Theres a lot of people here getting diagnosed with different things that in the Dr 's world is just another way of saying this is the name of your symptoms.
MS,ALS,Lupus,Parkinsons. If you have a possitive Lyme Test or herxed from the abx's go with it you have lyme.
All these other names are syndroms LYME is real caused by a known culprit Borrelia.
Like someone gives a diagnosis of POTs which lyme can cause,or say or a heart attack mycardial infarction lyme can as does cause, in MS its demylating the nerves well guess what lyme causes that to lyme cause just about ever dang disease symptom at one time or another. huh even bone spurs kidney problems ie glomerular nephritis, abbreviated GN, liver etc etc .
To many cooks ruin the batter. ie Drs
Just some thoughts. Posted by map1131 (Member # 2022) on :
I completely agree. Tooooo much treatment of symptoms and not enough "let's get to the root of the cause". Do they really not have enough time for all of us that are ill?
Is it that they are clueless? My own lyme literate doctor (not LLMD) told me in October when I went to him with some new elbow sx happening "not everything is related to the lyme".
Well sure enough I'm now having another flare-up on my elbows. My doc doesn't know every sx I've dealt with for 7 yrs. Some of them would cause him to think I need to be in the loony bin.
Something is attacking the skin on my elbows and also have acute pain in the elbows during use of them. This is completely new. It's not the same as my knee pain, ankle, wrists. It's different.
Now I have to tell him....it is related to lyme & company. Now lets do this test for uric acid levels.
At least I'm blessed enough to have a doc that doesn't put me away.
Pam
Posted by treepatrol (Member # 4117) on :
I also think that its safer to stick with one llmd rather than 30 opinions muddying the waters of the LLMD's mind Posted by TerryK (Member # 8552) on :
Good post treepatrol. I'm just now contemplating trying to get someone to help me with my hyporeninemic hypoaldosteronism which seems to be causing my massive fluid/weight gains at the moment. Been in lyme and co-infection treatment for over 1.5 years and I'm still having major fluid problems and many other symptoms.
In research today I found that infection is listed as a possible cause of this problem - viral usually. I'm convinced it's lyme and co-infections but what do I do in the meantime??
In principal I agree. Let the LLMD handle it. In reality I believe there are times when we must have help that our overworked LLMD's are not able to give. The only reason I know that I have this problem is because I sought help. This was prior to the lyme diagnosis. This particular problem can cause elevated levels of potassium which can be fatal. I've had elevated levels of potassium but of course not fatal but this is something I should be aware of.
I guess what I'm saying is that some of us may take years to improve our underlying condition and frankly I'm not sure that this particular problem isn't permanent after so many years of infection. I think symptomatic help is really necessary in some cases because it doesn't only help with symptoms but may take one from being non-functional to a more functional state such as in the case of POTS and orthostatic hypotension.
I think your message is a good one but each case is different and I think it is important to make sure that there are no underlying illnesses that could be severely limiting or even life threatening whether caused by lyme or not.
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