I am very upset. A friend just told me to read an article in The Hartford Courant about a mother whose young daughter supposedly has Lupus. The authorities here in CT....Our famous Dr. Zemel (doesn't believe in chronic lyme)included ,have been giving the child toxic drugs to treat her.
The mother has done her research and has said...NO MORE DRUGS...that it is making her child worse and hurting her kidneys. They now have a guard at the hospital door and won't let the mother in. They may even take the child away.
Since when did children getting Lupus become normal and my thought is that it is Lyme disease and or coinfections that are making her ill and that the symptoms one presents with, depends on your genetics. The government is trying to take control of our children and we need to all speak out before it is too late.
I wonder how I could find out the phone number of this woman and if it would be ok to contact her?
Posted by TerryK (Member # 8552) on :
daystar, Years ago, my sister was diagnosed with lupus, then told that she didn't have it, then when she started treatment for lyme the lupus came back. Her lyme doctor has told her that her lupus will resolve with treatment for lyme.
This is the way it was explained to me. Lyme inserts it's DNA into ours. Our immune system gets confused and starts attacking us.
This subject came up awhile back and you can probably find that and other discussions by doing a search here.
I'm with you. It could be lyme. I can't beleive they are keeping the mother from her child. I've heard of this before from lyme parents. It's a crime!!!
Terry
Posted by bettyg (Member # 6147) on :
marj,
3 times dx lupus for me; no treatment! all after i lost 4"x4" patches o skinn on back rght shoulder.
can your friend look at newspaer article again and give you name of writer, email, phone no.
ASK HIM TO EMAIL YOUR ORWARDING INFO to family if he will not give you their name. thy then hve option of replying back IF they chose too, but you got info to them to think about thins further! good luck. Posted by daystar1952 (Member # 3255) on :
I guess I could write to the paper and give them my contact info to pass on to the woman...Thanks :-)
Posted by Nori (Member # 8983) on :
A neighbor of mine has lupus. Lyme was first suspected but ruled out by a LLMD. The LLMD treats the lupus with Placquinil, a drug used for malaria. My neighbor said it really helps her.
Posted by B R H (Member # 12159) on :
The topic of lupus came up during the early stages of my diagnosis, but never really "stuck."
Diagnosis of chronic illness is NOT down to a science. The problem is getting hung up on pinning a name on the illness! Who really cares?!? Why not search for the root cause & then treat that instead?
We have been taught that all diseases are discrete. Why get fixated on a diagnosis as an entity. It is not an entity, it shares a common pathogenesis with the other Th1 diseases. Treating all these Th1 diseases is the goal of the Marshall Protocol.
Posted by lpkayak (Member # 5230) on :
a long time ago there was a similar situation at a different hospital. people on here were able to help the mom get the child out. i don't remember who or how they did it. i think lawyers were involved. i don't think it will help to try to educate these folks.
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