Since being diagnosed with Lyme 2 months after a miscarriage and within 2 weeks of exhibiting symptoms (CDC positive by Quest and MDL) I have only ever had 2 symptoms: burning pain in my left wrist and arm when I use them and chronic diarrhea.
I see a reputable LLMD (former past pres. of ILADS)and have been treated with doxy, ceftin (1000 mg/day), tindamax (500 mg/day), zithromax (don't remember amount, bart test neg.), nystatin and diflucan (suspected yeast, all tests negative).
I've never had any change in my symptoms nor have I ever had a herx from any of these treatments. My symptoms don't change from day to day nor are they affected by my monthly cycle.
I have been on the anti-yeast diet since June and have never once cheated and supplement with Theralac, Florastor and L-glutamine. But my left arm still burns when I use it (it's absolutely fine when I don't) and am still plagued with the diarrhea.
My job is threatening to fire me now for taking too many sick days and my dr. has stopped all my treatment for 3 months to see if the nerves get better with rest.
Everything I've read here recommends treating 2 months past the cessation of symptoms, so I'm confused by her recommendation to stop treatment. ANyone have any similar experiences or have any thoughts/advice?
Thanks! This site is invaluable!
Posted by tailz (Member # 10014) on :
Does your job involve video display terminals (computers)?
I miscarried when I was working with computers, and computers are known to cause miscarriages and a host of other things.
I didn't know I had Lyme at the time, but after reading 'Currents of Death', I believe these infections work together with artificial electromagnetic fields, and there are tons of studies out there suggesting that these fields are causing more problems than just miscarriages, stillbirths, and birth defects. Just think of what cell phones are doing.
Diarrhea (mostly soft, bulky stools) and enlarged lymph nodes in my groin were two of my hallmark symptoms. Some of the diarrhea was related to food allergies or intoleranes - all grains, dairy, eggs, red meat, fish, soy, seeds, high iron foods, chocolate, root vegetables. It became so chronic that I dropped to 88 lbs, yet my docs thought I was anorexic.
Minocycline seemed to clear my diarrhea up finally, yet one 8-hour day sitting in a waiting room full of cell phone users triggered my diarrhea all over again, and it took me days to recover.
Do you use a cell phone? Are you working with computers? You might want to read 'Currents of Death'. There is more than just a Lyme cover-up going on, and your health could be in danger.
Posted by frakktured1 (Member # 13028) on :
she probably stopped treating you because you don't react to the antibiotics you've taken and so you probably don't have lyme.
Look for something else.....
Tails has a good idea!
FXD
Posted by CaliforniaLyme (Member # 7136) on :
Be careful with that analysis Frak, I was nonresponsive for a year and a half of orals and IV before I suddenly became responsive and got better!!! And we knew it was Lyme and TBDs with me because onset was ECM rash and immediate illness- But Frak, that said, it may be true!! you may be right-!!
Tailz had a good comment re keyboards-
Re diarrhea- sounds silly but Peptol Bismol has bismuth in it which is highly effective with intestinal spirochetosis. Have you tried it and does it work for you temporarily? That would be a possible clue? As well, how high was your dosage of Doxy? My irrtibale bowel from Lyme was NOT from Lyme at all but from Ehrlichiosis and cleared up on high dose Doxy- and Ehr is OFTEN seronegative!!!
And have you been treated for babs at all or done an Artemisia challenge??? If you got Lyme you may have been exposed to many TBDs which could do that!!!