Has anyone else had extreme symptomes after taking prednisone? I tapered off valium in November, and it seemed to cause a lot of phisical distress. I had intolerable wrist pain, dizziness, and a host of other symptoms. I was given prednisone for a couple of weeks in December. Since then I have been 100 times worse than before.I have had Lyme since 1988, and been treated with years of IV early on. I have had periods of major remission, but relapsed with the loss of a dear nephew (2-1/2 years old). My first time on this site. Thanks!
Posted by nan (Member # 63) on :
From one capegal to another...welcome to lymenet! Let me know if you are interested in coming to our support group held once a month at the Church of the Covenant on Setucket Rd.
I was given steroids before my lyme diagnosis and I will NEVER forget how absolutely TERRIBLE they made me feel. Pains shooting down my arms and other places, too...this reaction was almost instantaneous. I called the doctor and told him I hated taking these....he said people usually feel great while taking them. Hah! Had to be weaned off them slowly.
Since these drugs further suppress our immune system, I guess it makes sense that our lyme symptoms would be exaggereated. It wasn't until six years later that I got the lyme diagnosis.
I sent you a PM.
Posted by ByronSBell 2007 (Member # 11496) on :
I always reacted to valium along with any other kind of pain drug.
Prednisone is very bad for lyme disease but if you are in treatment and get a very bad herx reaction then a baby dose of prednisone can actually help.
Posted by treepatrol (Member # 4117) on :
prednisone is a steroid and it also down regulates the immune reponces it shuts it down. Lyme borrelia spirochetes are then set free or that matter any germ.
Basicaly making your body defenseless against lyme or tick borne infection.
Posted by NatalieA (Member # 7714) on :
Hi- I am just coming off 6 months in Prednisone hell and vowed I will never take it again no matter how low my platelets go. It sure hasn't helped my lyme any..I am back to being on the couch a lot and have a lot of joint pain, but at least don't feel psychotic like I did from the Pred. It is the worst drug ever! Natalie
Posted by capegal (Member # 11778) on :
Thanks for the messages. I just found out how to view them.
I am interested in finding more ways to support my body in fighting the Lyme/meds. I'm glad to know there is a forum to connect to so many others fighting LD. I am still trying to funtion like a "normal" person some of the time. It takes so much energy just to manage the health care, there is not a lot left for living!
Capegal
Posted by pippifern (Member # 11564) on :
Hi Capegal! I'm on the Cape too. I guess there must be a lot of us, given where we live. I'm also brand new to this disease and this website. I'm amazed how much I've learned here in just the past few weeks since I was diagnosed! And I totally identify with you in trying to just "be normal; not sick". I just started a new job the week I was diagnosed, and I can really feel worn out after I've worked a whole day and commuted three hours. yawn!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by capegal: Thanks for the messages. I just found out how to view them.
I am interested in finding more ways to support my body in fighting the Lyme/meds.
Just stay away from steroids and be sure to get proper treatment with antibiotics.