I posted a comment.
Posted by lymednva (Member # 9098) on :
Rated the article and left my comment!
Posted by sixgoofykids (Member # 11141) on :
I rated it ... you can rate it more than once, BTW.
Posted by CaliforniaLyme (Member # 7136) on :
)(*!!&^$!^%#!^%$#!%$@!
Posted by Michelle M (Member # 7200) on :
Gaaahhh!!!! Aaargh!!!
I left my two cents' worth!!
Michelle
Posted by Tincup (Member # 5829) on :
I read this with excitment today and actually will be sending it off to an insurance company to help someone get treated.
NOTE what they are now saying.
1. No longer is doxy the cure all and that is the ONLY antibiotic you can use. They admit the more expensive antibiotics are effective. They hadn't said that before.
2. They don't list a time limit for the antibiotics here. If you have those symptoms.. you can be treated. No cut-off date if you have "nervous system Lyme".
3. They admit there are big complications from Lyme and many manifestations of it now... not just a rash and swollen knee.
The ONLY thing that is nasty is that last line.
But...
WE don't HAVE post-Lyme sydrome.. we have what we call chronic Lyme and what they are now calling "nervous system Lyme". Nervous system Lyme gets treated with a choice of antibiotics. Post-Lyme syndrome doesn't... soooooooo....
Think of it in those terms.
Your diagnosis is now called "nervous system Lyme".
Heck, they can call it potatoes as long as they keep saying we can get antibiotics.
Posted by Jellybelly (Member # 7142) on :
Tinny.....can you tell me who said that and where? Are you saying the IDSA said this??? Just NOW??? Link to it anywhere??? Thank you:}
Posted by cantgiveupyet (Member # 8165) on :
I agree Tincup thats how i read the article.
They didnt go into detail about post lyme, but they did say the words 'in contrast' which means they are talking about two different items.
Post lyme and nervous system lyme.
Im glad that they are finally mentioning abx other than doxy.
Jellybelly- The link is under the first post in this thread.
Posted by Lymetoo (Member # 743) on :
up
Posted by Lymetoo (Member # 743) on :
Keep the comments coming!! Did you guys recognize me there?? "frankenstein"
Everything I tried to register as was already taken. Tried like 6 names. Finally I decided that no one would be likely to have registered as frankenstein!!!
Didn't want to be too obvious with being called Lymetoo!
Posted by randibear (Member # 11290) on :
what in the bloody h___???
Posted by Lymetoo (Member # 743) on :
yeah....it soooks!!
Posted by perplexed (Member # 1913) on :
This article is shameful and degrading to all people with Lyme Disease!! It is an insult!
Shame on that Website. They even have a chat room for Lyme Diseas! Why would they allow such on article on their website? Has to be a connection somewhere.
Shame on them!
Hugs, Perplexed Posted by Lymetoo (Member # 743) on :
Probably got paid off! Posted by adamm (Member # 11910) on :
An affront to humanity! Gave it the lowest rating and will post a venomous comment!
Posted by mojo (Member # 9309) on :
The weirdest thing about this is that MANY of the members on the Immune Support message boards have Lyme Disease and are on long term ABX. They also have a Lyme Board but it's very inactive. On the FMS/CFS board it is very acceptable to talk about Lyme (which is taboo on many CFS/FMS boards and used to be banned on this one, too)- this has resulted in many more people getting a correct Lyme diagnosis. These same people purchase their products.
I don't understand why they would print this but I intend to find out!
[ 12. September 2007, 09:12 PM: Message edited by: mojo ]
Posted by mojo (Member # 9309) on :
They removed my post!
I wonder if they'll delte the article?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Lymetoo: Keep the comments coming!! Did you guys recognize me there?? "frankenstein"
I don't see my post either!!
Posted by mojo (Member # 9309) on :
I should have been more specific. I went on the FMS/CFS board and asked about the article and they deleted my post. I addressed it to the moderators and I got an email that said the moderators were volunteers who monitored the board.
So now I'm emailing them - we'll see what they say. I'm supposed to get a reply in 24 hours.
Keep the comments coming.
Posted by Michelle M (Member # 7200) on :
They would do well to recall publishing THIS article by an esteemed doctor back in 2002:
Makes them look kind of ignorant to NOW turn around and post a contrary article claiming there's no such thing as chronic lyme.
Idiots. Really oughta do their homework.
Michelle
Posted by MamaWolf (Member # 10578) on :
Well one thing I can see happened...
The last line/point is no longer in bold.
Posted by minimonkey (Member # 8693) on :
I nearly got banned from immunesupport for discussing Lyme a while back -- and actually, I owe my life to a couple of courageous members on the FMS forum over there for alerting me to the possibility that Lyme might have been my problem.
Same old same old same.... sigh.
Posted by MamaWolf (Member # 10578) on :
quote:Originally posted by Lymetoo:
quote:Originally posted by Lymetoo: Keep the comments coming!! Did you guys recognize me there?? "frankenstein"
I don't see my post either!!
I finally found 'em. Click on "Show Sub Comments" on the bottom left hand corner of some of the posts.
Posted by mojo (Member # 9309) on :
The top of the article now has a paragraph that reads:
[Note: It is ProHealth's policy to reprint the abstracts of research reported in reputable scientific journals. Our commitment is to keep the patient community informed about what is being published on pertinent subjects - unedited. We also believe it is important and valuable for readers to comment and share their thoughts on these reports, because this is what the scientific community is reading.]
NOT GOOD ENOUGH. I'm guessing we won't be able to find ILAD's guidelines or any anti FMS/CFS articles there! I just sent another email and will be posting another comment
More comments, please.
Posted by Lymetoo (Member # 743) on :
Thanks MamaWolf!
Mojo....I would think they would be willing to post the ILADS guidelines as equal time.
Posted by mojo (Member # 9309) on :
Something from Dr. Striker dated TODAY. They listened to us and put this in the same part of the library
Good job, fellow Lymies! I posted a sepearate topic on this.
Molly
Posted by Lymetoo (Member # 743) on :
up
I was following you around!! Posted by mojo (Member # 9309) on :
Yes, Lymetoo and I didn't even see you back there!
Some positvie ratings and comments would be great - I always try to give positive feedback, too.
Posted by Lymetoo (Member # 743) on :
Well, Ms Frankenstein made her brief comments there! I kinda like that name....Do you think I should change my name here?? Posted by mojo (Member # 9309) on :
Why not, Lymetoo, I have a few "names" for myself!
BTW - I didn't notice yesterday but they actually posted TWO articles - the other one is the third one down by Dr. Cameron.
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