My main question at this point, Can a sinus infection (that apparently I had on and off for a long time) cause this auto immune problem which could be diagnosed as MS?
Some history: It started in march of this year (2007), I got some numb like feeling in tongue, lip, chin. Ended up on blood pressure meds and monitoring blood pressure for next month. I then got numbness in my hands and feet, then trunk. I ended up at the hospital as I was worried something serious wa going on. They told me to get off the medication I was on and if it continued to see a Neurologist. I talked with Pharmacist who told me the meds should be out of my system after 10 days. So I waited about 3 weeks and still had same symptoms, so I got a refferal to a local Neurologist and had to wait another 3 weeks for an appointment. During the wait I started a new symptom which gives me a shocking feeling down to my feet and hands when I bend my neck. Went for MRI of brain and spine in which they found lesions and inflamation. Did lumbar puncture week later and 3 days of seroid IV treatment at hospital. After the results of the LB I was told I had MS and have been doing IV treatment once a month ever since. I was told by my sister's doctor back in Massachusetts where I lived all my life (I now live in Michigan 7 years), that I need to rule out Lyme disease if I was diagnosed with MS. I then asked what test were done to rule out Lyme and was told nothing, but he said we will do an antibodies blood test which came back negative. Duting this time I was taking with the Michigan Lyme Disease association and they told me that test was junk and that it is void as I am on steroids. They told me to see a Lyme Literate doctor to rule out Lyme. So I have just seen this Lyme Literate doctor and I am know getting a Lyme disease test through some iGenex lab in California as this Lyme Literate doctor said they are the best. As all my records were sent to him, he looked everything over and also checked me out and taked with me for a long time which I really found nice for once since this all started. Anyway, this doctor found a big sinus infection and asked me if I had sinus problems, that is when I told him I had minor problems on and off for a long time. He also said I had high liver enzymes. He put me on 2 - 500 milligram antibiotics twice a day (2000 milligrams Total a day) for 30 days. I will soon get my results for Lyme test.
I am sorry for this huge story but I have not talked to anyone about this really besides family and I wanted you guys to hear my whole story.
Any input, direction, help etc.... would be much appreciated, Thanks you so much for your time.
Rob
Posted by cjnelson (Member # 12928) on :
I am just grateful that SOMEONE led you to a LLMD quickly and that you are NOW with one.
You are in the right hands for sure, it sounds like anyway. From my research MS is often
misdiagnosis of Lyme. There are so many with much more experience here than I . You are in a great
place for support.
Welcome!
Posted by Aniek (Member # 5374) on :
The Lyme bacteria can live in the sinuses causing sinus problems. That is probably why the LLMD asked about sinus problems.
Posted by BorreliaBrain (Member # 7603) on :
My brain MRI was clear, EXCEPT for a noticeable swelling and infection in the sinus cavities. At the time I was seeing Dr. B, yes, THE Dr. B., and he told me it was probably Lyme, which likes to colonize the sinus cavities...
So, while not EVERYTHING can be explained by Lyme, it will be interesting to see how your symptoms respond to antibiotics.
Posted by sixgoofykids (Member # 11141) on :
Well that explains all my sinus problems! I've had "allergies" and sinus infections ever since contracting Lyme 35 years ago.
I just wanted to repeat, keep a symptom diary while you're waiting for a diagnosis.
Posted by Lymetoo (Member # 743) on :
OH yes, I had years of sinus infections prior to my diagnosis, which came about 45 yrs too late!
I'm so glad you are being evaluated by an LLMD. Trust him!!!
![[Smile]](smile.gif)
. You are in a great