I could not help but to raise your spirits what with it being the holiday season and all.
As we all know LLMDs can be very expensive and most do not take insurance which means cash out of pocket.
Well-I faced this. There is one LLMD here in Seattle. I have sent him over about 11 patients I was sure had Lyme-and they all do. His business has been raised to where he only sees Lyme patients.
I fell on financially hard times-he did not offer a discount or see me whatsoever. So a reminder that sadly this still remains a business for a ton of them. I guess they have to pay their bills.
SO...I quit taking meds. I survived fine for a year. I now have great insurance.
My regular GP and the neurologist he sent me to WITHOUT ELIZA all agree on Lyme. Either I have convinced them (but I did not try hard at all) or they just did.
It am very excited. This neurologist is amazing-young-kind-attentive and thorough.
Happy Holidays.
Posted by tdtid (Member # 10276) on :
Wow...definitely a minority...since I saw four different neurologists in the five years of my undiagnosis and didn't even get close.
Hopefully other neurologists will start to follow suit and good luck.
Cathy
Posted by kitkat32 (Member # 9682) on :
I have been lucky with my neuro recently too.
He didn't dx me with lyme but agress that all of my syptoms sound like lyme. He sees me for follow ups and check ups to make sure nothing else is going on.
He mentioned to me that one of his colleuges son was dx'd with lyme. He said they used Igenex as thier lab. He was the only doctor that would write me a script for Igenex testing. He didn't know how to read the results but he at least got them done.
Now my LLMD handles everything but still sends me back for check ups.
kit
Posted by CaliforniaLyme (Member # 7136) on :
YAY*)!)*!*)! !*)!*!)*)!
There are angels walking among us*)!!!!!!!!!!
Posted by bettyg (Member # 6147) on :
welcome mg to the board!
please copy your UPPER post, and paste it in GENERAL SUPPORT IN SUCCESS STORIES! we all need to read positive things like this! thanks for sharing.
i'm sending you a private message of my 83 newbie package of links, advise, symptoms lists, testing, disability, and much more including treepatrol's archive of over 1000 links of good lyme info! happy holidays.
to find PMs, go to top left under HELLO by flashing light and in my profile! Posted by Lymetoo (Member # 743) on :
What a happy shock!! Posted by canbravelyme (Member # 9785) on :
What a relief!
Thank you for taking the time to share this with us.
Perhaps we should keep an eye on neuro, and see how it goes; perhaps he will be an addition for Betty's list in 6 months...
Best wishes,
Posted by MisterGreen (Member # 13996) on :
I must also share...
What makes this extraordinary is that I have the MS form of the disease. Lesions in brain and c-spine SO for a neurologist to do this is out of this world.
My IGENEX 31 band was very positive. That is probably why I am so shocked.
Posted by map1131 (Member # 2022) on :
One down. Dreams really can come true. Now for the remaining quack quacks. Would everyone work on your favorite quack and educate them. Okay?
Oh and be sure to charge them as much as they charge us. lol
Pam
Posted by Peacesoul (Member # 13709) on :
That is great news. Eventually, the news will get out there and many other dr's will listen,
My story is...I live in Canada where there are ONLY two LLMDs in the entire country. I had to drive down to NY to see mine. And since I cannot fill rx's that an American dr gives me, I had to go to my Rheum who originally dx'ed me with Lupus and tell him my discovery. He was floored, agreed to treat me, agreed to talk to my LLMD (On his own time) My rheum heads the lupus clinc at one of the largest hosp in the city and told me because of all the info I broughtto him, he's now questioning his other lupus patients. He's going to try to organize funds to have some lupus patients tested. He's on board with me on this and I'm sure many other dr's will soon be as well. In canada, it's not nor will be a money making biz like some of the greedy US dr's.
Posted by CaliforniaLyme (Member # 7136) on :
So I run a Lyme hotline and recently I got a call from this guy, he was a 20 year jogger in Nisene Marks State Park (highest % Lyme in all of CA) and he saw a support group flyer there and called.
"Is there really Lyme in CA?" he asketh me.
Well, you know what he got- statistics, statistics, statistics!!! After a few minutes he alluded to "the place where I work is medical" and "where I'm on staff" and then a few minutes later, "I AM a doctor... so this is very interesting to me"!*)!!!!!!!!!!!!!!!!!!!!!!!!!!!!
And he told me where he worked and I took him a whole gift bag full of stuff- DVDs from ILADS, books, pamphlets!*)!*)!*!)!
I was so happy I was singing in my car-
And at our last group someone said that their LLMD who just treats a few people in town said, "Just lately physicians in town all seem to be open to Lyme-" (not verbatim, sometihng like that!!)
So times they are a-changin'!*)!*)!*)!!
The more of us there are, the less of THEM()!!!
Every person with MS who DOESN'T end up in a wheelchair is our best advocate just by living their lives*)!*)*)!!
I hope things change faster, because sometimes it still seems bleak! I am so glad about your neurologist!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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