Im on mepron and zith and my doc wants me to go on heprin (blood thinner).
He said it acts like an antibiotic but there not sure exactly why.
My ins hasnt approved it so hes trying to do coagulate blood tests of some sort to try and get it prescribed for another reason.
anyone on it or have been on it that could give me more info and how they got it approved.
my ins reason was that it was deemed an expiramental treatment. And after watching sicko it really hit home for me.
Posted by kelmo (Member # 8797) on :
Locdog, I'm PM'ing you
Posted by sunnymalibu (Member # 9586) on :
locdog-I'm on heparin for fibromyalgia/chronic fatigue but suspect that I have Lyme. I've had a positive Igenex but negative CDC so my docs say I'm negative.
If you go to the Hemex web site at www.hemex.com and click on WHATS NEW and look at David Berg's article he writes about heparin in relation to infections.
My doctor did blood tests that showed that I have something called a Factor V Leiden gene mutation which makes me hypercoaguable. Your doctor can do a series of blood tests to see if you have any of these risks. The Hexex site has info on the tests.
The heparin has helped me a lot. If you do get it you have to give yourself injections in your stomach or thighs. Make sure to do the injections very slowly otherwise you'll have bruises all over your stomach, as I did before someone told me to inject very slowly. Good luck & best wishes!
Posted by kelmo (Member # 8797) on :
Locdog, you probably know that Dr. F has developed the stevia heparin lozenges that you can get at the Appothecary Shoppe. My insurance covered most of it. Surprised me.
If not, there are plenty of systemic enzymes that people use here. My daughter herxed on heparin, big time. It is also hard on the mucus lining of the stomach. She had to take a break.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by sunnymalibu: locdog-I'm on heparin for fibromyalgia/chronic fatigue but suspect that I have Lyme. I've had a positive Igenex but negative CDC so my docs say I'm negative.
If you'll post your test results in a separate thread, or PM them to me, I'll help with interpretation.
If you have Lyme-specific bands, then you have Lyme.
Posted by Lymetoo (Member # 743) on :
locdog...I found heparin to be VERY helpful. It also is supposed to work on babesia.
Your ins should be OK with it if you can prove you have hypercoagulation.
Posted by painted turtle (Member # 7801) on :
I have been on the heparin for about 3 or so weeks now and have already noticed an increase in having some spurts of energy. I am supposed to take it 3 times a day but am not awake long enough so I take it twice a day.
I am not currently on antibiotics but an doing a neuro detox and will do a muscle detox in addition to supplements and the heparin before jumping back on the antibiotic bandwagon (although I've already done a year of antibiotics including mepron and zith).
I must say I am happy about the heparin, I do believe it is helping. My dr. says that is helps the blood circulate so as to get the oxygen to the places in teh brain and body needed which there fore gets the medicine and nutrients to these taxed and desolate places as well.
Although it may be because the specificity of my symptoms, my dr. says it will help more with the bartonella than the babesia. I think this might be because of the unique problems presented. Might be different for another.
The Hemex test is incredibly expensive but I took it along with a mainstream test to check APT, PT and INR...which were very borderline low. The Hemex test was very significantly revealing of the hypercoagulation, and I have not studied to understand the specifics in genetics, although that is there. Insurance does not cover Hemex testing.
I do not even think about insurance anymore as i know it covers what it covers and doesn't cover what it doesn't....I expect to pay out of pocket to do what I need to do to get well, then eventually get out of debt when I am able to work again and if insurance covers, it is an unexpected happiness.
Posted by sunnymalibu (Member # 9586) on :
lymetutu-thanks for your reply. I read your bio. You have certainly been through the wringer but seem to have come out very well. Congratulations on your fantastic recovery! I also have done the methotrexate, steroid regime. Yeast, yes!
I posted my results in a separate post labeled IGENEX Pos. I would really appreciate any input as I am besides myself with what do I really have? Thank you for your time!