This is topic neuro lyme or bart? in forum Medical Questions at LymeNet Flash.


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Posted by tickbattler (Member # 14873) on :
 
Do any of you have neuro lyme? If so, what are your symptoms?
Have you ruled our bart or do you have it too? What are the differences in symptoms in your experience?

Thanks so much,

tickbattler
 

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Posted by Geneal (Member # 10375) on :
 
I knew I had neurological involvement even before I was diagnosed with Lyme.

I really thought I had a brain tumor.

Some of my symptoms that are neurological in nature include the following:

- difficulty swallowing

- difficulty finding words

- difficulty speaking

- loss of memory

- dizziness

- balance issues

- dysautonomia

I forgot to mention that I am a Speech Therapist who worked with neurologically

Impaired patients for years....

I also have joint pain and other symptoms.

Lucky me.

It is better overall, although I still have my days.

I was diagnosed with bartonella as well as babesia in addition to Lyme.

There is so much over lap in symptoms in Lyme and co-infections.

I am sure there are others who can give you more specific info.

Hugs,

Geneal
 

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Posted by cantgiveupyet (Member # 8165) on :
 
I had mostly neuro lyme in 2005 when I got this.

Some of my symptoms were, Numbness, mostly on the right side, tingling, trouble swallowing, dizziness, sensitivity to light, couldnt feel myself talk, vivid vision, constantly hungry

Now I have interstitial cystitis, and all over body stiffness, joint pain , mostly in my pelvis. Constant hunger, slow moving bowels. Neck pain. Trouble sleeping alternating with fatigue.
 

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Posted by adamm (Member # 11910) on :
 
I have Lyme and bart, and went neuro less than two

weeks after getting bitten.
 

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Posted by disturbedme (Member # 12346) on :
 
Yep, most of my symptoms are neuro now, and I also have Bart... or did. I've been treated for it but only for three months (I've heard sometimes it needs to be longer).

Some of my neuro symptoms:

-dizziness/wooziness
-balance issues
-vertigo
-feeling spacey, "off", like floating on a cloud.
-having bouts of depersonalization (feeling like watching self from outside of body, watching yourself in a movie) etc.
-memory issues
-saying one word when I meant another one.
-saying things backwards or moving around letters in a sentence so when I say something it comes out all weird.
-etc.
 

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Posted by Boomerang (Member # 7979) on :
 
Hubby has neuro problems. Trouble finding words, saying wrong words, etc. Don't know if he has/had Bart or not.
 

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Posted by Fordace (Member # 14874) on :
 
Anyone have backround music playing their heads 24/7 like me?

it's always the last song I hear on the radio, goes on and on and on....can't make it stop
 

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Posted by tickbattler (Member # 14873) on :
 
Thanks so much all! It appears to me that those of you with neuro symptoms almost all have bart in addition to lyme!

Cantgiveupyet and Boomerang...have you taken any coinfection tests for bart? Has your doctor mentioned that you could have it?

Thanks again,

tickbattler
 

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Posted by CD57 (Member # 11749) on :
 
Hi -- I have to put my two cents in....I have had two LLMDs tell me that bartonella is ubiquitous, that is, we all have it. It's 99% that your husband has it.

It's very nasty, hard to kill (may need to be treated several times), hard to test for, and the latest is that it is likely bartonella that makes Lyme patients relapse after extensive treatment.
 

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Posted by Boomerang (Member # 7979) on :
 
Hi, nope....no coinfection testing.

Hubby's LLMD says that any more testing is just a waste of money....since the tests aren't specific anyway.

I do wonder about that??
 

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Posted by mikej2323 (Member # 8913) on :
 
How many of you got the red striae, or stretch marks that is supposed to be associated with Bart? If so, was it on the abdomen or other places?


Mike
[email protected]


www.caringbridge.com/visit/angelsforalex
 

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Posted by aklnwlf (Member # 5960) on :
 
Hi, I was tested for Bart in 2004 and it came back negative. I think I was tested for one strain.

I haven't retested but my Bart symptoms showed up after 2 and a half years of treatment for Lyme.

My rash isn't the typical Bart rash but looks more like ringworm.

The more taletell signs for me are the vibrating feeling, severe anxiety with fatigue and subcutaneous nodules that I have in the back of my thighs, shins and upper arms, insomnia and pain in the bottom of my feet.

Very different symptoms than Neurolyme.

Hope this helps.
 

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Posted by chamade (Member # 11472) on :
 
I am positive for Bart on IGG and have the following current symptoms:

-burning/tingling neuropathic pain mostly in my legs, but also in arms
-bodywide muscle twitching
-vibration feeling in feet

I also have irritability, restlessness etc., but consider these symptoms minor compared to the physical pain.
I have typical bart stretchmarks pretty much everywhere except my head, neck and lower legs.
 

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Posted by HamDune (Member # 14139) on :
 

quote:

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Originally posted by mikej2323:
How many of you got the red striae, or stretch marks that is supposed to be associated with Bart? If so, was it on the abdomen or other places?

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