After looking ok, but feeling terrible for the last 7 months, and being treated like crap by doctors I finally think I have an answer. I have read the informative interp link for WB result from Igenex and would consider it definitely lyme. It's ironic that this result is not considered positive for me (nothing showed in the millions of bloodwork done on me).
I would like to hear input of the experienced and knowledgeable folks on this board about this result. Will the LLMD start me on aggressive treatment or confirm diagnosis? I am seeing Dr. S in Hermitage PA today just as luck has it- does anyone have feedback about him- if so I would appreciate a PM.
Here goes:
IgM Igenex and CDC NEGATIVE 18 - 22 - **23-25 IND 28 - 30 + **31 IND **34 IND **39 IND **41 IND 45 - 58 - 66 - 73 - **83-93 +
I also did the full co panel and it only showed IgG Ehrichiosis (monocytic- E. chaffeensis) at a 1:40 titer. I suspect that I also have bartonella or BLO based on my linear moving rash.
Everything other than the WB in the complete lyme panel showed negative.
I am thankful the blot showed something. Does this look like a late stage blot or is it impossible to say? Anyone have a similar situation with their WB result. I have been symptomatic for 6 months with neuro symptoms (internal vibrations, crawling, moving rash) and praying that I will respond to treatment.
I am very thankful that I found this board. Getting this result was a lot of mixed feelings.
-Despin
Posted by Geneal (Member # 10375) on :
Wow. I consider those IND to be a weak positive.
Given that Western Blot and any symptoms you have that support a Lyme diagnosis,
I would be shocked/suprised if you weren't diagnosed and treated for Lyme and/or co-infections.
Remember, Lyme is a clinical diagnosis. The blood work only helps to support that diagnosis.
I hope you have a good appointment and can start treatment soon.
Hugs,
Geneal
Posted by DesperationIn (Member # 13121) on :
I hope you are right! Would you recommend coinfection retesting, perhaps at another lab like Fry? I hope I can get started kicking this thing- I will let you know how the appointment goes and what the LLMD says about the WB test.
Posted by valymemom (Member # 7076) on :
Supports needing treatment. My one son's llmd is starting to use Fry for co-infection testing.
Posted by treepatrol (Member # 4117) on :
Dr S will probaly treat you I go to the other Dr in Hermitage. It dose sound like Bartonella too plus lyme.
Posted by Jamiet (Member # 11601) on :
He will treat you, you have alot of IND's.
Maybe a cycle of abx and retest, but, they dx you based on symptoms.
good luck
Posted by Lymetoo (Member # 743) on :
It may SAY negative, but you have tons of Lyme-specific bands!!
This in particular says you have it:
"83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi."
There is NOTHING more specific than the DNA of the Bb!!
Are you referring to Dr Sw??? Yes, you'll be taken care of!
Posted by Lymetoo (Member # 743) on :
up
Posted by Geneal (Member # 10375) on :
I don't believe testing for co-infections is an exact science either.
I believe you should talk to your LLMD and see if he/she goes off of symptoms.
Please keep us posted about your appt.
Hugs,
Geneal
Posted by DesperationIn (Member # 13121) on :
Dr. Said this was classic lyme. I had a bullseye appear on my face, then quickly fade, while taking doxy that I photographed. The migrating linear quickly-fading rash also appeared on the 3 weeks low-dose doxy. Dr. S ordered a lot of tests which I sent in to LabCorp. I am having repeat coinfection tests done there. I was happy that LabCorp did the CD57 test too, which I am getting. Got a kit for a Fry Labs blood smear.
I got 400mg doxy for 3 mths, which was double the previous dose I took. But nothing specific for bartonella (which was negative on Ignenex but I worry about it b/c of the linear rash).
I ironically, the "prestigious" ID duck I was seeing called me back about my latest round of test results to tell me they came back perfect. I BROUGHT UP THIS western blot result (which were back that same day and she did not even mention it- I begged her to send in this test) and said this was a NEGATIVE WB and I don't have lyme. When I told her this sample was taken after 3 weeks of being on doxy for suspected lyme and I had a bullseye and other rashes appear while on it along with having a host of lyme symptoms, she said healthy "controls" might very well have this result and that bullseyes only appear 3 weeks after infection at the lates. Who is she kidding? Then she told me not to tell her how to practice medicine. What an idiot. And she represents the bulk of the medical community- it's so sad.