I have been reading every message on this wonderful site about twitching. Seems to be a hard thing to get rid of. But some of you seem to get relief.
Please, if you have time:
1. Is your twitching lyme or bart related?
2. Have you ever tried levaquin? If so; did the twitches dissapear?
3. Did B12-shots and magnesium help you?
4. Have you ever tried gentamicin? rifampin? streptomycin?
Thank you! (trying to get some info for my treatment and treatment of 3 other scandinavians currently living in exile in Germany.)
Posted by joysie (Member # 11063) on :
1. Is your twitching lyme or bart related?
Bart, apparently.
2. Have you ever tried levaquin? If so; did the twitches dissapear?
Haven't tried it.
3. Did B12-shots and magnesium help you?
Oral B-12 seemed to help somewhat. Magnesium, definitely.
4. Have you ever tried gentamicin? rifampin? streptomycin?
I have been on Rifampin, which was the first thing to decrease the twitching. I have had a further reduction-down to almost none-on Bactrim and Zith.
Good luck!
Posted by tailz (Member # 10014) on :
Are you sure you aren't electrosensitive, too?
A Swedish researcher sent me the Bioinitiative Report below.
Posted by David95928 (Member # 3521) on :
My twitching was/is Lyme related. I haven't noticed B12 shots helping but shots of Magnesium sulfate DEFINITELY take care of them for me. I take one gram (2 ml. + 1ml. of 1% Lidocaine) once a week. If I do that, no twitches. If I slack off, they return. Dave
Posted by klutzo (Member # 5701) on :
Magnesium, magnesium, magnesium! Nuf said!
Klutzo
Posted by Keebler (Member # 12673) on :
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1. Is your twitching lyme or bart related?
WHO KNOWS ?!
2. Have you ever tried levaquin? If so; did the twitches dissapear?
NEVER TRIED IT
3. Did B12-shots and magnesium help you?
ABSOLUTELY. THE BEST. MAGNESIUM CAN EVEN STOP SEIZURES. IT HELPS DETOX AND CALM. B-12 NOURISHES.
4. Have you ever tried gentamicin? rifampin? streptomycin?
NEVER.
Gentamicin and streptomycin are OTOTOXIC. It can cause deafness, tinnitus &/or other audiological and otological damage.
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[ 24. February 2008, 03:15 PM: Message edited by: Keebler ]
Posted by sfcharm (Member # 9392) on :
1. Is your twitching lyme or bart related?
Not sure. I am 21 months into lyme treatment and still need to treat for bartonella
2. Have you ever tried levaquin? If so; did the twitches dissapear?
I tried levaquin for two weeks and had tendon issues which sometimes happen with this family of drugs.
My full body twitches went away after one full year of oral treatment and bicillin shots. I also take Peter Gilham's Natural Calm magnesium tea drink at night. I'm not sure if it was my antibiotics or the magnesium drink or the combo that did it.
According to my Lyme Nurse it was the tea drink. The twitches were full body and almost drove me mad. They are now 100% gone.
3. Did B12-shots and magnesium help you?
I did them for six months, never noticed any difference
4. Have you ever tried gentamicin? rifampin?
streptomycin?
I may be starting rifampin for bartonella at some point. I'm now eight months into Rocephin IV therapy. All of my twitching was gone before I even started Rocephin IV.
Posted by hcrawfmtl (Member # 9252) on :
MAGNESIUM!!!!!!!!! Get it at any vitamin store! GO GO GO!!!
Posted by Keebler (Member # 12673) on :
The vestibular system, or balance system, is the sensory system that provides the dominant input about movement and equilibrioception.
Together with the cochlea, a part of the auditory system, it constitutes the labyrinth of the inner ear, situated in the vestibulum in the inner ear (Figure 1).
Rapid recovery from major depression using magnesium treatment.
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Posted by WildCondor (Member # 434) on :
MAGNESIUM!!!!!!!!!!!!!
Injections of magnesium sulfate 2-3x per week. IV Mag sulfate 2x per week if you are on IV. oral Mag tab SR or Mag malate daily on orals.
Magnesium stops the twitching...takes a few weeks of shots to get it under control, then keeps it gone. Posted by Keebler (Member # 12673) on :
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If you take magnesium shots, adding methyl B-12 to the syringe will substantially reduce the burning of magnesium alone.
Some people use a little lidocaine, but be sure to get the kind WITHOUT epinephrine in it.
It's really easy to give yourself shots in the top, outer thigh.
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CALCIUM & ZINC - and other minerals and electrolytes all should have a balance, too.
Calcium can also calm the CNS.
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Soaking feet, hands or body in warm water with epson salts (magnesium) also takes it into the body.
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Posted by Dawn in VA (Member # 9693) on :
Rx's that really helped to calm down my twitches were IV rocephin and oral tinni/flagyl. I'm on tinni again right now and haven't had them very much at all since getting back on it (knock on wood... )
Posted by jsnyde2 (Member # 7888) on :
Twitching was my worst and most persistent symptom. I was treated for lyme, not bart, using ceftin and then a really heavy duty cyst buster "pulse" but I can't recall the name.
That worked - I have been symptom free for 2 years. I did notice that when I got dehydrated a few twitches would come back. Now they are just gone. Didn't really notice when; but at some point I just realized I hadn't twitched in a long while. Allelujia!
I had to take so many pills I slacked at taking supplements like magnesium although everyone told me to for twitching. (so mag wasn't what helped me.) I did do B-12 shots and don't know if that did it as much as just getting rid of the lyme. Good luck! In restrospect, it wasn't the twitching that was as bad (although annoying) as the not knowing what the hell it was.
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