I was treated for lyme (positive test) 5+ years ago. Dr. Sw in PA, then Dr. J (same area of PA). Symptoms never totally went away, but I couldn't afford to go any more after my 12yo son was diagnosed too (he was treated with Dr. J in CT).
For the last several years, I've been OK - some symptoms - like stiff neck, joint pain, all tolerable. But now, over the last 3 months, I'm having the following and wonder if I'm having a lyme relapse or co-infection:
Badly Burning Hands (for the last week, every day, almost can't stand the pain) Stiff Neck, right side Memory Loss Extreme Mood Swings Lump under armpit, not painful Unexplained bruises on body, legs, arms, hands Eye spasms & twiching, left side only Extreme Fatigue Head Pain, right side front by eye (like a sword stabbing me in the head) Sore glands in my neck
The only time I ever felt "good" when being treated was on Levaquin/(another med I can't remember) combo.
Any thoughts would be appreciated!
Roxy
Posted by CD57 (Member # 11749) on :
Your symptoms sound like under-or un treated bartonella/BLO...plus the feeling better on Levaquin is a dead giveaway.
Can you start this again? Lyme is rarely alone, as we know, there are co-infections in 99% of us!
Posted by Roxxxy (Member # 15297) on :
Hi! Please excuse my ignorance but what does the BLO part stand for?
Roxy
Posted by Roxxxy (Member # 15297) on :
Thanks for the link!
Posted by sixgoofykids (Member # 11141) on :
Improving on Levaquin is a dead-giveaway that you have bartonella.
I'd get back to an LLMD for treatment.
Posted by Alv (Member # 15192) on :
Big time Bartonella like organism-BLO!
Posted by Lymetoo (Member # 743) on :
Wow, really does sound like you have bartonella as well.
Posted by daise (Member # 13622) on :
Here's something called Presription Hope. They have Levaquin! If you have insurance and they won't pay for Levaquin, then as long as you qualify, they say, they can get it sent to you to you for $7.00 per month.
![[Smile]](smile.gif)