He is not an LLMD as I had thought. He is an Infectious Disease Dr. He is also my Angel.
After 14 years, he was the first to put the pieces together. The first to ask me where I had traveled and what I had been around. He has never treated me like I was neurotic though I have apparently acted like it at times.
From the first time I saw him he said it sounded like I was infected and never properly treated and put me on mino.
When I told him a Dr in New Orleans told me there was no such thing chronic Lyme, he said was that Dr X? He knew who I was talking about without saying her name. He used to practice there.
When I got the antibiotics, I said thanks and that I would see him around. He said, not so fast, I'm going to follow your treatment for a few years.
When the first test came back neg, he said ``that doesn't mean you don't have lyme.''
When I had a herx reaction, he knew what it was.
He uses Igenex and knew how to read the results.
After I finish up my 30 days of Riocephin, he says the next step is at least 2 more months of mino and we go from there. I will be treated till symptoms are gone.
He knows Dr W and calls him ``the worm''
My point of this post is to say, there is hope out there for non LLMDs to recognize and treat Lyme.
Posted by TerryK (Member # 8552) on :
That's great! Have you asked him if he would consider joining ILADS? That would be a good place to start.
Did he test you for co-infections? Very important because many lyme patients have them and you will not get well without treatment for them if you do have them.
They are as complex as borrelia and often require a clinical diagnosis.
Terry
Posted by jentytib (Member # 14375) on :
I'm not sure if he is with ILASD. I think he was when he was in New Orleans but not since he came to FL after Katrina.
I was tested for babs and it was neg and he says I have been covered with the other antibiotics for the other cos.
Posted by TerryK (Member # 8552) on :
I'm no doctor but bart requires special abx. Not the ones that are usually used for lyme.
Terry
Posted by jentytib (Member # 14375) on :
I don't have Bart symptoms
Posted by Lymetoo (Member # 743) on :
That's awesome!! Thanks for sharing! Posted by Meg (Member # 22) on :
That's very rare and very awesome! Posted by Boomerang (Member # 7979) on :
Great news, jentytib! So happy for you. It's wonderful to hear of a doctor who is willing to treat for Lyme.
Best wishes for continued healing.
Posted by roro (Member # 13383) on :
i have had 3 doctors tell me I have lyme, out of the 30 something doctors and specialists I have seen in the last 4 years.
unfortunately none were infectious disease doctors and could not treat me, so I went to an ILADS dr, LLMD
I could not understand why one of those other dr's couldn't just give me antibiotics. now I know why. the LLMD knows all the co-infections, symptoms, and which antibiotics treat each one.
most infectious disease drs do not know about TBI's. you are very lucky to have found one.
as for the average infectious disease dr, what DO they do anyway?
Posted by bettyg (Member # 6147) on :
jen, fantastic!! good news for you.
please send me a private message and include the following so we can recommend this dr. to others...
first/last name specialty address city/state
phone no. fax no. website or email if possible rates $$ do they take insurance? what kind do they treat with IV? oral only?
test for co-infections? TREAT CO-INFECTIONS? do they use our labs: Igenex, Fry, MD, or Stoneybrook?
thanks jen! Posted by Lisianthus (Member # 6631) on :
He sounds like an LLMD to me! After all LLMD stands for Lyme Literate Medical Doctor. He sure seems to be Lyme Literate with how hes treating you.
Take care, Lisi
Posted by lou4656 (Member # 10300) on :
sent a private message
Posted by shazdancer (Member # 1436) on :
I agree, he is a Lyme-Literate Medical Doctor. And it just shows that you cannot paint every member of a particular group with the same broad brush. There are plenty of savvy docs out there who may not be ILADS members, even though they are following ILADS protocol.
The guys who wrote the IDSA guidelines did not ask for a vote from the membership before they published. So when they brag about how many members are in their organization, it is a false argument. Many members do NOT adhere to the IDSA guidelines when they diagnose and treat.
Posted by TerryK (Member # 8552) on :
jentytib
quote:I was tested for babs and it was neg and he says I have been covered with the other antibiotics for the other cos.
then.. I don't have Bart symptoms
Glad to hear you don't seem to have bart. I thought he was saying that all co-infections were covered by lyme abx so thanks for clearing that up.
It's always great to hear that an infectious disease doctor is open to treating lyme and co-infections properly. It gives me hope.
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