This is topic Mhyastenia + lyme anyone? in forum Medical Questions at LymeNet Flash.


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Posted by seewater69 (Member # 11433) on :
 
Hi,

I have recently seen a neurologist who has told me I might habe mhyasthenia. HAs anyone here been diagnosed with this?

thank you
 
Posted by treepatrol (Member # 4117) on :
 
I think a couple here over the years.
If it is Myasthenia Gravis make sure you dont take Ketek abx for some reason it reacts with it badley.

Your chances having Lyme are greater.
What are all your symptoms?over the years?


http://en.wikipedia.org/wiki/Myasthenia_gravis
 
Posted by tailz (Member # 10014) on :
 
I had developed equivocal anti-striatal muscle antibodies. (My anti-acetylcholine, or whatever it is called, was okay though). I requested a referral to an ID doc because I's suspected some sort of infection, but my PCP only wanted to send me to a neurologist and a rheumatologist. She told me that if I had myasthenia gravis, my brain would essentially no longer be able to signal my lungs to expand, and I would have died of respiratory failure.

Don't believe him! I wasted away with antibodies to smooth muscle, and I don't think I'd be alive today if I'd have gone along with the neuro consult they mapped out for me.

Consider Lyme, coinfections, yeast, and microwave sickness/electrical sensitivities.
 
Posted by seewater69 (Member # 11433) on :
 
Hi,

I have lyme, now I have developed also symptoms that made the neurologist think about mhyastenia gravis, she think I have only that now, I think I have both so it is a dangerous mess
 
Posted by seewater69 (Member # 11433) on :
 
Hi Tailz,

it is awful! I have respiratory problems,and they are getting worse.

Why do you say i should consider yeast, do you think it can do all this?
 
Posted by tailz (Member # 10014) on :
 
I'm not really sure which bug was causing my respiratory problems, but my tongue was always white when my symptoms would flare, so I suspect that yeast was at least part of the problem. This still happens. Check your tongue when you have these symptoms, and pay attention to any funny tastes in your mouth. I'm not saying it's just yeast - most likely it is several bugs.

I tested positive for Lyme last fall and again this past spring. And this fall I finally tested positive for babesia. Minocycline gave me the worst herx, though Ceftin was killing something, too. Metronidazole helped at one point. Diflucan makes me sick though.

I had horrible, horrible respiratory symptoms though. That and diarrhea were extreme - I dropped to 88 lbs and looked like I was starving. One whiff of perfume and I felt like I was going to suffocate. I thought I'd die passing the detergent aisle at the grocery store and then having to drive through pollution to get home. My gums would turn blue on me - I was calling my sister at 2am because I thought I was going to die in my sleep. A few times I did doze off and I think that is what woke me up - I stopped breathing.

Do you have diarrhea along with the breathing problems? I think food allergies just made things worse for me. I would suggest until you rule out this possibility and figure out what yours are (if any) that you eliminate as many of these as possible, because food allergies caused my breathing difficulties to worsen tenfold:

milk/eggs/dairy (I had an egg allergy), all grains (they make me dizzy about 24 hours after I eat them now, though I tested negative for wheat anyway), root veggies (crushing pain in my chest), fish, meat. What's left, huh? [Wink]

Mastic gum helped some of my symptoms - this kills h-pylori, and I did really well with this one. The center of my chest used to sweat, but this has stopped since I started this herb.

I honestly wasn't sure if it was my lung, my heart, my esophagus, or my stomach - just something in my chest hurt like a bugger, and boy did I sweat with the pain. I bought mastic gum off the internet - I don't remember seeing this one in healthfood stores.

But I post a lot about electrical sensitivities and microwave sickness on this forum - please consider this as a possibility.

I've been reading that electromagnetic fields cause yeast to grow a lot faster. These fields also make at least one type of worm more fertile. They also increase histamine, so if you do have electrical sensitivities, you are essentially allergic to electricity.

I actually measured them with a gaussmeter (Trifield), though I'd like to get a more sensitive meter.

I'll include a few links with this post. If you do think you have electrical sensitivities, PM me and I will give you a ton of additional info - including an online support group that I found. They are actually trying to set up EMF-free areas so that we can actually function and live.

Here are some links (I have tons more):

Asthma and Ions:

http://mypage.direct.ca/g/gcramer/asthma.html

Do You Have Radiowave Sickness?

http://www.cassmd.com/microwave.html

A Swedish researcher sent me this:

http://www.bioinitiative.org/report/index.htm

America Unplugged:

http://emrnetwork.org/faq/clear.pdf

I spoke with this man:

http://www.twnside.org.sg/title/2118.htm

Interview with Dr. Robert Becker:

http://www.energyfields.org/science/becker.html

Interview with Louis Slesin:

http://tinyurl.com/23krj2
 


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