LymeNet Flash: Vasculitis knots on fingers and toes, Anyone Else?

This is topic Vasculitis knots on fingers and toes, Anyone Else? in forum Medical Questions at LymeNet Flash.

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Posted by Skyler (Member # 11549) on :

Before I knew I had lyme, (around 11th grade) I started getting these weird and painful red/purple knots on my fingers and then my toes.

I went to a dermatologyst, and they did a biopsy. She found that it was Vasculitis, but could not give me any reason for it.

Then under the vasculitis skin was a big hard knot. After a period of time (sometimes a 3 weeks, sometims 2 months) they would go away.

These bups are SOO painful. I would end up wacking them on everything. Once I wacked one on my finger on a door handle and the pain was so bad I fainted.

I had not thought about these knots in a while untill recently my mother found something online about it being related to Lyme Disease. It said that people start getting these things about 8 years after having lyme.

Now I am curious, Has anyone else experienced this?

Posted by Parisa (Member # 10526) on :

My husband has red swollen fingers and some spots that are very very tender. Sometimes the spots open up and become open sores which take a long time to heal. The doctors consider it a type of vasculitis or vasculitic like.

Posted by Skyler (Member # 11549) on :

yeah, thats what happend to me. My joints would swell to the point where I could not bend my joints or the skin would split open... yuck.

Well, turns out its from lyme. Has your husband's vasculitis stopped with treatment?

Posted by Parisa (Member # 10526) on :

It hasn't stopped yet but he's "only" nine months or so into treatment. Other things have gotten better so I'm still hopeful this will get better too.

Posted by Skyler (Member # 11549) on :

I am so glad to hear things are getting better for him! For me the knots were never a constant problem, they would come and go and did not happen too often. I am sure this symptom will eventually leave him soon! [Big Grin]

Posted by Penn92 (Member # 9207) on :

I had this on my toes about 4-5 years ago. One of many "strange symptoms" that came and went without any satisfactory explanation from the ducks. So, that happens about 8 years in, huh? I'll have to do some looking back to see whether that jives with when I think I was infected.

Sometimes my hands looked almost ACA-like, but that could have been vasculitis also. I just never asked any medical type about it because they never knew what was wrong with me anyway! [bonk]