Was just diagnosed July 16 and started treatment that very same day. I had the rash with a painful swollen lymphnode under my arm by the bite. Had no other symptoms at the time. Then arond June 30th felt really tired. The lymph had gone down and the rash was going away but not totally. Started having slight leg pain around that time and felt really tired at the end of the day which was not usual. Went to the dr. and was tested with western blot and came back positive with 2 titers p39 and p41. Have been on doxy since 7/16 till now and on mino since end of Aug. My LLMD said I should be fine and I did herx at first after the meds and then just get joint pain here and there I can do everything and barely feel tired. Sometimes I forget I have it. Now I have twitching here and there. I go to Dr. F. in NJ which is really good. I see her next week and she said that she will take me off one doxy and then just take it once a day and one mino. She said I caught it but it was in my system for about 6 weeks b4 abx. So she said it dissemiated a bit. Does anyone know whats next? I do feel more twitching than slight joint pain. I also tested negative for bart, erlich, and babs according to the bloodwork. Posted by CaliforniaLyme (Member # 7136) on :
You have a good doctor and hopefully full remission is on the way*)!*)!*)!*! I am very glad to hear you are in good hands.
You can test negative for those other TBDs and still have them but Doc F can evaluate you for them. People DO get full remission- the more likely the less time since bite and you were caught very early- so your prognosis in general would be very good in my experience as a TBD support group facilitator for the past 8 years-
WELCOME to the board*)!*)! !*)!*)!*)!*!)!*)!**!!!! Sincerely, Sarah
Posted by rubjord (Member # 13586) on :
Thnks californialyme. Just the twitching is soooo annoying hope it finally goes away. I get it about 8 to ten times a day for about 3 seconds in different places other than that I can handle and do everything. How can she evaluate the other TBD's?
Posted by CaliforniaLyme (Member # 7136) on :
If you became symptomatic for them-!! Depending on where you are there are red flags- East Coast babs has anemia (not West C. WA1)Ehr/ Anap might show leukopenia Babs could have big bruises or Ehr too- swollenglands & itchyrashes- Bartonella! But you sound great*)!*)!! Twitching- heck, that's very Lymie*)! I had all sorts of twitches!!! Magnesium helps some people with this- it can get depleted in Lyme- Bestest quick recovery wishes!! Sincerely, Sarah
Posted by rubjord (Member # 13586) on :
Oh wow you seem to know alot. You also have mentioned a memorial page. That is sooo scary. What kind of cases are there? My husband says that it will only make me have anxiety. You said that children are there.
Posted by CaliforniaLyme (Member # 7136) on :
I didn't mention that on this thread, you must've read another thread I was on- but you shouldn't worry. Cardiac Lyme is almost always evident from the outset- and other than that the deaths are basically late neuro Lyme, which you don't have! So I hate to agree with your husband, but your husband is right- don't worry*)!!!!! You sound wonderful!!!! You sound great!!! Warmly & Sincerely, Sarah
Posted by rubjord (Member # 13586) on :
I just feel that there is such little awareness about Lyme. I do not or thought I did not live in a tick infested area its suburb and was bit. Just went to local nurseries for some shrubs to plant at my home around May. I thought for sure it was a spider bite. Then I got lyme. Then I saw on the news that New Jersey is having a problem this year and that it was the worst year ever. I have read that we are third in the nation to have the most lyme reports. Yet there is not enough awareness no commercials no bill boards nothing just on the news and paper. I would not have waited 5 weeks to get to the dr.'s I almost did not go I had virtually no symptoms. Will that change? There are sooo many people right now suffering from it and dont even know it. I also found out 2 of my friends have and caught it late because they tested negative and sent them home with some iron pills. There needs to be more awareness about this awful disease. thanks for the input this is a great board.
Posted by rubjord (Member # 13586) on :
When should I take the magnesium so that it wont interfere with the mino? thanks
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