Got my IGENEX results back today. Guess I am a little disappointed. I was hoping for more positive bands:
IGM All negative except 41 IND IGG All negative except 39 IND and 41++
LLMD wants me to do a 3 day challenge with Flagyl and Biaxin. Said if I herx any time during that time period they will start Lyme tx immediately. If I have no reaction he does not think it's Lyme.
My Labcorp ELISA was equovocal and Labcorp WB was positive for band 41 ( at least I am consisistent!). I did have the bite and the bulleye rash last summer.
Has anyone else done this challenge? If so, how did it make you feel? guess I am scared I will have no reaction because that means I will be back at square one!
Posted by Lymetoo (Member # 743) on :
That test result coupled with a BULLSEYE means you have it.
"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
----Dr C of MO
Posted by sixgoofykids (Member # 11141) on :
I agree with Lymetoo - a bullseye rash is diagnostic of Lyme.
My LLMD is treating my daughter based on symptoms and a test almost identical to yours, and she didn't have the rash.
Posted by yanivnaced (Member # 13212) on :
arc:
Are you asymptomatic?
If so, then why open up Pandora's box and start abx at all?
Posted by Geneal (Member # 10375) on :
If it is the LLMD I am thinking about, then I know why the challenge.
Same thing with my neighbor's 8 year old son.
Same type of bands.
Same type of challenge.
Thing is he didn't herx until his 3rd challenge.
He is now on consistent treatment.
He really wasn't as symptomatic as my children were unless you count
The hyperactivity.
I know this LLMD won't treat unless you have symptoms.
Maybe the biaxin and flagyl will stir things up a bit for you.
Hugs,
Geneal
Posted by B R H (Member # 12159) on :
I agree with others that a rash is a bad sign. I had multiple recurring rashes but my first "Lyme tests" were not positive per CDC guidelines. After a failed course of doxycycline, & months of suffering, a retest came back VERY positive!
Don't forget that the IGeneX Lyme Disease Western Blot is only an antibody test. This test can only indicate whether or not your body recognized the pathogen & generated a sufficient quantity of antibodies to be detected.
Considering how conservative the CDC guidelines are + how many known species of borrelia there are + borrelia's tenacious potential for "mutation" via horizontal gene transfer, it's not surprising that so many patients suffering from chronic infections (that seem to have started with borrelia) never test positive.
You don't have to have a positive test result to be infected!
***URL=http://www.marshallprotocol.com/forum37/3139.html] Post Treatment Lyme Disease Syndrome/URL***
BRH,
If you're going to sneak in links to the Marshall Protocol forums, please don't try disguising them as "Post Treatment Lyme Disease Syndrome." Most of us wouldn't bother reading anything with that title anyway.
30th Anniversary of Lyme=Marshall Protocol film.
It would save everyone a lot of trouble if you'd just put what it is you're actually linking to.
Michelle
Posted by Lymetoo (Member # 743) on :
Over and over and over.
Posted by B R H (Member # 12159) on :
That is simply the title of the thread in the Marshall Protocol forum that contains a LOT of information on what some people simply call "Chronic Lyme." There is clearly no concensus as to the root cause of Chronic Lyme Disease. I think Post Treatment Lyme Disease better describes the symptoms that remain for some after conventional treatments for the acute phase of Lyme have failed. Post Treatment Lyme Disease Syndrome is also the name used in their pending FDA application.
I add links to the Marshall Protocol forums because the abundance of information on that website is not easy to find.
You clearly don't have any interest in reading what I post, but your post letting everyone know isn't very constructive. I only hope someone finds the information as helpful as I have.
![[Big Grin]](biggrin.gif)