LymeNet Flash: Help!!Need great sources to educate some people

This is topic Help!!Need great sources to educate some people in forum Medical Questions at LymeNet Flash.

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Posted by Minnie Mouse (Member # 13642) on :

First I want to say thanks for taking the time to read this.. I want to try to keep this simple if possible.

Many times I get overwhelmed with the fact that I can't understand much of the medical information. So it would be nice if I could get my hands on some information in laymans terms so they can understand without having to have a translator or medical dictionary handy.

There have to be sites out there taht are well documented reliable, to the point, informative and helpful.

This is for some people in my life who are supportive but dont' understand lyme because of all the misinformation they are reading online. They want to understand and for that I am greatful.

They keep reading how you can overcome lyme quickly with abx.. I need to show them the side of lyme that most people arn't educated about.

The way it affects us. The difficulty in extracting it from our bodies and the severe symptoms it can cause minute to minute/day to day. That it will take time and patience but I can overcome this.

The day to day struggles and issues with symptoms and the inability to function. How severe it can be and why. I can't drive hardly at all now. My heart has stopped.

The way it goes deeper and deeper and can take over all the organs when not treated...

The negative effects of abx(I may have to do abx, but want them to know why I havn't yet)and why it is best to avoid them if possible.

Positive results of people treated naturally. I know a lady who was healed getting treated at the clinic I go to now.

Ok, I know this is a tall order. And a lot to read... Anything you can help me with here would be great...

Thanks sooooo very much!!!

[ 17. March 2008, 06:02 PM: Message edited by: Minnie Mouse ]

Posted by Minnie Mouse (Member # 13642) on :

bumping my post. really really need some input if possible.

Posted by Melanie Reber (Member # 3707) on :

Hey Minnie,

A very good beginning Q&A pamphlet is:

Lyme disease, The Basics:
http://www.lymepa.org/html/the_basics_-_description.html

Also, ILADS Basic information about Lyme disease:
http://www.ilads.org/basic.html

These links and other helpful educational info can be found:

http://lymememorial.org/Educational_Links.htm

My best,
Melanie

Posted by Fordace (Member # 14874) on :

This is a nice slide show, great info here...

http://www.lymediseaseaction.org.uk/conf2007/burrascano1/img0.html

Rich

Posted by Minnie Mouse (Member # 13642) on :

Thanks! I hope I feel up to going through the information tomorrow...

Cheerio

Posted by bettyg (Member # 6147) on :

minnie,

i'd like to suggest LYME VIDEOS; go to my post at top of MEDICAL; this was just started, but it's a handy way to see what you were discussing! good luck [group hug]

Posted by Tracy9 (Member # 7521) on :

Columbia University site has excellent, easy to read handouts broken down in a few subject areas.

Posted by valymemom (Member # 7076) on :

When I get asked this same question, I direct folks to Dr. C.'s website. Many have printed his words for their extended family and friends.

Posted by shazdancer (Member # 1436) on :

How's about a branch of the federal government, a department of the National Institutes of Health?

The Natonal Institute of Neurological Disorders and Stroke:

http://www.ninds.nih.gov/disorders/lyme/lyme.htm