Hello -- just a note, I have been having much success with my neuro symptoms with minocycline! I had tremors, internal trembling, weird coming-and-going tingly feelings in arms.....they have all but gone away on 100 mg of mino! It's amazing. I even notice improved cognitive processes and an overall improved mood!
Just a note of encouragement....and I'm hoping it stays this way. We are treating Lyme and clinical bart with the following daily protocol:
Rifampin 600 mg Doxy 400 mg Mino 100 mg Omnicef 600 mg
Posted by Vermont_Lymie (Member # 9780) on :
Congratulations, and thanks for sharing! That looks like a pretty powerful daily combo, and I am glad that it is working for you.
Given all the abx that you are taking, why do you think that it is the mino that is working on your neuro symptoms?
I am very interested in your answer to this, thanks! I am on 100 mg/mino every 2 days, and I think it is great. I want to increase, but my doc currently does not want me to.
Posted by Beverly (Member # 1271) on :
Glad you are improving!! Posted by MamaWolf (Member # 10578) on :
Good to hear it... glad you are feeling better! Posted by Pocono Lyme (Member # 5939) on :
I was making slow progress on Mino plus others, but when Rifampin was added I showed real significant improvement.
Most of my symptoms have been neuro..
Unfortunately was taken off of it. Posted by CD57 (Member # 11749) on :
I noticed the improvement in the neuro symptoms only once the mino was added....that's why I attribute the improvement to it.....
Posted by oxygenbabe (Member # 5831) on :
Minocycline is a neuro-CNS anti inflammatory. It has been used in Parkinson's I believe and is even being studied in autism soon.
Posted by Jellybelly (Member # 7142) on :
Mino has been the only abx I have used in smaller doses then you are taking. I am in a high degree of remission. I suspect that the use of heparin also played a major role, perhaps potentating the low dose mino.
Posted by wyo (Member # 13095) on :
I have been on 200 mg a day for 2 weeks now and think some of my symtoms are getting better all of mine have been neuro.
Extreme motion sick Trembling inside Panic attacks Dizzy Light headed Off balance Headaches Muscles jerking
Posted by Sparrow (Member # 11734) on :
Did you herx much on it? My daughter has just started on minocine and has never herxed so strong on anything--and we have done almost evertything. The script is for 100mg in the AM and 200mg in the PM. She was so sick, it was agreed to cut her back to 100mg/day for at least 2 weeks and then re-evaluate. She is still pretty sick, but she has only been on it 9 days. She has had a headache for 7 years now and we are hoping this one works.
Posted by kelmo (Member # 8797) on :
I hope my daughter has the same success. She has been taking only 50mg mino MWF for the past couple of weeks and it's KILLING HER!
We can't even think of adding anything else to it.
Did you ramp up, or did you blow right in for 100mg daily?
Posted by Vermont_Lymie (Member # 9780) on :
I had to ramp up quite slowly on mino. I could never have started on daily mino. Started on 50mg every 3 days! Now on 100mg every 2 days after 3+ months!
Posted by CaliforniaLyme (Member # 7136) on :
Nice to read, 57!*!*!
Posted by CD57 (Member # 11749) on :
My LLMD is very aggressive. He starts off with these kinds of doses and if you have problems he will back you off of them. Otherwise....off you go!
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