First (Lab Corp) cd-57 count 24 flagged LOW AST and ALT liver counts 81 and 46 marked High
Igenex IGM
All bands negative except 31 which was IND with 2 stars.
Igenex IGG
Band 41+ with 2 stars all others negative
Bartonella Co-Infection (Positive) Bhenselae IGG 1:80 (over 1:40 is considered normal)
Have been ill for 7-8 years and grew up in Massachusetts. LLMD clinically diagnosed Lyme after my symptoms but I still doubt the diagnosis and fear something else maybe wrong.
My symptoms are below:
Fatigue, skeletal pain, burning sensation, GI issues, urinate frequently, painful fat tissue with lipomas or lumps under skin in clumps, joints all crack, severe breathing difficulty that comes and goes, short of breath like I am gasping for air, muscle cramping and twitching, acne like never before, severe itching, white covered muscous tongue and mouth.
Never remembered a tick bite or rash. 30 year old male
ANy help would be awesome.
Thanks
Posted by Lymetoo (Member # 743) on :
What about babesia?? Could be the cause of the shortness of breath.
Also could have Interstitial Cystitis....caused by Lyme. That happened to me.
Band 31 is specific to lyme. The IND means a weak positive.
I'm off to bed for now.
Posted by TerryK (Member # 8552) on :
You tested positive for bartonella! That can make one feel very sick all by itself. Bartonella can be passed by fleas and cat scratches or ticks. The fact that you have bartonella should make you suspicious that you may have lyme. Many overlapping symptoms with lyme.
Your low CD57 indicates lyme although it is not definitive, again highly suspicious of lyme.
I have lyme, babesia and bartonella and your symptoms are VERY familiar to me. The air hunger has improved greatly with babs treatment. Burning got better with doxy which was probably somewhat effective for bart and lyme. The bart rash (long red/purple scratch looking things) showed up once I started doxy.
The white tongue sounds like yeast.
You need to treat bart, yeast and do an empirical trial for babs and lyme. I'm not a doctor, just my opinion based on reading and my own experience.
You can have lyme disease and be negative on testing. Not at all uncommon from what I've seen. You may convert to positive after a trial of antibiotics.
You should be on your way to getting better just by treating bart and yeast. You'll know more once you start treatment but I personally wouldn't waste time and would get right on it if at all possible.
Terry
Posted by TerryK (Member # 8552) on :
Forgot to add that if you have yeast, you need to treat that ASAP since antibiotics can greatly exacerbate it. A candida/yeast infection can make you very ill.
Tutu has some good info on candida. You will need to change your diet, get on a good quality probiotic and take something to get rid of the yeast - there are over the counter products or your doctor can prescribe something.
Terry
Posted by sixgoofykids (Member # 11141) on :
I agree with the other posters.
Yeast -- eat no sugar, alcohol, or yeast. Avoid simple carbs. Take high quality probiotic.
Your bartonella is positive ... I feel very bad right now from bart. My Lyme symptoms have greatly diminished, my babs symptoms are gone, so it's mostly bart making me feel this way.
I was diagnosed and treated for babs with a negative blood test. I had air hunger, night sweats and heart palpitions, all of which are now gone.
My daughter is being treated with as weak of a Western Blot as you have and she has seen remarkable improvement. We did a trial of abx with her to see her response, her response confirmed her diagnosis.
I would start treatment soon so you can see what kind of response you have.
Posted by Polaris (Member # 11391) on :
The 31kd band is 95% specific for borrelia, that is 95% accurate. Some in the field have noted that they know of nothing else other than borrelia that even makes OspA, which is the antigen that causes you to make the 31kd antibody........It is very specific.
Posted by Lymetoo (Member # 743) on :
DIET, DIET, DIET is the key. Then, be sure to follow the 5 step plan outlined below. It was developed by my naturopath. It works.
"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."
Five Steps to Candida Elimination:
1. You must starve it into submission by eliminating its food source.
2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]
3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]
4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]
5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals] lyme disease in Europe is http://health.groups.yahoo.com/group/EuroLyme/ Posted by Michelle M (Member # 7200) on :
Hi Ed.
I'm so glad you're seeing an LLMD.
That's what a "clinical" diagnosis is all about.
A "duck" (non-LLMD) would just say that's a negative test and send you on your way. Actually, you wouldn't even know about the 31 band, come to think of it, as most labs don't even test that band, though it's very specific for lyme. In fact, for later-stage lyme.
It sounds like your immune system is rather beaten down.
Go online and buy some "Theralac" (website by the same name). It's the KILLER probiotic. Not cheap, but one a day will fix you right up. Take at bedtime. Your doc may want you on other stuff as well. You're seriously gonna need it when you start antibiotics.
Start reading everything you can take in on the newbie links.
It's possible, but really unlikely, to have a coinfection without also having lyme. I'll bet after some antibiotics, you'd test a lot differently. Don't be surprised if you feel like a truck ran over you. That's called the herxheimer effect and it's part and parcel of getting better.
Anyway, welcome to LymeNet. So glad you've found your way here. Good luck in your recovery!!!