LymeNet Flash: sensory loss

This is topic sensory loss - getting scared in forum Medical Questions at LymeNet Flash.

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Posted by ThursdayNext (Member # 12198) on :

Some of my neuro symptoms are worse & i'm getting scared:

For the past few weeks, I've had an increase in certain symptoms - particularly tingling, prickling, sensations.

On friday, I noticed that my pinkies (just the tips) felt a little odd, but couldn't place why.

I then realized that I have some temperature sensory loss in my pinky finger tips!

If i touch an ice cold glass, every other finger recognizes the cold temp, except the pinky. It still feels cold, but very muted / dull.

I can still feel textures & pain & my pinkies don't feel numb, just different.

Looks like it's only temperature related.

What's this all about? Is this a Lyme symptom? My little toe is starting to feel strange too.

Could it be MS? I had an brain MRI & EMG in june & it was normal. Should I ask for an MRI of my spine?

I'm on Doxy 300mg / day & I'm seeing my LLMD on Thursday. I feel like a mess [Frown]

Posted by chamade (Member # 11472) on :

Is this both pinkies?
MS *usually* presents itself asymetricaly in patches. I would certainly want to have a C-spine MRI done. Spinal lesions *usually* lead to more symmetric symptoms.

When I presented with my symptoms(symmetric tingling/burning), the neurologist first did the c-spine MRI and explained why.

Posted by ThursdayNext (Member # 12198) on :

quote:
Originally posted by chamade:
Is this both pinkies?
MS *usually* presents itself asymetricaly in patches. I would certainly want to have a C-spine MRI done. Spinal lesions *usually* lead to more symmetric symptoms.

Hi Chamade,

It's both pinkies. My left one might be little worse off than the right, but it's both finger tips.

Do spinal lesions lead to symmetric or asymmetric symptoms?

Could Lyme cause a spinal lesion?

thanks!

Posted by chamade (Member # 11472) on :

Spinal lesions are more indicative of symmetrical symptoms. They suspected I had cervical transverse myelitis because my symptoms were totally symmetrical. MS in general presents with patches of sensory disturbances, brain or spine related, but of course there are exceptions to every rule.
I'd get an MRI of the spine to make sure, but it is unlikely you have MS.

Do you have any facial twitching or tingling/numbness? That would exclude the spine.

Posted by ThursdayNext (Member # 12198) on :

I've definitely had facial twitching (mostly eyelids).

When all this started a few months ago, i had tingling sensations on both cheeks. But not in recent weeks.

I'll ask my LLMD about it...i definitely want a spinal MRI, at least for my own peace of mind.

Was your suspected transerve myelitis actually Lyme Disease?

Posted by chamade (Member # 11472) on :

I guess like many here, I am not 100% certain I have lyme. My Igenex tests came back as officially negative (band 39 +, band 41 IND and band 23-25 IND for IGM). My LLMD says I have Lyme 100%. I guess I'll take Lyme over those neurological degenerative diseases any day [Smile]

Also my neuro has no ideas what is wrong with me after all the MRIs so it does look like it's Lyme.

With your facial symptoms it's very unlikely they will find something in the spine if they haven't in the brain. Most likely you have peripheral neuropathy.

Also, the thing with MS is that often times it doesn't show up in MRI until month or even years after the onset of symptoms, at least according to everything I've read on MS forums. At the time I convinced myself I had MS. Then again, lyme can also cause lesions and it sickens me to think that a lot of those people on the MS forums have undiagnosed lyme.