about 40 min ago I noticed my vision was getting blury. Now its so abd i can not see what i am typing tight now. and the screen is very close to my face. i can not see the keys, thank god i know how to type very well with out looking.
i can not see my hand well just holding it only a little bit away from my face.
I do not know what is going on. please help. Does anyone know what this might be. I am scafred and i do not know what to do.
I had my picc line put in (my 2nd one) today and i was about 30 min into my first infusion of vanco that i have done in the past week.
please help.
if you have an idea of what is going on plese cal me, i will not be able to read a ressponce. post a responce and i will have my mother read them. But if you really know what is going on, do call me.
813 205-3182 my name is skyler.
i hope eberyone hav a great holiday season.
scared and blind, sky Posted by Lymeblue (Member # 6897) on :
can I call you now?
Posted by TF (Member # 14183) on :
Skyler,
I had something like this happen to me once. First my vision was affected. Then, my strength, then the ability to think. I felt I was going far, far away. I wondered if I was dying. I couldn't walk, etc. This all happened within the space of a few hours.
After a number of hours, I returned to normal.
So, try not to worry. Hopefully, it will pass shortly.
Posted by TF (Member # 14183) on :
Skyler,
I had something like this happen to me once. First my vision was affected. Then, my strength, then the ability to think. I felt I was going far, far away. I wondered if I was dying. I couldn't walk, etc. This all happened within the space of a few hours.
After a number of hours, I returned to normal.
So, try not to worry. Hopefully, it will pass shortly.
Posted by phage (Member # 5533) on :
I think any medical orphan who has vision problems should be aware of intracranial hypertension (aka pseudotumor cerebri). When you see an ophthalmologist about your current vision problems, make sure he/she evaluates you for swollen optic nerve heads (papilledema). Intracranial hypertension can make some patients blind in a short period of time. If the doc says you do have swollen optic nerve heads, but says it is drusen, not papilledema, you may want to consider requesting a lumbar puncture anyway if some of your other symptoms seem consistent with intracranial hypertension. Lyme can cause intracranial hypertension. Other things can too.
That may not be it. It's just an idea.
Posted by pineapple (Member # 11904) on :
Skyler are you OK? I did not see this post until now, but I hope you sought emergency care. Any sudden blindness is considered an emergency.
I hope you at least were able to contact your LLMD today. Can we have an update?
Hope you are ok
Posted by tdtid (Member # 10276) on :
Just called your house but got the message machine. Have written you a private note.
Cathy
Posted by Skyler (Member # 11549) on :
Thank you all so very much!!!
phage - i was thinking the same thing. worried that it might be something like that.
Last night, about 3 hrs after the sudden onset of very blury vision that was getting worse it started to get better and just as fast as the onset. So it about 20 min i was almost back to normal.
My mother was thinking it was herx related. I am still unsrure. All i know is now I am better.
Thank you all for the phone calls and the responces! Everyone here is so kind. Thank you so much!
I hope everyone is doing well.
much love, skyler
Posted by lymeladyinNY (Member # 10235) on :
How scary, Skyler! I'm glad you can see again, but I think you should get checked out and tell your LLMD!
Better to be safe than sorry, especially for something so important as your sight!
Hugs to you, Julie
Posted by tdtid (Member # 10276) on :
Since I've had some horrid issues with this sight stuff, my only comment was about getting it checked out by a doctor.
I know for me...it was too short lived and by the time they get you in for the appointment, it's already passed and they see NOTHING at the eye doctors.
I've been in during times when it was severely blurred, was in once for double vision, for floaters and by the time it turned to total darkness, I was NOT going back to anymore eye doctors that don't have a clue of lyme.
My LLMD said it was probably bartonella and we have focused on that. It's not happening nearly as often as it use to. The first time, it scared me to death, which is why I could relate to the note of Skylers.
Actually, the first time it happened, I was on the Saturday night chat and saw the screen getting fuzzier and fuzzier. I don't even remember who was there that night, but I was talking about how bad things were getting and when everything went dark, I had no choice but to shut down. But lord knows what I must have been saying as I was panicing.
In any case.....I'd definitely run it past the LLMD but as far as the eye doctors, if you've been once for any of this, you will probably feel as I do...it's better to save your money.
![[Eek!]](eek.gif)