aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi there,
Have read some of the other posts here on Metronidazole.
Have black outs and severe low blood sugar on Flagyl.
Allergic Fixed Drug Eruption on Tindamax.
And Mino had chest pains and trouble breathing.
Is anyone here taking another cyst buster?
Have been on Tindamax off and on since maybe 2004 and just since Jan/2007 have an allergic reaction.
Have taken all types of orals and IV.
What else can I try.
BTW, have Lyme, EBV and Mycoplasma.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Um, I know it is currently in vogue in Lyme tx, but I really don't believe you need to take a cyst buster to get better!!! Just my 4 cents!*)!! In the summary of ILADS guidelines they don't even mention it as a therapeutic option!!!!!
So I wouldn't worry about it!!
Have you been on Bactrim??? It is one of the only orals I have seen bring years-longterm chronics intro full remission. They have used it more in Europe than here- but you can't use if you are allergic to sulfa! It is a sulfa drug. Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi CALyme,
I've been on Bactrim/Septra for almost a year now along with Amoxicillin.
Went through entire LLMD protocol once already for two and a half years and started treatment for Bartonella in Dec/2006.
For the past two months am redoing my lyme protocol.
Have been on many orals since 2004.
Thanks for the heads up on Bactrim though. Do you know how long to take it? Almost a year for me.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
It had done its magic by then for the woman locally I know-!!! She stayed on it a long time though- and there is some reason you are NOT supposed to do that if I remember right- came up on the board recently- will do search!!! AHA, found it, Treepatrol posted about longterm use of Bactrim being dangerous because of this- so make sure oyu don't have that going on!!!
As follows:
3. Thrombocytopenia - Reduced numbers of circulating thrombocytes (less than 7O,OOO/mm3 of whole blood) will lead to a severely reduced clotting capacity of the blood. Conditions leading to this disorder include:
a. Autoimmune destruction of thrombocytes - This condition may be relieved with cortisone.
b. Damage to red marrow as a result of exposure to radiation or toxic chemicals.
c. Long term use of sulfa antibiotics, e.g., Bactrim.
UNQUOTE
DOn't know what else to tell you! Have you been treated for Babesiosis, Ehrlichiosis??? Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
This falls under the category of "alternative," since there is speculation but no research:
Bee venom and proteolytic enzymes have both shown some good results related to cyst busting. Bee venom has been shown in lab testing to kill spirochetes in vitro.
I have had very good results with both of them myself, but can't prove the cyst busting effects, of course.
I can say personally that I went on a pretty high and extended dose of Flagyl and herxed very little after using the above treatments.
In any case, a good brand of enzymes can't hurt, because they reduce fibrin where lyme can hide. My doctor gives me Bioset Protease Plus, by prescription only.
Good luck with your treatment.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I recently took a cyst buster and I have never been sicker in my life. Horrible symptoms. It was obviously doing somethng significant. I'm in the process of researching now.
I also found this interesting. I have no idea if it is valid but Sarah, you might know this author, at least I think I've heard his name around here?
1: Med Hypotheses. 2006;67(3):592-600. Epub 2006 May 3.
Plaques of Alzheimer's disease originate from cysts of Borrelia burgdorferi, the Lyme disease spirochete.
MacDonald AB. St. Catherine of Siena Medical Center, Department of Pathology, 50 Rte 25 A, Smithtown, NY 11787, USA. [email protected]
Here is hypothesized a truly revolutionary notion that rounded cystic forms of Borrelia burgdorferi are the root cause of the rounded structures called plaques in the Alzheimer brain.
Rounded "plaques' in high density in brain tissue are emblematic of Alzheimer's disease (AD). Plaques may be conceptualized as rounded "pock mark-like" areas of brain tissue injury. In this century, in brain tissue of AD, plaques are Amyloid Plaques according to the most up to date textbooks.
In the last century, however, Dr. Alois Alzheimer did not require amyloid as the pathogenesis for either the disease or for the origin of its plaques.
Surely, amyloid is an event in AD, but it may not be the primal cause of AD. Indeed in plaques, amyloid is regularly represented by the "congophilic core" structure which is so named because the waxy amyloid material binds the congo red stain and is congophilic. However an accepted subset of plaques in AD is devoid of a congophilic amyloid core region (these plaques "cotton wool" type plaques, lack a central congophilic core structure).
Furthermore, there is "plaque diversity" in Alzheimer's; small, medium and large plaques parallel variable cystic diameters for Borrelia burgdorferi.
Perturbations of AD plaque structure (i.e. young plaques devoid of a central core and older plaques with or without a central core structure) offer room for an alternate pathway for explanation of ontogeny of the plaque structures. If amyloid is not required to initiate all of the possible plaques in Alzheimer's, is it possible that amyloid just a by product of a more fundamental primal path to dementia?
If a byproduct status is assigned to amyloid in the realm of plaque formation, then is amyloid also an epiphenomenon rather than a primary pathogenesis for Alzheimer's disease.
In the "anatomy is destiny" model, cysts of borrelia are always round. Why then not accept roundness as a fundamental "structure determines function" argument for the answer to the mystery of why Alzheimer plaques are always round?
Parataxis causality, a concept borrowed from philosophy, is the error that comes from linking two events, which occur contemporaneously or in close proximity to one another with a cause and effect relationship. Parataxis tells us that what appears to be cause and effect in the couplet "amyloid plaque" merely by a proximity relationship may be "spurious causality" which is a cognitive dead end.
PMID: 16675154 [PubMed - indexed for MEDLINE]
Posts: 6286 | From Oregon | Registered: Jan 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I've heard that Biltricide might be a cyst buster.
I couldn't take minocycline due to hyperpigmentation. Was on bactrim for about a month. LLMD took me off due to elevated liver enzymes. We don't know if bactrim caused the elevated enzymes or not.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hi friend,
Have you noticed a new person from Alaska joined us? ....AKmom I told her you were here.
BTW, I have some GSE if you need it. It's available at Dayspring.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Thanks all for the info.
Hshbmom, thanks for the heads up in regards to fellow Alaskan.
She already pm'd me.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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