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» LymeNet Flash » Questions and Discussion » Medical Questions » Is Leaky Gut behind your illness?

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Author Topic: Is Leaky Gut behind your illness?
luvs2ride
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This report says they are almost always related and then we become more suseptable to bacterias, fungi, parasites.

http://www.mold-survivor.com/leaky_gut_syndrome.html

[ 08. April 2008, 04:33 AM: Message edited by: luvs2ride ]

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Lymetoo
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up

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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^^
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Cobweb
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Thanks for this article Luvs,

My daughter has been diagnosed with Leaky Gut.

Fortunately she has made a pretty good transition to the prescribed diet of do's and don'ts for her.

I was afraid I wouldn't be able to wean her off the teenage diet of pizza and soda-but now she willingly takes rice cake "sandwiches" to school with almond butter and no sugar peach jam.

We have no wheat, dairy (except for some cheese),or oats in the house. She snacks on pistachio nuts and is big on brocolli.

[woohoo]

Nevertheless, printing out an article like this will help to reinforce her good habits.

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bettyg
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what a beautiful peaceful background color and good legible print.

now those WORDY solid block texts are something else! thanks for the good link!!

have you posted the link on treepatrol's archive or checked to see if it is there ...outstanding!

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METALLlC BLUE
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I would most certainly say yes. Pentasa, a drug used for Crohn's Disease patients, can be useful here, as leaky but is often the result of chronica inflammation which breaks down the lining of the digestive tract. Given enough time, the inflammation will decrease with this medication, as long as the patient is not allergic. Allergy is very unlikely.

You're welcome to talk to your physician about the idea. It is a localized anti-inflammatory just for the bowel and will not affect other parts of the body.

Lyme Disease patients most certainly report this condition commonly.

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I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

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Lymetoo
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Cobby... pistachio nuts contain a lot of mold. Just a heads up. I know it still beats pizza!!

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lymeHerx001
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I dont know what the heck is wrong with me now.

I need to be a freakin millionare to be well.

I think I am sicker now after treatment then before.

My LLMD should have just said "cut out the sugar" and then detoxed me instead of giving me this darn herx with the Biaxin for which I have MCS now.

Im so upset. Pain every day and its not getting better. I take Advil every week and now thats not even good.

I envy all the normal people out there. [Mad] [Mad]

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Lymetoo
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Lymeherx.... I understand what you mean! Try this diet and also look into "food combining". It's hard to do, but you already know about limiting your diet, so maybe it won't be that hard.

I've been doing this for about 2 months and it has helped my pain levels a lot. It has also helped my gut/bile duct issues.

Basically, you don't eat grains, no dairy and be sure to eat fruit alone.

If you have potatoes [rarely] you don't eat them with a protein. You eat only vegetables with proteins.

Maybe this will help you!! It is part of my dr's plan to heal my leaky gut.

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lymeHerx001
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Unfourtunatelly I dont eat any fruit. I get burning and fatigue from it.

Grains are out.

I only eat veggies, meat and some seeds and nuts.

My diet is extremelly limited.

I read on one website that even if we stick to a diet or fast that the candida still gets fed by our blood glucose.

The glucose in our blood has to stay at a certain level or else we die there by feeing the candida.

I wonder if my liver is dysfuntioning or there is something that my LLMD is missing.

I demand tests every time I see him.

Last blood test showed low vitamin d.

The expensive stool test showed no candida but no bifido. The no candida part is BS. I herx terrible.

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Lymetoo
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Testing for candida is pretty lousy. I just go by symptoms.

Definitely supplement the vitamin D. Did you get started on that??

Since you're basically following the food combining rules [by default!] .. just remember not to eat two different proteins at the same time.

And you don't have to eat fruit. Nope!

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D Bergy
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Inflammation of the intestines or stomach can be caused by so many different bacteria or fungi, it is impossible to know which or how many strains are the problem.

I accidentally found the likely bacteria causing my Crohn,s, but used MMS (Chlorine Dioxide)to kill all the acidic bacteria in my intestinal tract. My symptoms diminished over a few weeks until they were gone completely.

If this is not your cup of tea, then Low Dose Naltrexone can normalize your immune response to help your immune system kill the offending bacteria. Not as quickly, but it is quite safe.

I use both, and have no symptoms of Crohn's anymore.

D Bergy

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Tincup
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Hmmmmmmm..

I actually am going to have to disagree with the author on several points. There are many to disagree with ... but only so much time in a day.

You can be allergic to ANY foods and multiple foods.

