Anyone used Avelox out there? I talked to my PA the other day and we decided to try and retreat the Bartonella because I think I had been rebitten. I had told her Levaquin had given me muscle pain 2 years ago. She said try it again and take the magnesium for the muscles. When I went to the pharmacy the drug she called in was Avelox. I know this is comparable to Levaquin but I had never heard of it before. Anyone try it?
Posted by lymeflox (Member # 10543) on :
Avelox is almost identical to levaquin. If you try it, watch out for any symptom listed on the package insert, or better still, any of the symptoms listed on the specialized sites dealing with their toxicity.
If you had muscle pains before, that normally means a sort of myalgia caused by the toxicity to the neuromuscular connections (nerve-muscle).
Do not forget that the toxicity of fluoroquinolones (levaquin, avelox) is cumulative and that it builds up with successive treatments, so that each treatment causes more damage and symptoms than the previous one.
Posted by kelmo (Member # 8797) on :
I remember my daughter took it once. We had samples because, at that time my brother in law was a pharma rep for Miles (We HAD Cipro by the CASEFUL and didn't know what to do with it!!)
Anyway, he gave us Avelox when it first came out. My daughter took one pill.
She saw rats with lit, red eyes, crawling around her room that night.
Yep. She was under 14 at the time, and the dose was too much for her weight.
Wish we had all that Cipro now.
Posted by minoucat (Member # 5175) on :
Hubby is doing IV avelox for bart. It's been fine -- easier on him than pretty much anything else he's taken. Some muscle pain, but nothing like levaquin. He's starting his 2nd month.
He had immediate improvement (by the 2nd week) in mood and cognitive function, and some improvement in energy.
This is his 2nd round of tx for bart.
Good luck.
Posted by Lymetoo (Member # 743) on :
It was working well on my sinus infection, but it made my heart do flip flops. I had to stop taking it one week into it.
Yes, read about the side effects so that you are well aware of the possibilities.
Thanks for the replies. And minuocat I too am looking to clear some cognitive and mood issues and will see if this Bart treatement helps. I had a heavy Babs trea
Posted by Mathias (Member # 5298) on :
Two thumbs up for Avalox. Good choice for bart. Just watch out for the side effects. Not everyone gets them though.
Posted by minoucat (Member # 5175) on :
Hides, the hubby completed a rigorous babs tx 5 months ago (quinine and clindamycin) and has had no identifiable babs sx since then.
He's beaten down his viral load and seems to be rid of the remaining known coinfections except Bartonella. He still has Bb as far as we know, but it's either heavily suppressed by now or pretty much gone.
His bloodwork has steadily improved.
So we're pretty sure that his remaining cognitive/mood stuff at this time is bartonella, and that Avelox is very effective for it. So far.
It really takes time -- at least 6 months, I think -- before you can declare any kind of victory. We've had months and months of being sx free after stopping tx, only to have the sx return.
We're not sure he'll ever be rid of the Bb but it does not seem to be playing as major a role as the bart -- at the moment.
Hope this helps. Sorting out the sx of virus, fungus, candida, Bb, and the coinfections is a hellish crapshoot, and it's only from experience and careful documentation that we've been able to differentiate them.
Posted by CD57 (Member # 11749) on :
up -- haven't heard much about this drug lately
Posted by Rianna (Member # 11038) on :
[QUOTE]Originally posted by minoucat: [QB] Hides, the hubby completed a rigorous babs tx 5 months ago (quinine and clindamycin) and has had no identifiable babs sx since then. ______________________________________________
Was hubby on oral or IV Clindamycin?
I started Clindamycin 1500mg a day in divided dosages orally with Qualaquin 3 x a day for BAD babesia and have been on it just a few days. LLMD says he will cycle the orals with IV Clindamycin to make it even more effective.
I have a PICC in already as I am also on IV Rocephin
Rianna
Posted by CD57 (Member # 11749) on :
up--any more news on this drug?
Posted by BlueCheetah (Member # 18626) on :
I took Avelox when I first became symptomatic. The primary thought I had an upper respiratory infection. Avelox was great for me and I tolerated it well.
Every other antibiotic I have taken since then I do not do well on.
I wish I could go back on Avelox. I actually asked my LLMD if I could take it the other day and was told Avelox is not given to treat anything. Posted by CD57 (Member # 11749) on :
I thought it was being used for bartonella?
Posted by BlueCheetah (Member # 18626) on :
I thought so too. I have heard of others taking it.
Posted by djf2005 (Member # 11449) on :
great drug, progress doesnt last usually tho.
most i kno relapsed on it after a few months of notable improvement.
the improvement i experienced after 3 months of oral administration was so remarkable i thought i was out of the woods.
i relapsed to worse than before, but the brief break from the iron grip of lyme and co was nice.
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