I am being diagnosed with lymes because of the symtems, but mostly they found spots on my brain
has anyone had this happen to you?
They are going to IV penicillan,But I am scared because I am ellergic. I don't know what the reaction is because I had it when I was a babby.
My mom doesn't remember because there was so many of us kids.
I am not sure how long I have had this but I am thinking it has to at least 6 yrs.
ANy help would be welcomed!
Posted by Lymetoo (Member # 743) on :
WElcome! You can do a search by clicking on the little word "search" in the upper middle portion of this page.
Type in "brain lesions."
You don't have to do penicillin. There are a lot of other drugs to use.
Rocephin is usually the first one they use for neurolyme. Are you seeing a Lyme Literate Medical Doctor?? [LLMD]
Posted by Michelle M (Member # 7200) on :
quote:Originally posted by Hot socks: I am being diagnosed with lymes because of the symtems, but mostly they found spots on my brain
has anyone had this happen to you?
They are going to IV penicillan,But I am scared because I am ellergic. I don't know what the reaction is because I had it when I was a babby.
My mom doesn't remember because there was so many of us kids.
I am not sure how long I have had this but I am thinking it has to at least 6 yrs.
ANy help would be welcomed!
Hi Hotsocks. Welcome.
You said you are mostly being diagnosed though your symptoms. What are your symptoms?
You should try and find a specialist in lyme disease, otherwise known as an LLMD. (Lyme Literate Medical Doctor.) The way to get a referral to one is to post in our "Seeking a Doctor" forum -- put your city and state, then someone will message you with a referral in your area. The reason that's important? If your doctor isn't a specialist, they often don't know how long to treat you, and they don't know about the other common co-infections that ticks can give you.
Some of those include babesia, bartonella, ehrlichia, and so on.
So you really need an LLMD~!!
As LymeToo says, there are lots of us with brain lesions. (Including me!!) The good news is that with treatment, sometimes they can go away, and you can get much, much better!! But you really need a good doctor -- that is not likely to be the one you have now unless you're very lucky.
Usually IV Rocephin is the drug of choice, not IV Penicillin. IV Doxycycline is also used. An LLMD would also probably have you on an additional oral medicine. He would also probably test you for coinfections. You should be on supplements to keep you from developing yeast overgrowth, which is NO fun!! :-) Please do post and see about finding a good doc.
Don't be a stranger, and good luck! Do lots of reading!
Michelle
Posted by bettyg (Member # 6147) on :
welcome, did you get my newbie package earlier? if not, here's info on it...
also we have LYME NO S on the end, and correct every dr. you encounter saying "lymes"! thx...
WELCOME, would you like a FREE copy of my newbie package of 118 pages info galore sent by a PRIVATE MESSAGE here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
Posted by Lymetoo (Member # 743) on :