I can't believe they said just nilly willy to cut out certain foods because they COULD be a problem.

It doesn't make any sense... and won't work anyhow.

You need to be tested for food allergies you may have developed since the leaky gut happened. Things you commonly eat.. be it junk food or healthy food... can be the culprit.

Whatever YOU eat is what is getting through the gut lining... not what is a common allergy related food or what they think. For example...

I was allergic to carrots, lettuce, tomatoes, cucumbers, squash, peppers, fruits of all kinds, cabbage, turkey, fish, chicken, etc.

I ate healthy but THOSE foods were the ones that went in MY gut regularly and leaked through.... causing the particles to enter MY blood stream and cause allergies.

I was tested and ended up having 56 food allergies... ALL healthy foods... and I would have told anyone and their brother I had none... till the tests were done and I SAW what had happened. Once treated properly I was MUCH better.

The two things the tests said I wasn't allergic to were beef and chocolate! That indicated I hadn't been eating them, so they hadn't leaked through the gut lining. And that was true!

I hate to see someone's diet restricted for no "sensible reason". If you are allergic to certain foods.. stop them, treat the condition, and THEN restart them one at a time.

And avoiding food that MAY or may not be causing problems leaves you open to developing allergies to the rest of the food you do eat if the gut lining isn't repaired.

Example- If you eat nothing but carrots and you have leaky gut... you won't be allergic to peanuts, fish, onions, breads. wheat... or anything else.

And hogwash on the idea that avoiding foods they list there alone is enough to repair the gut lining. It ain't gonna happen.

I REALLY don't want to see folks fooled into believing that nonsense... and denying themselves food that they want and need for proper nutrition with NO basis for it.

Another BIG point...

The proper way to fix the gut lining is with pharmacuetical grade L-Glutamine powder. It is an aminio acid that specifically targets tissue and linings to repair them.

I hope those who read this will do the looking up of the facts. This article leaves MUCH to be desired.

VERY sad indeed.... in my opinion.

[Big Grin]

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lymeHerx001
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Very interesting about the natroxon (sp)

Anyway, yes I started taking vitamin D. I thought it was bad from marshal....oh no.

Well since I dont get much sun its probablly lower. I just hear that it can be used by the immune system to fight candida.


quote:
Originally posted by D Bergy:
Inflammation of the intestines or stomach can be caused by so many different bacteria or fungi, it is impossible to know which or how many strains are the problem.

I accidentally found the likely bacteria causing my Crohn,s, but used MMS (Chlorine Dioxide)to kill all the acidic bacteria in my intestinal tract. My symptoms diminished over a few weeks until they were gone completely.

If this is not your cup of tea, then Low Dose Naltrexone can normalize your immune response to help your immune system kill the offending bacteria. Not as quickly, but it is quite safe.

I use both, and have no symptoms of Crohn's anymore.

D Bergy


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Lymetoo
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What does Marshall know?

Tinny, I don't see anything wrong with eating vegetables and proteins. I've always felt the best when eating this way.

It's just hard to keep it up sometimes!!

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Cobweb
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quote:
Originally posted by Lymetoo:
Cobby... pistachio nuts contain a lot of mold. Just a heads up. I know it still beats pizza!!

eeegads! [Eek!]
www.boston.com

What's a mother to do???????

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heiwalove
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tincup, i'm interested to know how you/your doc treated your leaky gut? did you cut out all foods you were allergic to for a period of time (how long?) and take L-Glutamine? anything else?

you sound like you've been through this whole process and i'm just getting ready to start it (getting tested for food allergies next time i see my LLMD).

thanks!

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Rianna
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Permable or Leaky gut can be healed with L-Glutamine Powder

Glutamine is used to prevent and alleviate Intestinal Permeability (by functioning as a ``fuel'' for the Villi cells of the Intestinal Wall, thereby helping to heal the damaged Intestinal Wall that is an underlying cause of Intestinal Permeability).

We used this in clinic (pre-my lyme days) for chrones patients its amazing success.

Rianna

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luvs2ride
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Tincup

I agree with you on a couple of points.

1-Food allergy testing is a must

2-If you have leaky gut, you will develop an allergy to the foods you eat most often, even the healthy ones.

That said, no one benefits from sugary, junk food. No one. Not healthy nor sick people. Period. Makes you feel good? Only in the moment you are eating it. After that, it is all just poison to your body.

Most people are not eating healthy. They are not eating fruits and veggies and therefore, no allergy and they will benefit from adding these foods to their diet.

