This one is for those of you that were told that you had MS and it ended up being lyme. Question did you feel this was worth getting done or just another waste of time? I was told that is can tell is you have MS or Lyme.
Also how is your pain level (for those Chronic cases)and what has helped the most on it?
thanks Posted by Kings Park (Member # 11390) on :
Hi, check your mail
Posted by Carol in PA (Member # 5338) on :
Hi, I don't have MS, but many people here have been misdiagnosed with it.
I think the general consensus is that a spinal tap is not a reliable diagnostic tool for Lyme.
Bumping up for comments from the MS people.
Carol
p.s. If you edit your post, and change the title to include Multiple Sclerosis, you'll get more answers.
Posted by ByronSBell 2007 (Member # 11496) on :
waste of time and BAD pain for me... all the tests were negative as always, now my lower back has been hurting me ever since it has been done, I wish I could have killed the doctor before he even did it, I was 17 at the time so I could have no say so, now I am 18 and things are a little different around here
Posted by Tori (Member # 11647) on :
I had one done during what was probably stage 1/stage 2 of my undiagnosed Lyme Disease...it did not reveal Lyme or MS or an infection. It wasn't as painful as the intractable migraine I was having but maybe that was the 6mg of IV Dilaudid helping. But, again, it did not detect the Lyme disease so I don't think it is helpful for that indication.
It's not useful in Lyme detection but around 80% of MS patients are positive for OGG bands.
Posted by Coyotecrazy (Member # 6707) on :
I had a spinal tap done.
It was worth it for me ... it didn't really prove that I had Lyme, but it did show elevated protein levels in my spinal fluid, which definitely indicates a problem/infection of some kind.
I DO still have pain at the site of the spinal tap but it's minor compared to the fact that after that, even my neuro. (not a LLMD) believed that I had a problem, he just didn't know what the problem was.
I'd have it done, but I would make sure that it's done using fluoroscopic procedures, not just 'hit or miss'.
![[Roll Eyes]](rolleyes.gif)