Recently read the new book out by Dr. K. S. and he recommends the above protocol for Bart.
The only problem is he didn't say how much or how long to take it and if it's pulsed or what.
I tried 5 months of Levaquin/Septra with Tindamax added one week out of the month which didn't work for me.
So if anyone has any info that I can pass along to my treating physician (LLNP) please let me know.
Right now I'm on Biaxin/Cipro, pulsed and with one week of Flagyl which hasn't been as effective as I had hoped it would be.
On my one week off meds I'm sick as a dog.
So looking for something new to try.
Thanks gang!! Posted by CD57 (Member # 11749) on :
hi, I've been on Rifampin/Doxy/mino protocol since June of last year. No pulsing. High doses, aggressive.
Dramatic improvement, but bart is not gone. Posted by disturbedme (Member # 12346) on :
I was doing Rifampin/Doxy on weekdays and Doxy/Biaxin on weekends.
Rifampin was good to me. Got me to feeling around 70%.
Posted by Clarissa (Member # 4715) on :
I do Ripfamin/Zithro and have noticed definite improvements...still have some more months togo, for sure!
Posted by psano2 (Member # 11711) on :
I've been on 600mg/day of Rifampin since last May. Added doxycycline 100mg 3x/day early last fall. Added azithromycin 500mg last fall also. Added plaquenil and artemesia about a month ago for babesia. I was on Bicillin LA 1.2mu 3x/week from last April until about a month ago. Was also on tindamax for many months.
Rifampin helped a lot. I've seen improvement w/the addition of each antibiotic, but so far am not free of symptoms.
Posted by OConnor800 (Member # 14895) on :
i was on doxy/rifampin but i dont think it helped me that much, just kind of stabilized where i was at
now i am on bactrim/zithromax which i feel has been a lot more effective
i have bartonella, and my doctor is the author of that book
Posted by chamade (Member # 11472) on :
I took 900mg Rifampin/400mg Doxy for 3 months...didn't do anything for ne.
Posted by aklnwlf (Member # 5960) on :
Thanks everyone for the responses.
CD57, Disturbedme and Clarissa-What were the doses that you took and how did you take them? 2x a day, etc.
And also how long is your treatment for Bart?
All through my treatment (going on 4 years) everything pulsed and when I show improvement orals were decreased usually within a couple of months.
Also IV was pulsed.
Except for 5 months of oral Levaquin/Septra which I had to fight to stay on for 2 months every day and then relapsed within a couple weeks and did 3 more months on same protocol.
Needless to say I've relapsed many, many times.
I've come across more and more folks here on Lymenet that aren't pulsing for Bart.
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