My 18 yr old son has yet to be diagnosed w/ lyme, but all of the indicators are leading in that direction. His current physicians have had him on continuous muscle realxers, anxiety meds and pain management, He's curently taking large,daily doses of time release morphine and valium. I'm concerned of the qtys he's using to "function" and equally concerned about him not using them until we can get him into proper treatmemnt. Has anyone else been on this path ?
Thanks for your help. PD
Posted by lymebytes (Member # 11830) on :
Hi,
Welcome. My husband & I, were in pain management long before what we knew was going on. First him then me a few years later. Even once properly diagnosed, my pain has been so excruciating, I would not make it through the day with out pain medicines, especially during "herxing" the worsening of symptoms once treatment is started. I am very happy you were able to find a doctor willing to manage his pain.
You can read my story and other stories by clicking at the bottom of this post.
Reading other patient stories helped me tremendously before and after I was diagnosed.
Also, I have an 18 year old son that has had Lyme. He is the more fortunate of the 3 of us, seeming to have had one major episode and one relapse 10 years later that was short lived when I recognized it quickly and got him on antibiotics fast. I know how you feel. I know many mom's w/kids with LD and many mom's (like myself) who have LD themselves w/kids who have LD.
A good LLMD will take good care of him and get him well. Do you have a good LLMD? If not P/M me.
Wishing your son renewed health and you peace through this, Dana
Posted by Aniek (Member # 5374) on :
Is your son working with a pain specialist? If not, I would try to get into a pain specialist to treat his pain.
The pain killers (like morphine) may be necessary, but should be used for break through pain if possible with other medications used to control the pain. This is because your body gets dependent on narcotics, which means you need to continually increase the dose for the same effect.
I have severe muscle pain and found tizanidine to be very effective.