Can CLD result in death if left untreated. Because from what I have been reading, I have late stage CLD.
Posted by bettyg (Member # 6147) on :
kb, yes, chronic lyme can cause deaths!
there are many complications with chronic, late-stage lyme just like cancer and other chronic illnesses.
someone will come on giving you better answers; this is just to give you a quick one now and directly you to SUPPORT to read there.
see GENERAL SUPPORT; there are lyme obituaries there that continue to be added.
Posted by Tincup (Member # 5829) on :
Welcome to Lyme Net!
Hope all is well in sunny Florida... and the manatees ... as cute as they are... are still as ugly as ever!
To answer your question, yes, people have died from Lyme disease. Will everyone? I don't think so. Everyone will die from something.. but just because you have Lyme disease doesn't mean that it will cause your death. Many people are successfully treated and never look back.
Lyme disease, even in the late stages is treatable. Some folks do well, some maintain and some don't see as much help as others.
Many people live decades with Lyme disease. I am living proof of that.. as are others here.
Is there something we can do to help you get diagnosed or treated? That is why we are here.. so do feel free to ask if you need anything. OK?
And hang onto your hat. Another hurricane season is underway! Hope all is well down your way!
Posted by randibear (Member # 11290) on :
i believe my mother has had lyme most of her life. unfortunately, she has gone untreated and nobody will listen to me!!
she's 83 and has lots of problems.
Posted by 5dana8 (Member # 7935) on :
Hi kbholley
CLD can cause death but usually doesn't ~ specially if treated.
There are many people who have had it 20, 30, 40 years or longer who post here and are alive & kicking.
I myself have had it 20 years and am not close to being dead yet..knock on wood
Although at times, I would wish God would take me, I was so sick before treatment & durning as well. I am doing well and stable now for the most part and have many happy moments.
But it can. Your chance are greatly reduced if you are in treatment and have a LLMD.
Here's the running link from over in general of the Lyme obituaries:
I started this page 8 years ago now... and it has grown from one to five pages now- it is a Memorial Page in memory of those who have died from Lyme disease-
I was dxd last September. I honestly do not believe I had even 6 months left with the shape I was in at the time I figured it out myself.
At 88 malnourished, vitamin A and D deficient pounds, between the speed at which my heart was beating, episodes of decreased O2 levels, a 2 mm liver lesion, as well as mild aortic sclerosis, I don't think the body will allow a person to continue untreated like that forever.
With treatment of Lyme (and coinfections!), yes, you can improve. Without treatment though, serious health problems will result.
Posted by kbholley (Member # 12938) on :
The reason I'm asking is because I can't get my Primary Care to reliaze that I have ld even though I had the tick bite, the bulls eye rash, all of the early symptoms of ld (flu, sinus infection, and fever) but she keeps saying its not something we have to worry about because its not common in our area. So she keeps treating the symptions.
I got infected 6 1/2 yrs ago, I now have caridac disease, a MVP, arthritis, brain fogs, mental confusion, cronic fatigue, carple tunnel syndrome, TMJ, sever floaters, eye pain, high cholestrol, etc.
I'm trying to get my md to listen, I have taken her all of the info, and a pamplet from LymePA, and she still won't listen. I am now in the process looking for a new doctors, but almost all of the good doctors aren't accepting new patients. And I'm getting scared.
Any ideas on how to get her to listen?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by kbholley: Any ideas on how to get her to listen?
Give UP!!! Find an LLMD as soon as possible! Trying to talk reason to a "duck" is next to impossible and your health cannot wait!!
Posted by 5dana8 (Member # 7935) on :
Hi Brenda
I would forget about your Primary Care Duck for now. By the time he knows everything there is to know about LD & it's co-infections, yes you could die or become worse.
Please try to find a LLMD> There's a section here when you first arrive called " seeking a doctor" section.
Put a post there. You may have to travel out of state, there are not many LLMD's left. I had to travel out of state for treatment, but it was worth it to have my life back.
Also you can gleam some information about a good LLMD by asking if there is a support group in your state or state nearest you, that you can ask for personal reccomendations.
I hope you can find someone. This is a very complex disease to treat.
take care Dana
Posted by valbeth (Member # 12715) on :
A Bull's Eye rash is diagnostic for Lyme. Period. Even according to the CDC. If this woman is too stupid to realize this than you HAVE to find another doctor. Or maybe threaten her with malpractice if you have pictures of the rash... Okay, may be extreme, but if you had a bull's eye nothing else is necessary to prove you had Lyme. Convincing someone that it's the Lyme that is causing your current symptoms is the trick. Believe me many of us travel 3, 5 or more hours each way to see a good LLMD. It's necessary and well worth it. Good luck.
Posted by kbholley (Member # 12938) on :
Thank You -
Posted by Boomerang (Member # 7979) on :
Dana, your posts always make me feel better just to read. God Bless you.
Posted by sixgoofykids (Member # 11141) on :
quote:Originally posted by valbeth: Believe me many of us travel 3, 5 or more hours each way to see a good LLMD. It's necessary and well worth it.
I fly from Ohio to NY to see mine. Totally worth every penny.
Posted by Vermont_Lymie (Member # 9780) on :
Yes, Brenda-Lee, please find a lyme literate doctor as soon as possible! Dana gave great advice above, get some recommendations from the Lyme Disease Association and lymenetters here. Travel, or get on a waiting list if necessary!
I urge you not to waste any more time and energy on your primary care doctor, who has already demonstrated great ignorance about lyme and tick borne diseases, at the cost of your health.
I had untreated lyme disease for many years, and after one year of treatment, continue to feel better. I hope that you may have the same opportunity to get proper treatment. Unfortunately, it is a serious disease that not many doctors are knowledgeable about.
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