Besides my legs feeling like lead on and off when I run these days and achy shins, my chest felt like it was buzzing in the area near my heart, or was it my ribs, or chest muscles...can't really tell
I felt this after finishing my run, sitting on the couch.
Do you experience this?
I know that aerobic exercise may not be good for LD, but I don't have a LD diagnosis, just "probable MS"....
I'm insisting on exploring LD, even though my neurologist said it's a bunch of "bulls**t"
Lyme titer blood test 12/28/07, appointment w/ LLMD 1/10/08...
Exercise is one thing keeping me sane these days.
This may or may not be true, but in my mind, if I stay active, eat well, stay hydrated, sleep, stay positive, maybe I can stave off some disease progression....whatever I may have?
Posted by disturbedme (Member # 12346) on :
I have the 'buzzy' feeling in my chest/stomach but only notice it after I sneeze or cough. My stomach feels like it's 'buzzy' or tingling.
Did your neurologist actually come out and say Lyme was bullsh***, those words exactly? If so, s/he really makes me disgustingly angry.
The titer will probably give you a negative. Titers are notorious for giving false negatives. They are worse than other Lyme tests and all Lyme tests aren't very accurate, sadly, and give false negatives all the time.
It's good you have a LLMD appointment set up though! Good luck...
Posted by tracisuzanne (Member # 14105) on :
YES
Actually the exact statement was "the info you find on the internet about LD is a bunch of bulls**t"
I brought my husband to this appointment because the MD was to discuss the MS medication options...
My husband was SO ANGRY at the MD....very cold, calculated....
He had previously told me (over the phone) that I have 6 white matter lesions "not impressive" and "not classic MS"....I cried nontheless....
During that medication explanation appt. he said 9 lesions...and I very quickly said "9.....you said 6" and he very flipantly said "well....I added wrong, some were hard to see"....
I then felt sick to my stomach....9 is 3 more than 6....and they're on MY BRAIN!!!!!!!!!!!!!!!!
Can I get a little feeling, maybe "I know this tough".................."I'm sorry"
Posted by justwondering (Member # 12813) on :
Tracisuzanne,
so sorry to hear about your experiences with your doctor.
How can someone become a doctor to help people and then treat them so coldly?
I have seen it many times before, too...
If you do receive an MS diagnosis, please please please go ahead and get extensive testing for lyme!
The more people you communicate with on this board and the more you learn, you will find it is all too common for people with Lyme to be misdiagnosed.
My mother was diagnosed with MS in 1987 after symptoms consistent with the disease and brain lesions.
Within the past year, all 4 of her daughters (my sisters and I) have been diagnosed with Lyme after lifelong symptoms.
Is our Lyme congenital? Did our Mom really have Lyme or MS from Lyme?
We'll never know for sure.
But the uncertainty of it all scares us and I like to get the word out there to other people being diagnosed with MS or probable MS - just in case.
I am definitely not an expert or a doctor.
I just hope you seek out the best Lyme and co-infection testing and find a doctor who CARES about you.
So sorry you are dealing with this and please please keep me posted.
Jackie
Posted by tracisuzanne (Member # 14105) on :
Thanks justwondering.
I appreciate all the feedback I have received so far!
![[Smile]](smile.gif)
Jackie