A new NP said that the doctor would probably want to take my daughter's tonsils out.
I do remember my sister being thin susceptiable to viruses. After tonsilectomy she became pretty much healthy as a horse.
My daughter is somewhat interested as she could get some sympathy from friends and relatives who don't get lyme.
So, has tonsilectomy helped anyone's lyme recovery here?
Char
Posted by sixgoofykids (Member # 11141) on :
I had my tonsils out at 5 ... I didn't get Lyme until years later.
Posted by ElaineC (Member # 9857) on :
I had a Tonsillectomy in November 2002, and it made no difference whatsoever! If anything the throat and gland problems got worse. My tonsils had completely rotted with infection, but unfortunately removing them wasn't enough to make a difference!
Posted by Parisa (Member # 10526) on :
Char,
I can't speak as to whether or not it would help with the Lyme as I don't have it but I did have a health issue with my tonsils. In my twenties, I had a very bad case of mono. My tonsils were affected but that was just "part of having mono."
After about six months, I was back to about 80-90% I could go to school, work some, etc. However, if I stayed up too late, did too much, I would feel it and have to stay in bed for a while.
Flash forward a year later, I was in Mexico and was sick. The doctor told me my tonsils were bad. I told her, no they're fine. She repeated that they should really come out. I hadn't had tonsillitis so I didn't understand why she wanted them out. What I did have however was constant lymph gland soreness in my neck which I associated with the mono.
Four months later, I had a full blown tonsillitis attack. After I recovered, I had my tonsils removed. What a difference! I was finally well.
My tonsils had huge pockets that were collecting all sorts of garbage and were in a state of constant low grade infection.
So, if your daughter's tonsils are bad, it may not cure her of Lyme but it will get rid of a source of infection that affects her general health and will impede her recovery from Lyme.
Posted by monkeyshines (Member # 6406) on :
No. I had mine out specifically as lyme treatment. The tissue that was sent to MDL in NJ came back negative, and I've had no improvement of any of my symptoms.
It hurt though!!
monkeyshines
Posted by Aligondo Bruce (Member # 6219) on :
I'm one of those people who developed mixed sleep apnea along with neurolyme. I can tell you that it has nothing to do with weight. Anyway, having my tonsils out not only had zero impact on the neurolyme, it had zero impact on the apnea. In fact, they removed not only the tonsils but also the uvula and restructured the back of my mouth. It didn't do a darn thing.
Meanwhile, and most interestingly, a recent course of levaquin is resulting in dramatic improvement of all symptomology including strangely enough an apparent resolution of the sleep apnea. My blood pressure is back to normal without medication. Confusion is g and other neuropsych issues like obsessive thinking are oing away, as is somnolence. The somnolence, confusion, etc. were a big problem even though in the past I used a CPAP to breath at night {it WAS effective versus the apnea} However I still felt horrible and this was due to encephalopathy.
In short, IMO, having your tonsils out is probably not going to help. Finding the right medicine etc. will help. I've been told and suspect that a big problem that has kept me sick for so long was an attendent 'BLO' infection. Apparently there is something out there that only responds to levaquin. Bartonella? IDK. But IMO, if you've had a course of rocephin and are still substantially ill, test for bart and regardless of result try levaquin for a bit and see what happens. My bart results were low positive. Burrascano says that the current testing is useless. I used to view his comments with skepticism, but I can now tell you that this guy is pretty much 100% correct IMO. Someday he'll be viewed as a medical hero whose efforts saved thousands from the morass of the IDSA hitlerites' evil plans for permanent subjugation and disability.
Sorry for the monologue. The one benefit of tonsillectomy is a long term script for opiates, and that will make your existence more pleasant while you are on them!
[ 02. August 2008, 03:17 AM: Message edited by: Aligondo Bruce ]
Posted by Nori (Member # 8983) on :
I had to have my tonsils out when I was 36. I had smelly white stuff coming out of them, but then developed big fevers and big swollen lymph in the neck and under the arms. I had the tonsils out and that went away and I was fine. No one bothered to check for any infection at that time. This was before lyme/co, But I think this was an earlier indication of a lyme/bart infection that I am now fighting that was not discovered