I too had allergy to some healthy foods like lettuce, chicken, lemon, blueberries. But I was eating those foods almost daily.

I only had to avoid them 6 mths. I can eat them now. However, I learned through the healing of my leaky gut that you must rotate your foods. No matter what you eat, don't eat it every day.

The rotational diet says eat it once every 4 days. So, if you eat potatos today, eat them all day long if you wish but don't eat them again for 4 days. This makes it very hard to develop an allergy.

Heal the leaky gut and you won't develop allergies.

Bad diet causes leaky gut just like abx, OTC drugs, stress.

It is really sad that the best tasting foods are the worst for us.

I certainly don't think this report is faulty or useless. So many people have no idea what constitutes a healthy diet. And they haven't a clue that what they eat may be contributing to their symptoms.

Luvs

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Cobweb
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Guess I should add that my daughter was also put on probiotics and L-Glutamine Powder,too.

She was identified through blood work.

She has a host of specific foods to avoid, the most surprising for me being bananas! I thought they were the perfect fruit and gave them to her all the time.
[Frown]

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heiwalove
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up for tincup and others [Smile]

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Lymetoo
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I've taken L-Glutamine for at least 5-6 yrs every morning on an empty stomach.

I feel that my most recent round of abx for the sinus infection did my stomach in. Not to mention 4 yrs straight of abx between 2000 and 2004.

So L-Glutamine is not the cure-all.

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WildCondor
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Definitely take L-Glutamine in high doses away from food! Also, get a food allergy test from Metametrix and avoid all allergic foods for a year while taking the glutamine. Try digestive enzymes as well!

It works. [Smile]

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Tincup
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Hey luvs..

You said.. "That said, no one benefits from sugary, junk food. No one."

That might be true.. but to mix that in with an article about leaky gut... making folks think it is vital to cut out sugar, etc to be able to fix.. or ... that cutting out sugar ALONE will fix "leaky gut", is not accurate.

That is my problem with the article.

And no where do they offer the cure. Just a never-ending depravation diet of foods they want you not to eat... and mention of a bunch of supplements which may or may not be needed... that are "good for you" in their opinion.

And yes I agree... folks should probably cut out sugar/junk food... but doing only that won't fix leaky gut.

Me tinks they should have done 2 articles perhaps... one on leaky gut.. and one on their position of what they think people should eat or not eat for general health benefits.

Little h and JohnnyB..

I just slammed into a wall. Well I feel like I did. Went to my Coyote Ugly class tonight and the dancing on the bar tops just wore me plum out.

If you will excuse me... I will check back and reply later because it is an important consideration for those who have been on antibiotics.

Please forgive me for dropping right now. Sometimes I just can't help myself.

OK?

[Big Grin]

[ 24. April 2008, 03:31 AM: Message edited by: Tincup ]

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Tincup
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H said..

"tincup, i'm interested to know how you/your doc treated your leaky gut?

First the test... then the list of allergic foods. Since I had so many- actually more than the lab and doc had ever seen- I cut out the ones that were the most problem (they rate them as to severity).

In my case if I hadn't done it that way I wouldn't have much to eat but beef and chocolate.

Example.. I was allergic to both onions and garlic. Trying to cook without either was YULK... so I stopped onions for about 6 weeks and then started it and then cut out garlic for 6 weeks.

I avoided the listed foods.. for at least 6 weeks.. and while doing so I used the pharmacutical grade L-Glutamine POWDER- with no additives- a must- and used about a tablesppon mixed in water each day.

Remember to drink the L-Glutamine and not let it sit around. It can change into an ammonia-like form if it sits around a long while... so drink up!

It has no taste and no color or flavor if mixed well... so no nasty stuff to do really. Kinda nice after the other "treatments".

I also took probiotics... a good brand.. powder form mixed in the water made it easy to remember to take.

I also took what is called FOS.... short for some LONG word that starts with an "F".

It is the ingredient that probiotics need to "eat" to survive. Warning on this. It can be found in some probiotics... so if taking it in ADDITION to what is in the probiotics.. consider the dosing.

Also note- I personally had problems with the FOS. Most don't. I had tummy pain (gas) and bloating. I backed off it and that helped. It is known to cause that problem.. so do keep that in mind.

The L-Glutamine not only repaired the gut lining.. it repaired the bladder and uterine lining which had caused horrible problems for years.

NICE side effect there! And NOT expected.. so I was pleased.

After the time limits.. I think I stayed off the foods a bit longer than 6 weeks because I wanted to be sure I was ok....

