Has anyone had to continually increase their heparin dosage and what is the highest dosage that anyone here in Lymnet has been on? and how long?
I'm getting tired of these 2x/day injections of 10,000 units (1ml). Started at 4,000 units x/day 6 months ago.
I also now have spider veins in my legs, mainly my calves, which I thought heparin would possibly prevent!
Posted by karatelady (Member # 7854) on :
Karla,
I took the shots for 1 year. It gets very tiring so I know what you're talking about.
I started Xango (Mangosteen) about 6 months after beginning Heparin. My blood work began to show that I needed to cut down on the Heparin so I took only 80,000 units for a couple of months.
Blood work again showed I should get off the Heparin and I can't think of any other reason that it would normalize except for the Xango.
I'm not trying to sell it to you either so if you know someone who is taking it, you might buy it from them. It did take about 6 months though before the blood work changed.
It's so nice to have bright red blood again. I don't think the Xango is a blood thinner, I just think the antioxidants in it got my blood back to normal.
It helped me with fatigue and a little with pain but I got off heavy sleep meds plus the Heparin and I can't think of anything else that would've done that.
Sandy
Posted by DolphinLady (Member # 6275) on :
I'm curious about this too.
Posted by karatelady (Member # 7854) on :
My highest dosage was 10,000 units. I seem to remember they started me on dosage too. I didn't work up to it.
Sandy
Posted by Rianna (Member # 11038) on :
Im on 5,000 IU twice per day
Can you not use the Bioject Sub Cut needle free system device to save having to inject every day?
How much do one of those things cost?
Posted by Jellybelly (Member # 7142) on :
I was on Heparin for about 3 years. Thankfully my doc had a compounding pharmacy make a nasal spray that worked dose for dose the same as the shots.
I am now off heparin and don't use Xango either. I believe after my experience that your blood normalizes after the infection is either brought into control or is cut way back.
Hypercoagulated blood is normal when an infection is present but should go away when the infection is gone. In our case the infection doesn't just go away, so blood just gets thicker and thicker.
Using the heparin clears the fibrin off of the walls of the viens, opens up tiny capillaries that have been completely choked off allowing blood to flow freely, carrying oxygen, nutrients and the ABX so many take to their targets.
My experience also showed that I needed more heparin when on ABX due to the herxing or during a flair.
There is some very current information and an actual study showing that heparin may erradicate Babesia all on it's own and the same may hold true for Lyme.
I am in remission for about 4 years now and I do mean nearly completely symtom free.....thank goodness! I do still have some brain fog and my primary med is a beta blocker for a heart rate that still hovers in the 90s but is down from the 120s. Occasionaly I take a couple of Advil and they actually work these days!
I do believe that because of heparin I did not need the massive ABX that you see most of us needing to take. Heaprin potentates ABX, that is documented.
![[Frown]](frown.gif)