I have been on extensive abx treatment IV for 10 months. All my symptoms have improved and many are gone. BUT NOT the twitching which is instead increasing. I twitch EVERYWHERE and it is almost unbearable to try to get some sleep as my muscles constantly jump and twitch.
Is this a pure Lyme symptom? Or could it be bartonella? Or could it be Candida?
Have tried most abx: doxy, claritromycin with hydroxochloroquin, clindamycin, metronidazol (flagyl), Zienam, Claforan.
Something else I should try?
Begging for help....
Posted by dontlikeliver (Member # 4749) on :
Possibly a magnesium deficiency from both the Lyme or coinfection and maybe from the treatment itself? Are you taking a good Magnesium supplement like MagTabSR? Or injections of Magnesium IM?
Are you able to get that long-term IV in Sweden or somewhere else? From what I hear Lyme sufferers in Sweden have a very very hard time getting treatment - seems worse than most places.
I saw a Swedish TV program where they talked about it and interviewed some chronic Lyme sufferers. Was a pretty good balanced program.
DLL
Posted by BartonFink (Member # 10818) on :
IV for 10 months in Sweden? That sounds strange. I thought the situation there was as crappy as here in Finland: you get 3 weeks of IV at most + some orals maybe and you are "cured".
Twitching can be awful and I really dont know what to suggest except that magnesium.. what symptoms got better with that IV treatment btw? I mean what symptoms did you have in the 1st place if you dont mind me asking?
Posted by treepatrol (Member # 4117) on :
B12 shots and magnesium. Its the lyme damage
Posted by sfcharm (Member # 9392) on :
Muscle Twitching was by far my worst symptom. I'm happy to say it's finally gone. I was told it's a magnesium deficiency.
I have been on antibiotics for 20 months. The last seven on Rocephin IV. My twitching has been gone for about a year.
I take Natural Calm Magnesium supplement by Peter Gillham. It can be found on the internet or in health food stores. I'm sure it was a combo of this and the antibiotics that got rid of the twitching.
Barb
Posted by Mathias (Member # 5298) on :
I agree that it is probably nerve damage due to the infections. Nerve tissue heals very, very slowly so I would expect it to take some time to go away.
Of all the symptoms that I have had, twitching is one of the only symptoms that I still have 3 years later.
Have you tried Neurontin? If it is nerve irritation and not damage that could help.
Posted by swedish lyme sufferer (Member # 14579) on :
Hi, I try to do magnesium supplementation and B12 too, but only orally, this might not be enough. Or it may be bartonella, as I have seen other twitchers are co-infected with. well, I suppose I will try bart treatment and shots of B12 and Mg.
Previous symptoms: vertigo, severe muscle and joint pain, ear pain, myoclonus frequent urination fatigue upset stomach nausea and lots more, most of the symptoms from the "lymelist".
No, no treatment in Sweden, I have to live abroad in Germany to get help. Sweden is a VERY bad country for Lyme sufferers.
Posted by tailz (Member # 10014) on :
You're from Sweden?
I'm not sure it's any of those. A Swedish researcher, Olle Johansson, sent me this.
Your twitching might be caused by wi-fi or cell phone masts. That's what I'm dealing with right now.
Posted by adamm (Member # 11910) on :
So whoever said Norway officially recognized chronic Lyme
was wrong, then?
Posted by hopingandpraying (Member # 9256) on :
My son's LLMD started him on Rifampin and Doryx (a gentler form of Doxycycline) in Dec. 2007 and his twitching stopped. He continues to take Plaquenil and Tinidazole.
Hope this helps.
Posted by hopingandpraying (Member # 9256) on :
I forgot to add that my son's LLMD is treating him for Bart.
Posted by jentytib (Member # 14375) on :
Twitching drove me crazy, esp in my face.
You name...it... it twitched.
I have been on only Minocycline for 4 weeks and it lessened after 2 weeks.
I read something about it crossing the brain barrier.
My headaches are MUCH better too! Posted by adamm (Member # 11910) on :
Mine got bad on Biaxin, which hits both my Bb and Bart.
![[Smile]](smile.gif)