I added them back in slowly... one every 4-5 days or so... to be sure I wasn't having problems with them.

I didn't. I felt fine.

I actually felt better after a few weeks.. but not totally fixed.

Another thing I want to mention.

I was NOT eating well for a long time because not knowingly... I always seemed to feel better when I wasn't eating than when I was.

DUH me.. I didn't connect it to food allergies because I had a "healthy diet".

BUT.. after a while on the L-Glutamine my appetite increased.

SEVERELY!!!! AMAZINGLY!! TOO MUCH!!!

I didn't know why.

I was so hungry... and this is embarrassing to admit...

I was getting up... eating before breakfast.. during breakfast.. and I continued eating all morning .. and was eating till dinner time. Then I would eat on and off all afternoon till supper time... then eat till bed time.

If that wasn't bad enough... I had a bed room on the third floor.. so I would carry one or two oak split baskets full of food upstairs with me at night and eat eat eat.

And it was strange. One day I couldn't seem to eat enough cabbage. I ate and ate... sometimes just wanting cabbage for 2-3 days.

The next craving might have been bread. For 1-4 days I ate bread... and more bread.

Sometimes it was dairy. It was so weird... and it got to where I was scared! I thought if I kept eating like this... and I was hiding the amount of food I ate from others due to shame...

I would be bigger than a house!

Finally my appointment came up with the doctor.

I was completely freaked at this time about the amount of food I was consuming.

He laughed when I described it.

THEN he explained what was happening.

My body was NOT requiring food and nutrients before I knew I had food allergies from leaky gut... which showed up in me as a lack of appetite.... because what I was eating was making me sick. The BODY knows.

But once the gut was repairing itself ... the body kicked into gear and said FEED ME!

The reason for the strange foods.. like 3 days of cabbage... was because there was something in the cabbage that my body needed.

Once I got the nutrients/vitamins/minerals or whatever that food had that my body needed.. I didn't crave it anymore.

Then I would crave something else. That (his explanation) fit exactly what I had experienced.

SOOOOOOOOOOOOOOOO.. he said when you crave something, eat it. And keep eating till you don't want it anymore.

I complained about the fact I would be HUGE if I did so.. and he said once I got what my body needed... my appetite would return to normal.

I didn't believe him... the dope that I am... but I couldn't control the eating.. so I ate.

About 2 weeks later I woke up one day and wasn't feeling starved. WOW! From that point on my appetite was "normal" again. He was right.

I wanted to mention that... especially if you are a parent and have a child who suddenly wants or craves a certain food or a lot of food.

Let them have it.

NOT much choice.. cause being a kid or not.. had you kept food from me during that time period I would have chewed your leg off.

[Big Grin]

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www.MarylandLyme.org
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Tincup
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Here is an old post...

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=013864

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Tincup
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Johnnyb said..

"Yeah, TC, I second what Heiwa said... what's the dose and timing of the glutamine, and what else re: food allergies is needed? What type of tests to ask for- I need my son checked for this.

Thanks!"

I answered some of this above I believe.

I had tests done (blood tests I believe- if I remember right) from Smoky Mountain Lab in NC.

WELL... I just searched and searched.. and finally found out they changed their name.

Here is the new name and site.

http://www.genovadiagnostics.com/

Well FIDDLE! I am having problems with the site.. so if needed... call them???

````````````````````````````````````

I tried to get a hospital dietician to help me because I COULD eat sugar... wasn't allergic to it.. but because oif yeast couldn't eat sugar. My diet was so limited- don't ecpect yours to be- that I couldn't find things to eat.

But that was a complete waste of time and money.. and my doc actually contacted the hospital and chewed out the dietician because she dumped me because she didn't want to spend time on helping with something more difficult than a "regular" diet.

Once you have the list of foods you are allergic to... you will need to just be cautious you don't have that hidden somewhere in the diet... and that you have a good choice of other foods.

It really isn't hard... so not to worry.

And you WILL feel better if that is your problem and you fix it.

I suggested this to several LLMD's years ago.. and they started testing people. They found it in a number of people and treated them for it.

Keep in mind.. when the gut lining is damaged you may also bruise easily. Maybe not.. but I've noticed that.

Seems the Vitamin K absorption.. needed for clotting.. doesn't work right when folks are on antibiotics.

Once the gut is fixed.. it may be better too... if that is what was causing the brusing.

Hope that helps!

Sorry it took long to get back at you. BUSY bee here.. and tired too.

Good luck!!!

[Big Grin]

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