LymeNet Flash: Parkinson's was Lyme

This is topic Parkinson's was Lyme in forum Medical Questions at LymeNet Flash.

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Posted by mjo (Member # 7876) on :

Minnesota's own Chris Erickson speaks out on his misdiagnosed Lyme disease on The Kathleen Show.

To hear the interview go to www.canlyme.org and look at the maroon-colored links in the center of the page. The fourth one down has the link to the show.

Please post your thoughts and reactions to the interview for all those with dial-up, like me, who couldn't download the show in the next 24 hours.

Many thanks to Kathleen, Jim Wilson, Michelle, and Hummingbird Productions for getting Chris's story out there.

Posted by bettyg (Member # 6147) on :

so here's where the story came from that np40 emailed me earlier!

i would have been interested in this since hubby was dx lately with MILD PARKINSON'S, SEVERE TREMORS.

i had him tested with igenex's western blot igm/igg after me; my beginner llmd said he did NOT have it based on not enough positives but 41 was definitely posiive on both! he won't be tested again nor go on any meds for that; he's anti-pill so you can imagine what i was going thru with 22 supplements and at 1 tme up to 20 RX meds before all the supplements!

to anyone who heard it; how did he get the correct lyme dx? please find out for me will you? heartfelt thanks! [Wink]

Posted by mjo (Member # 7876) on :

Betty,

I have a hubby like that too. Always such a struggle. Band 41 isn't indicative. Your hubby should have had an abx challenge and then retested at 4 week mark but I guess that's out of the question for him.

Struggling to help two other guys with Parkinson-like tremors here in WI. One believer, one not. It's so frustrating!

Will PM you.

Posted by bettyg (Member # 6147) on :

Marina, YOUR PM BOX IS FULL; time to get rid of some dust balls there ok! [Big Grin]

glad chris has a good llmd you pm me about! later!

Posted by Lymetoo (Member # 743) on :

^^

Posted by mjo (Member # 7876) on :

Tracy. Yes, you're right. Betty, sorry will clean out now. Thanks!