My first symptoms of Lyme and its co-infections were shortness of breath and a bounding pulse. I initially thought I was having a heart attack. I rushed myself to a hospital and was told I was not having a heart attack or a stroke. I was told to see my gp. My gp hooked me up to a EKG machine and informed me that I had right ventricular hytropothy, but he wasn't worried about it. I was worried about it, and did some research I found that it could be pulmonary hypertension, I took that and got tested for it, it came back negative.
Well this lead me down the road to discovering Lyme disease and Babesia, but not for another 4 months. By this time I was suffering joint pain, tingles in my hands and feet, crushing fatigue, night sweats, and many other symptoms. After getting diagnosed and starting treatment, it seems that many of my secondary symptoms have retreated to the point where I can live with them, but the shortness of breath and the bounding pulse hit me daily. With the shortness of breath I have an incredible amount of phlegm.
Sorry to have drawn this out, but I am starting to get very frustrated. I am currently on 400mg doxy daily, 2tsp of mepron, and 500 mg azithromax. I have been diagnosed with Lyme and Babs by IGenex. Why is the shortness of breath, phlegm, and he bounding pulse not getting better? I've been on the mepron azith for about a month, doxy for a few months, prior I was on amox, biaxcin, flagyl for 5 months.
Am I doing something wrong? Any suggestions would be appreciated. Thanks in advance.
Wishing everyone a safe and happy new year,
Posted by savebabe (Member # 9847) on :
Have you ever tried septra? This drug works great for babs, bart and lyme.
Posted by Geneal (Member # 10375) on :
Have you considered POTs and NMH?
I too have had major issues with shortness of breath/air hunger,
Rapid heart rate and low blood pressure.
Am being treated for POTs and NMH and that has helped.
However, I still at times have the air hunger and other babesia symptoms too.
Hugs,
Geneal
Posted by gopats (Member # 5218) on :
I had to go on beta blockers and Lorezapam for a year to get this under control. It returned recently and I'm just trying Lorezapam now. It does interfere with sleep. This was one of my first symptoms. I also had a very rapid heart rate. The shortness of breath was more like being unable to take a deep breath. When I yawned I felt like I was getting enough oxygen. I notice the muscles were tightening in my chest and back because I was over compensating for the shortness of breath feeling. The lorezapam helps with that - especially when trying to get some sleep.
Check with your doc. I had a hard time with Mepron.
Posted by h8lyme (Member # 11765) on :
Thank you three for the quick responses. Savebabe, I will ask my doc about septra.
Geneal, what is POTs? I did a search and there are many references on the boards to POTs, but nothing that explained what it was. The NMH I was able to find using the search function. I will ask my LLMD about it, I am not scheduled to see him till Feb.
Gopats, I hope that you are able to get some sleep. I will ask my LLMD about the beta blockers and Lorezapam.
Posted by AZURE WISH (Member # 804) on :
so am I right that you have only been treating the babs specifically for about a month (with an antimalarial)
If so, a month is not that long to treat babs.
My pulse is fast I get the shortness of breath too (among other things) I know its not fun. I hope you start feeling better soon Posted by AZURE WISH (Member # 804) on :
here is a link to a thread I started titled "how far into babs treatment before you started to feel okish"
happy new year Posted by klutzo (Member # 5701) on :
I am suffering from low pulse with occasional bursts of atrial fib right now, and coughing up phlegm as I type this....you have my empathy. My ankles also swell when this happens.
To answer your question: POTS stands for Postural Orthostatic Tachycardia Syndrome.
Klutzo
Posted by h8lyme (Member # 11765) on :
thanks for the replies azure and klutzo.
Yes, I have been on babs medication for a month, I was only treating lyme prior, but I changed LLMD's and the second found the babs.
Thank you for your quick responses, and encouragement.
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