This is topic Gluten Intolerance and Lyme? in forum Medical Questions at LymeNet Flash.


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Posted by NwYrkGrrl (Member # 12684) on :
 
***Sorry to the Neuro Lyme folks who couldn't read this***

I have not yet been diagnosed with LD yet (the 10 doctor's I've been to all seem to think I'm imagining my symptoms since the bloodwork keeps coming back negative).

I was bitten a year ago, got the EM Rash, a 105 fever and in 2 months I lost 20 lbs. I'm at 118 lbs. currently and unable to gain any more weight back.

Since being bitten, I've been diagnosed as having a Gluten Intolerance. Celiac Disease is inherited and nobody else in my family has it so I'm not sure how I developed it, the only thing I can think of is that its another thing to add to my list of symptoms.

Anyone else find they had to remove gluten from their diet after a LD diagnosis?

[ 29. July 2007, 01:54 AM: Message edited by: NwYrkGrrl ]
 

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Posted by northstar (Member # 7911) on :
 
Yes, I would say there are many many with gluten intolerance, and had never had a problem before.

I would find a llmd as soon as possible if you want an accurate diagnosis.

Post on "seeking a doctor" section for your geographical area. Most people travel a quite a ways, as there are not many. You can see the other posts about how far to look.

Also, click on the link on the left of this page for "support groups", and try to find contacts in your state, and nearby states.

Northstar
 

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Posted by Lymetoo (Member # 743) on :
 
I think there are at least 10 people on this board with celiac and lyme.

I fully believe that Lyme disease CAUSED my celiac disease. Many on www.celiac.com say an infection or virus seems to have triggered their celiac problems.

Do a search here by clicking on the little word "search" in the upper portion of this page. You will find many discussions on this.

Please find an LLMD and get tested through Igenex Labs in CA. www.igenex.com


 

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Posted by tailz (Member # 10014) on :
 
I only tested positive for an egg allergy, but I was not able to get my weight up until I removed all grains from my diet. I dropped to 88 emaciated pounds, and still, docs did NOTHING to help me.

You have at the very least Lyme, but don't turn your back on the handful of coinfections you are likely to have, too.

I have no doubt that my gluten problems were due to infection. The best part was one of my docs put me on steroids in the middle of a Lyme attack (of all things!) I really shouldn't even be here today.

Lymetoo actually found me on the Celiac forum and helped me figure out I had Lyme. In fact, I was so sure I had Lyme, I went to a support group before I got my result.

Hope you feel better soon and keep us posted!
 

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Posted by bettyg (Member # 6147) on :
 
welcome NYG,

now, you have met 3 of us with gluten intolerance on here: tutu, tailz, and me.

i've had chronic lyme 37.5 yrs; 34 yrs. misdiagnosed like tutu above.

found out last year my food allergies:

gluten ... wheat & rye;

casein ... cow's milk, cheeses, egg whites, & garlic

plus being a diabetes 2 patient 6 months prior to my correct lyme dx!


my mom has been 16 yrs. at that time so she wasn't the carrier; my dad was; and he TOO NEVER knew it nor did he know he had lyme undiagnosed for 80 years plus!

how to view PMs, go to top left above the posts to HELLO NYG....; they are below there when it's flashing!


i sent you a private message, PM, with my 60 pages newbie links, advise, symptoms, tests by IGENEX & VERY DETAILED...so read them; disability, much more, and

treepatrol's archive link over 1000+ links of good info.

you've come to the right place for education, support, and help in finding a LLMD, lyme literate md.
 

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Posted by Foggy (Member # 1584) on :
 
My MD said the blood tests are unreliable so I had an Endoscopy which didn't show signs.
 

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Posted by clpgotlyme (Member # 7875) on :
 
Me! But, I'm pretty sure I had Celiac before Lyme. My Dr. has both also and said a large percentage of her Lyme patients are gluten intolerant. She asked me to make a folder of GF recipes for her to share with her patients.
Cindy
 

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Posted by Anneke (Member # 7939) on :
 
I too, developed gluten intolerance as a result of Lyme.
 

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Posted by Vanilla (Member # 11155) on :
 
I have LD and gluten intolerance. My gluten intolerance has not come up in a test yet but I know I have it. You can have it and not test positive for it just like lyme.

If you do a search you will find at least one other thread on this subject.
 

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Posted by sixgoofykids (Member # 11141) on :
 
I am gluten intolerant, but not celiac. I seem to get GI symptoms when I flare ... this has happened over the years prior to knowing I had Lyme.

Now that my Lyme is being treated, I am less sensitive to gluten, but avoid it just the same as I avoid alcohol, sugar, and yeast.

Once a celiac, always a celiac, but I do not have celiac disease. I think that gluten is hard for everyone, and those of us with a lot of stress on our immune systems do better without it.

So, count me in, another gluten intolerant with Lyme Disease.
 

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Posted by Lymetoo (Member # 743) on :
 

quote:

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Originally posted by Vanilla:
You can have it and not test positive for it just like lyme.

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