Was wondering if any one has experienced an inflammation in their heart found on a Cardiogram?
If so did was it treated seperately? Or did u see a cardiologist? I do have an appt w/ one this one but no LLMD.
Any suggestions or feedback would be good. I tried to search on here for info but could not find anything.
Thanks,
Makoce
Posted by echostef (Member # 12867) on :
Hi, I am a cardiac specialist and have been for 11 years. I've performed thousands of echocardiograms, but I need a little more info on what you are describing. There are many different types of "inflammation" in the heart. Do you have any idea what the medical term for what you have is? Pericarditis? Endocarditis? Myocarditis? I could help you to understand the causes and treatment of it if you could let me know what exact type of inflammation that you have:) Let me know! Stefanie
Posted by roro (Member # 13383) on :
I had pericarditis in 2004. it was an infection of the lining of the heart. 2 days of IV antibiotics cleared it up (but the lyme was not completely gone and came back to haunt me.
echostef, i just had a stress test, my BP dropped during it, everyone is telling me it should have gone up. do you know?
Posted by pattilynn (Member # 8065) on :
Roro, my job is doing stress testing. The blood pressure should never drop during a treadmill stress test. If it does, the test is stopped immediately as this could be a sign of severe left main artery disease. I have however, seen this happen and the patients went on to have normal cardiac catheterization. So you just don't know.
Posted by shoney (Member # 9925) on :
There is another POTS specialist in Maryland at Union Memorial Hospital-Dr R Khurana. He doesn't know much about Lyme, but he is listed in the DINET page as a dysautonia specialist, esp POTS. I saw him when I first got sick.
Posted by Lakota Queen (Member # 8338) on :
Hi,
I was told I have an enlarged left atrium.
I have an appt this week at the Cleveland Clinic's Women's heart clinic. I would like to give the cardiologist info on Lyme related cardiac problems.
Any suggestions?
I am close to MCO-Toledo. I have never heard of this specialty. I need to research it.
Thanks,
Tara
Posted by roro (Member # 13383) on :
Dr Khurana told me there was nothing he could do for me. He admitted I had autonomic dysfunction, but was unable to help me
he wanted me to stop taking the motrin and vicodin and told me my headaches (at that times I had a headache for three months straight) was rebound headache, which was total BS
when I asked him what am I going to do for pain, because I am in 24/7 intractable pain, he said I had to just suffer through it. I tried that after detox and almost died
now that I am on morphine, I really don't want to go back to him.
Posted by pamyla (Member # 8575) on :
Last year I was told I had a thickened aortic valve. I see a cardiologist to monitor this (which I was already seeing for pots). I see my llmd for everything else and I make sure that she has copies of all my reports. For now, we are just watching this, and I'm hoping with continued treatment for tick illnesses the heart issues will improve.
Pam
Posted by echostef (Member # 12867) on :
Hi all, Lakota..You live near Toledo MCO? I grew up in Bedford Township and graduated from the University of Toledo. Small world. I worked for many years at Northwest Ohio Cardiology Consultants on McCord Rd. The doctors there are absolutely awesome...Best place I have ever worked. Any reason you're going all the way to Cleveland Clinic? Roro, no, it is not normal to have your BP drop during exercise, but there are MANY reasons why it can happen, not just Left Main disease. It is not a reason to worry that you may have some deadly affliction. If you had a stress echo, then they have obviously ruled out Hypertrophic Cardiomyopathy, which sometimes manifests as a drop in BP while exercising. However, it is a diagnosis that is impossible to miss on an echo, and I'm sure they would have told you if that was the problem! I, myself, have developed Orthostatic Hypotension since contracting Lyme. 80% of the time, my heart rate will increase as I stand, and my blood pressure will plummet, and I will faint if I don't sit back dowm immediately. It is slowly getting better as I get further into treatment. There are several meds you can take to help keep your pressure up. I have chosen simply to consume as much salt and liquid as I can and to wear thigh high support hose to keep my blood up where it belongs. I already take so many meds that I am trying to avoid taking any more. Unfortunately, although most LLMDs know that Lyme has cardiac manifestations, I have yet to meet a cardiologist who knows much about Lyme. Of course, down here in Texas, it is generally thought that Lyme doesn't even exist. Lakota, I have to leave for the day. My nephew and wife just had their first baby so I must go spend the day with them. I received your PM and will send you one back just as soon as I return. Take care, Stefanie
Posted by on :
![[Big Grin]](biggrin.gif)
Stefanie