This is really a jump from another thread, but I'm curious: Where does your lyme hide?
We know lyme can go into cyst form and can hide in cartilege, etc. I remember in December '06 having weird sore shoulders, then BAM major lyme symptoms evolving during the spring.
Then when I just stopped abx two weeks ago after being symptom free for 12 weeks BAM the shoulder again!
Second part of the question: How do you chase the lyme from the hiding spots? Any success?
Posted by tailz (Member # 10014) on :
In my spine - to the left of center in the middle.
Something is living in my jaw, too - or maybe in the part of my brain that controls the jaw.
Posted by disturbedme (Member # 12346) on :
I'd say mine is in my brain mostly since the majority of my symptoms are lyme brain-like: dizziness, wooziness, spaciness, floating-on-a-cloud feeling, feeling like I'm not here and not myself, have trouble finding words, mix sentences/words up, having panic-y symptoms, hot flashes, can't stand noise, can't stand too much light, etc. I also have something in my joints, including my jaw -- TMJ.
But for me, the worst is the lyme brain. Scary. Posted by TS96 (Member # 14048) on :
Mine is in my jaw, neck, traps, mid back, glut muscles, and knees. And the worst is in my brain.
Haven't found anything to chase it out but detox baths, osteopathic treatments help some.
Posted by Clarissa (Member # 4715) on :
98.5% brain Posted by cantgiveupyet (Member # 8165) on :
Bladder and pelvis, every muscle in the pelvis
Posted by judith_svstr (Member # 14259) on :
I would say in my head, or to be more exact, between the eyes and in my jaw. and in the brain, I'm new to this but I feel like I have a lot of neuro-symptoms.
also, very low in my back, just before a flare I get pain in my lower back and up high on my spine and neck
Posted by mushroomman06 (Member # 13088) on :
Right shoulder and left elbow. Started in my right shoulder and neck. Neck has stopped hurting, but right shoulder is almost in moveable due to pain.
Posted by monkeyshines (Member # 6406) on :
It's spread pretty much all over my body (though my brain, luckily, not so much), but I still get some serious pain especially bad flares out of the blue in my left forearm and a spot just above my right shoulder blade. Those two are what sent me to my now defunct death plan---I mean health plan---7 years ago.
Posted by Geneal (Member # 10375) on :
Hmmmm. My brain, my bladder, my joints (all of them),
Sometimes my jaw, toes, fingers, etc.
My behind is just about the only part of my body that doesn't hurt......too much.
Hugs,
Geneal
Posted by savebabe (Member # 9847) on :
My lyme is mostly in my brain and spine.
Posted by psano2 (Member # 11711) on :
in the back of my neck, the base of the scalp, and shoulders. I recently broke out in a rash in these areas and found that when I applied various therapeutic herbal tincures to the rash, I herxed big time w/neuro sx.
So at least in my case, I believe the rash is not just full of toxins, it's full of bacteria or other microorganisms. I was doing so well when the rash broke out, I think the bugs are being chased to this area from other areas.
Because of the proximity to the spinal cord, I think they may be "seeded" from the spinal cord.
Posted by ICEiam (Member # 7519) on :
Daughter's are mostly in her head and legs. Head mostly, if there is a neuro symptom she has had it or has it now.
Severe pain in her head, all over, and her legs hurt her so bad she pounds them with her fists.
That is where the worst pain is now, but it has been all over at some point in this adventure in hell.
Hugs,
Posted by ByronSBell 2007 (Member # 11496) on :
My whole body.
Posted by hcconn22 (Member # 5263) on :
Will settle anywhere in your body. Will also change. Mine started in back and neck, then after treatment most pain went away. About 3 years later came back in elbow- wierd swollen the side of golfball for no reason.
Primary problem now is brain- and finally got dx for Babestia and Bart.
Posted by yanivnaced (Member # 13212) on :
For my wife her sternum used to be sore, but now it's migrated to the upper chest muscles. The soreness comes and goes every few days without any pattern.
We are thinking of topically applying some of the leftover abx.
Has anybody tried making a paste with your abx (crush pill and add water) and applying it to the sore spot?
She has a bunch of Mepron left over, thinking about applying some of that topically to see what happens!
My theory is that abx simply cannot penetrate some of the cartilege areas of the body systemically - so why not attack the bacterial colonies from a different angle? It might at least the force the colony to disperse into the bloodstream where you can kill them.
Any ideas?
Posted by luvs2ride (Member # 8090) on :
Massage. A good masseuse can find the knots and break them loose.
My masseuse was a nurse and knows the anatomy very well. My neck can be frozen and she works on me for an hour and I am painfree.
I used to have so many knots in my shoulders, neck and back I would sound like bubble wrap. She finally gave me a discounted rate so I could afford weekly visits. I rebound and eat about 50% raw diet to try to keep toxins moving.
Together I stay painfree. Am not ready yet to give up her weekly visits.
Luvs
Posted by laura j (Member # 14257) on :
Mine picks different spots to hang out in.
Either forearms, right eye/sinus/ear. Right side of neck through shoulder and back down into groin/thigh/knee. Sometimes on both sides but right is worse.
Interesting b/c tick was attached in right groin area.
Also had terrible bladder pain which has now moved to my guts, lungs and kidneys.
And my brain!!!
Posted by lymie_in_md (Member # 14197) on :
Mostly left side of my body, especially forearms, neck and left shoulder entire jaw. Doesn't seem to be on the right side that much
Posted by steelbone (Member # 14014) on :
Lower back and hips are killing me. Other parts hurt but they hurt the most. haven't been able to golf for 2 years
Posted by lymeladyinNY (Member # 10235) on :
Back of head/neck, lower back, pelvis, and diaphragm.
If anyone touches my lower back I can't stand it. My son smacked me there last week when he got mad and I fell to the floor and couldn't walk or talk the rest of the night.
Posted by GenaD (Member # 11988) on :
Mine is mainly in my knees, elbows, neck, shoulders...and now more recently in the hips and lower back.
Posted by bettyg (Member # 6147) on :
quote:Originally posted by disturbedme:
I'd say mine is in my brain mostly since the majority of my symptoms are lyme brain-like: dizziness, wooziness, spaciness, feeling like I'm not here and not myself, have trouble finding words, mix sentences/words up, having panic-y symptoms, hot flashes, can't stand noise, can't stand too much light, etc.
took a few words out that didn't apply to me and ADDING horrible pain in my neck, entire spine, and lower butt/hip! Posted by charlie (Member # 25) on :
Knees elbows feet...I have the golfball thing in elbow like Blake.
when it swells and stings I know it's time for a round of abx. I wish somebody would invent elbowmycin....
Charlie
Posted by je (Member # 14653) on :
Oh no! I hope lyme isn't hiding everywhere it hurts!
I would say in order of ouchiness
brain spine knees elbows jaw
Bones (actually that should be at the top of the list)
legs forearms fingers ears
crazy twingy things that can happen any where
Most of these things continue to hurt when I'm in a remission too. Just a little less. The only thing that really goes away is fog brain and getting lost
I once got lost in my own backyard for about 4 hours
Posted by MarlaSue (Member # 14601) on :
Upper back, shoulders and spine are always in agony.
Posted by adamm (Member # 11910) on :
Lyme for me is, as it is generally,
most significantly a brain infection. Some must have
been done to it in a lab to strengthen its neurotropic tendencies.
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