I was diagnosed as having lyme in 2001. I was then given a 21 day supply of doxcycycline. I was not retested after that until 2002. My lyme teeter was slightly elevated but doc had dismissed it as normal because of my treatment from 2001. I wasn't tested for any other coinfections at the time. Right now I am having joint pain, irritable bowel, muscle twinges, unexplained pelvic pain, and fatigue. PLEASE, someone help me make sense of this!
Posted by Aniek (Member # 5374) on :
Yes, you can still have Lyme. A 3 week dose of antibiotics may not have been enough for you. Or, you could have a coinfection. Untreated coinfections make it harder to treat the Lyme.
You should post in the seeking doctors forum for a doctor near you. Not all doctors are created equal. Many doctors would claim you can't still have Lyme and would refuse to consider it. You want to see a LLMD (Lyme Literate Medical Doctor) which is a term used to describe a doctor who has real knowledge and experience with treating people with chronic Lyme.
Good luck and feel free to ask more questions.
Posted by adamm (Member # 11910) on :
Yes. Unfortunately it has been essentially proven that that
short a course of antibiotics cannot cure Lyme. I would
bet my life you still have it--post in the seeking
a doctor forum and get thee to an LLMD ASAP.
Sorry, didn't mean o sound too grave--best wishes for your
recovery.
Posted by momo4 (Member # 14886) on :
I'm so angry that I just took that answer from that doctor and did not get another opinion. What does a slightly elevated teeter mean? Should he have known at that time or was that ok for him to dismiss me?
Posted by Tincup (Member # 5829) on :
Sorry to hear you are feeling so badly. I hope you are doing better soon. Sounds like it has been a long road for you too. Darn those doctors.
Unfortunately many folks are "under treated" for Lyme disease and therefore, all of the bacteria are not killed off.
If that happens the spirochtes can reproduce and them come back full force to kick you again and diseminate throughout your body.. causing all sorts of problems.
And since ticks suck the blood of dirty rodents and other wild animals and crawl in the dirt and other not so nice places... they can carry multiple diseases.
It is possible you have contracted one or more of them when you originally got Lyme. If your doctor didn't check for them or treat them.. that may be your problem.
As others suggested, please find a new doctor and tell yours to smarten up before he makes more people suffer.
Hope you feel better soon.
Posted by adamm (Member # 11910) on :
Just in case you need documentation supporting what
I say it all at the bottom of the post... but I will never donate blood or ba an organ donor. I dont want to chance giving someone a life saving body part and kill them with lyme.
Posted by momo4 (Member # 14886) on :
Bug Barb, That would definitely not be a smart thing knowing what we know, I honestly was so nieve thinking that I was cured and now after reading all this stuff and feeling the symptoms I'm feeling, I'm convinced that I would have been a jerk to have donated blood.
Posted by bettyg (Member # 6147) on :
WELCOME, would you like a copy of my newbie package of 105 pages info galore includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
if yes, please send me a PM, PRIVATE MESSAGE, it's 2 people standing together icon asking me to send it to you. i will send within 1 day of receipt of your pm; thanks
Posted by bettyg (Member # 6147) on :
mom, did you get the package i sent a little earlier? on my end, it is showing it DIDN'T GET SENT as it doesn't show up in the SENT area in my profile!!
so i'm trying to find out why all of a sudden, all the copies i'm sending are NOT going to people who have requested them! betty
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) The sordid
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