe that 4 wks of abx [antibiotics] will cure Lyme.
They are SOOOO wrong. Please find a qualified LLMD near you. I can help you with names for Florida.
There isn't much help down there, but we do have some names.
Welcome - I'm pretty new here too but I know enough to know that Lymetoo knows what she's talking about.
I feel the same way, scared. There are good people on this board with really good advice and they will support you too. They give me hope that someday soon I'm going to feel better.
Best of luck finding an LLMD.
Posted by savebabe (Member # 9847) on :
I agree with the others on this board, you need to continue antibiotic treatment. There are also many co-infections that accompany lyme disease, so make sure you find a llmd in Florida to identify and treat your diseases. Feel Better.
Posted by AZURE WISH (Member # 804) on :
You need a lyme literate dr.
If you don't have one please let lymetoo find you one.
Welcome Posted by Searching4Answers (Member # 11079) on :
These are definitely lyme symptoms, if I have lyme, you do, we have the same symptoms. It is scary! I hope you can find an LLMD and get treatment asap. You can hope to find your health improved and "remission," but most of us dealing with this don't speak in terms of cure. But perhaps yours is early enough of an infection that you can be cured! Go today! See someone today!
Posted by Vermont_Lymie (Member # 9780) on :
Hi, I had the exact same symptom -- including numbness on the left side of my face.
I had hand tremors for a while, but then developed head tremors (slight shaking) even while lying down in bed. That was the symptoms that finally woke me up and made me realize that something was REALLY wrong with me!
Yes, the shaking will go away with antibiotic treatment, and yes, in my case, it was lyme disease too. It may take quite a few months of abx to go away though. Everyone's response is different, and while I felt better even after one month on abx, it has taken many more months of treatment to see other improvements.
You are not crazy -- though lyme can make you feel that way! I also thought the head shaking was the strangest symptom. I hope you find a good lyme literate doctor and get treatment very soon! Good luck and I hope your symptoms resolve as quickly as possible.
Posted by tammy120771 (Member # 11771) on :
Thanks everyone for your response. It is nice to hear that I am not alone, nor am I crazy. Ha ha
Now I need to find a doctor in the area and get back on the meds.
Posted by BOEJR (Member # 1734) on :
Hi Tammy,
I sent you a PM with the name of a great LLMD in Florida.
Blessings,
Julia
[ 03. May 2007, 12:06 PM: Message edited by: BOEJR ]
Posted by CaliforniaLyme (Member # 7136) on :
WELCOME*)!*!)*)! You are NOT alone- but you MAY be crazy*)!*)!)!!!!!!!!
![[hi]](graemlins/hi.gif)