Many of you know me, I have been on here for over a couple of years.
My question is about my main remaining symptoms.
Morning nausea (no I'm not pregnant LOL), morning joint and muscle pain, and lack of energy / fatigue as the day goes on.
The way I see it, I have achieved a certain level of health -- MUCH better than 2 years ago -- but still only 50%. I have to adopt the attitude for now that I am still quite ill, and am careful about activities.
I took a breakfrom all abx in May. I take ayruvedic herbs, eat organically (no sugar), do yoga every day -- but that's it.
So, I wonder. What the heck is going on in this stage? I am thinking about going back on abx -- but I tell you, it has taken a few months just to recover from the damage they did to my intestines ...
My doc think I should try them for a month. If I herx, there is more abx therapy to do. I am hesitant . . . I mean, who wouldn't be? I don't want to get sicker again. I've patched back together a life. But I'll do it if it will work in the long run. Another idea is to try this experimental treatment -- see bodihealth.com.
Any thoughts?
Posted by luvs2ride (Member # 8090) on :
Jeff,
I did wonder when I saw your heading if someone named Jeff could be pregnant.
On a serious note, has any doctor tested you for rheumatoid arthritis? The morning joint and muscle pain and the fatigue are classic symptoms. Lyme disease can cause RA. Hopefully, your diagnosis will be negative, because it is not a good disease to have, but if you have it, it is good to know about it so you can treat it.
Luvs
Posted by Keebler (Member # 12673) on :
as for RA, if caused by an infection, it seems reasonable to keep treating the infection(s).
can you try a RIFE in addition to the herbs ?
a little glutamine can help heal the stomach lining, but not too much as if it converts to glutamic acid it can excite the brain.
I, too, have the morning sickness stuff - wonder if it's the toxin buildup overnight?
Posted by lymednva (Member # 9098) on :
When I first read your title my thoughts went to what I thought was morning sickness throughout my three pregnancies. It lasted all day though, and was mysteriously better when I was lying down.
It was only recently that I made the connection between how I felt and Lyme. My so-called "morning sickness" was actually dysautonomia, which became progressively worse over the decades until I couldn't even sit up for more than 30 minutes.
One of the symptoms is nausea, which is why I thought it was simply morning sickness.
Is that a possibility for you? I still have certain times that I have to lie down and after I've been flat for a while I can resume what I was doing.
I rarely get the nausea any more, but did when I had a tilt table test.
Posted by LZOChicago (Member # 8641) on :
Hi Jeff-
Have you looked into adrenal fatigue? Chronic stressors such as an infection often lead to this. If your fatigue levels change throughout the day, this could be a sign. Also, if you have more energy after dinner in the evening. Or if you feel better when lying down. Have you had your cortisol levels checked?
Posted by 5dana8 (Member # 7935) on :
hi Jeff
If you take a dose of carafate right before you go to bed it can help coat the stomach durning the night so it's not empty so long. I found this helpful for morning nausea.
Can you do any injectables?
How about rife?
I am sorry you have to go threw this. It's a tough decsion to make
Good luck
healing hugs dana
Posted by 5dana8 (Member # 7935) on :
Hi jeff
I just went to bodihealth. Is that a rife machine?
Posted by shoney (Member # 9925) on :
I wake up with horrible morning nausea. It could be from low blood sugar-someone suggested keeping a small snack by the bed, and eating it in the early am.
I also have poor adrenal function.
Posted by Marnie (Member # 773) on :
Don't ask me why the timing...but morning sickness(nausea with vomiting) absolutely can be a sign of a high level of serotonin (produced in our intestines).
Rx Zofran blocks excess serotonin. $$$
(Daughter had to take this Rx for excessive N/V associated with her pregnancy.)
If and when serotonin converts to melatonin (supposed to happen later in the day) = tired.
Melatonin is our #2 major antioxidant which has to kick in because #1 is kapoot.
#1 is glutathione. It needs several nutrients to make it...including cysteine, glycine and glutamate.
Bb has "zinc fingers" which are cysteine and histidine bound to zinc.
With cysteine low...(and likely glycine) = can't make glutathione.
Body says, "Hey, I need a back-up antioxidant!"
Melatonin is made from serotonin.
But...it also could indeed be from low blood sugar. You might need to have a glucose tolerance test run. You don't eat anything and they do a baseline blood sugar level and then they give you a lot of glucose and 2 hours later retest your blood level to make sure your cells are able to take up the glucose.
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