I had a regular follow-up visit with my PCP today and told him that I was now more sure than ever that my Fibromyalgia was actually Lyme Disease...
I informed him that I was waiting to hear from my caseworker at Social Services, before making an appt. with an LLMD that I had been researching.
Caseworker told me at our last visit that she may be able to get at least my first visit paid for, because I told her that this doctor does not take Medicaid and I don't have the money to pay...
But in the meantime, he agreed to put me on an antibiotic just to see what happens...
He was going to use Doxy, but I just recently read that Minocycline actually was found to be more effective in treating Lymies w/Neuro symptoms...
He agreed to 30 days of the Minocycline 100 mg 2x daily..
Anyone else ever heard this and what should I be looking for if it actually starts working??
Thanks Ellen
Posted by bettyg (Member # 6147) on :
Print & read Dr. Burrascono's 2005 lyme treatment guideline info first; you will come back to this often ....long-term antibiotics. http://www.ilads.org/files/burrascano_0905.pdf Posted by lou4656 (Member # 10300) on :
Hi Ellen!
I was on this dosage of mino for 7 months. You may feel dizzy and off balance for the first two weeks. Hang in there -- it gets better. Also, take mino with a big glass of water, and do not lay down for 30 minutes after you take it.
Mino worked for me, but I noticed the most improvement after 3 months. Good luck to you!
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