LymeNet Flash: Out-of-pocket payments for IV abx supplies??

This is topic Out-of-pocket payments for IV abx supplies?? in forum Medical Questions at LymeNet Flash.

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Posted by lymedad (Member # 8074) on :

Is there anyone infusing antibiotics via a PICC line who has to pay for the medicine and supplies out-of-pocket?

Posted by hostbody (Member # 12695) on :

My insurance paid for putting in the picc line

and for 1 month of rocephin.

My doctor ordered at least 4 months. I was

denied any additional help from the insurance

company.

I paid out of pocket for 6 more months.

My out-of-pocket cost was $15,000.

I felt great after 5 months. My doctor did not

want me to stop when I did, but I ran out of

money. When I began the treatment, I was barely

able to work. This treatment did help me.

I was symptom free for about 6 months. It's now

a little over a year later. I do have some

symptoms back, but I'm still way better than I

was before the IV. My opinion is that if you are

going to do this, do it beyond the point where

you feel well, for as long as your LLMD orders.

I wish I could of afforded more months of

treatment.

Posted by bettyg (Member # 6147) on :

up for more replies for lymedad.

how are you doing dad and most importantly your daugher? missed see you post or perhaps i didn't happen to read the ones you did! best wishes to all your family. [group hug]

Posted by daise (Member # 13622) on :

Lyme Dad,

Are you aware of the permanently flagged post near the top of this medical forum about generic IV Rocephin? The price is way down.

There are 43 posts to that thread, full of information on generic IV Rocephen and ideas for supplies.

Wishing you the best.

Daise [Smile]

Posted by MommaK (Member # 10376) on :

Hi Dad [hi]

I too am paying out of pocket for IV med costs. Insurance paid for PICC line insertion and 28 days of meds etc. I shopped around for better pricing and found an outpatient infusion place where they are very helpful.

So far doing IV rocephin push to save money on tubing with no problems.
They are also helping me with my appeal for insurance coverage.

Next month llmd wants to talk about a port. He ordered one from the beginning, but my GP talked him out of it. Guess now I will have to pay for this.

Sorry not much help or experience, but wanted you to know we're in the same boat.
Fear that money will not hold out as long as treatment might be needed!

MommaK

Posted by kelmo (Member # 8797) on :

Lymedad! I have thought about you often over the past months. Please update us on your daughter.

Last I heard, she was able to walk to Starbucks. Hope she is still moving forward with hope.

And, how are you?

Posted by Cobweb (Member # 10053) on :

Gee- I hope you are not paying out of pocket-mine were paid by insurance-and when I finished IV treatment I returned a lot of supplies which I didn't need anymore.

Wish I could have shipped them to you instead.

Cobby